Having a Hydrocephalic Baby What would you Feel?

My little brother is 6 years old and he is hydrocephalus. He is a bright little boy! He has a mind like a 2 1/2 year old but he talks like a 8 year old. He still throws tantrums like a 2 year old also. Dont give up hope on your baby girl! Theres always hope. Lou had to have a shunt put in his head at 3 days old to drain the water off of his brain and he has had 2 shunt surgeries since then. Just because the baby was born with hydrocephalus doesn't mean that the child is going to die! With the right treatment, with the shunt, everything is gonna be just fine. Good luck and i hope your little girl is doing just fine:)

My disabled son is currently three years old. Next month he will become four years old. He has got spina bifida and hydrocepalus. He had a shunt put in his head when he was two weeks old. He seems to be a bright little boy. I know that some adults in todays world have got hydrocephalus and live a normal life. My little boy can get headaches. The worst thing for him is he can't walk. I wonder how your little girl is now.

Its not an easy one, that's for sure. It drains you a lot emotionally & mentally not to mention the great sacrifice you have to do phsically. Mom's or parents in general who have a child with this debillitating physical form are really very special that not even a superman may guarantee its easy. Your child is also special, it only needs love, coz that is what it only know during its existence. Please allow me to say this much if you may, The grace of GOD is common & most especially available for people in this situations. You just have to seek his wisdom about it & in all those times when you've called it quits, it has long been given to you. Like i mentioned, common people like us cannot guarantee that we will be strong enough to have gone through what you had treaded on. Thus only people with something special or something great in them, in their character are privelege few to accomplish this, not even the best of lawyers, doctors, millionaires can guarantee it. There are in the internet available resources or people that had gone through whom you can interact with. Try locating them, they might help or assist you.

Many children have been diagnosed with hydrocephalus, had shunts implanted and lived long lives. They may have to have the shunt replaced several times because of their growth. Why did they tell you she will only live to 10 years? Or did they tell you that her shunt would have to be replaced before she is 10 years? Does she have any other problems? Is she developing normally? Does she speak and act like other 5-year old children? I did not know that I have hydrocephalus until I was 48 years old. I had headaches for years, but it did not become a problem until I started hearing things and seeing things that weren't there. My shunt is uncomfortable because of scarring, but I plan to live a long time.

Hi! I can definitely relate to you. I have a one year old son that has hydrocephalus. I am so happy that he came. He brought our family closer to God. I knew exactly how you feel. I dont really think about if he's still with us after 10 years. I knew some still lives longer than that. I will never give up. I focus more on today, cherishing our moments than to fuss about the future. We have to be strong for them. Miracles can happen. Love is miracle. Love your kid and treat her like shes the princess. Dont lose hope.