I am so upset .....I can't stop crying.

Hi Hun, words cannot begin to express the sorrow I felt when reading your post, my brother also had severe CP caused by oxygen loss @ Birth, he lived till he was 25 and I would always ask myself why him and not me, but i bet everytime your son smiles or looks at you then you feel proud that he is your son, I know in my heart that you will love and care for him and he will grow up knowing what many children do not, what true love is.

I am sorry to hear about your son and I understand how you would take his place if you could. Its very sad for you and him both. Have you had any support from the hospital to give you advise and guidance to deal with the many issues that will come with having such a severely disabled child. Sometimes, especially in my country they have all the specialist equipment to save babies but then when the parents are left to bring up their baby, which is very demanding, they seem to not give the support these parents need. I hope you find the help you deserve as no one should be expected to do this on their own. My thoughts are with you and your son.

Hi Alayna..!!! Infact i don't have any words to express, how much i feel for ur son... I love babies very much.. They r so innocent, and sometimes we do feel that why God is testing them... I nearly got tears in my eyes when i read abt ur son.. That's why i told u to chat later with me.. The moment u told me, i immediately started praying to god for the speedy recovery of ur son... I'm sure, our prayer's will definately work for him... I just feel pity on u and ur son... and i just ask god, why not me instead of ur son??? I can't see the innocent kids suffering from all this stuff... And i'm a very sensitive person... But anyways dear... i wish if i was there, and i could have helped u in whatever way u want... But still its my duty to cheer u up... So please stop worring dear.. Have faith in God.. He will certain help u out... I am sure, my prayers will definately help ur son getting out of this trouble.. So let's hope for the best... So when u feel depressed, just remember the smile of ur cute baby... That will certainly make u smile... I wish my all luck to you and ur child... and i'm always there to help u whenever u r in trouble... Atlast i will say that i'm ready to help u in whatever way i can... So all the best for u and ur child.. "O Jesus.. Please save that innocent child..!!"

My heart just breaks for you really. I can't even imagine how hard it is for you to have to deal with these complicated issues with your son on a daily basis. There is nothing I can say to make you feel any better, only know that now that I have met you, you and your son will be in my thoughts. No child deserves to be put through such pain, nor any parent such agony. All I know is that people, including our children, come into our lives to teach us things about ourselves and about life. Clearly, your son, with all his disabilities, has brought much deeper meaning and wisdom to your own life and the lives of anyone else he touches.

oh my goodness. i am so sorry to hear of the pain you are experiencing right now. i wish i had advice or wish i could be of some help...but i just don't know what to say. but you are in my prayers, your whole family is. what a special little guy you have, a special blessing. and it's not that God is testing you, BUT he knows you are strong, (whether you feel that or not), and he gave you your son to care and protect over him. to love and cherish. to do all you can. He made you the strong woman you are, to work with your son. i know that may sound silly, and or upsetting, that why would God do that, or put you thru that...sometimes we don't know what God is doing, His reasoning, BUT there IS a reason. i admire you honey, and you just keep loving that boy with all your heart. you are doing a fantastic job. i can be here to cry with you when you need it.

sorry to see that , when lost my family member my mom. i can't accept it for several years, but i must move, my dad tell me: you loved won't feel well if she know you're in such mood. everybaby is a angel, he cames ,he's smart, and what's more he'll be happy because of you.

hi dedicated it's really touching to know that that's what you go through everyday,i'm very very sorry for you and especially your lovely son;he is lovely cause God gave him to you and please stop crying because you'll smile at the end of it all

I can't even begin to imagine what you're going through. My oldest son has ADHD & Tourette's syndrome which was very hard for me to deal with in his younger years. Is there a way you could get involved in a support group if you haven't already? Having moral support from others who understand and share your experiences can be helpful. My thoughts and prayers are with your family.

I write this with tears in my eyes. I'm so sorry for you and also, for your son. Is he still in the hospital? Talk to your doctor...I do not know if something like Boostplus would be an option for nutrition or not. Also, a friend of mine who had cancer, used a "peg" for year to get nutrition..your doctor should give you close guidance. You are in my thoughts and prayers.

I'm so sorry to hear about this. I wish you the best of luck with this. I will be praying for you. I don't know what you are going through so I'm not even gonna say I do. I just know that I can pray and that prayer works.

Hey Dedicated, my heart is hurting for you. I know how hard it is to take care of a child that is special. Everyday it is a struggle to watch your child suffer so. No mother wants their child to suffer in life. I always tried to look at the brighter side. Its harder to do some days then others. Remember, to keep talking about ti and not to bottle it up because it will make you feel sadder if you were to keep it bottled up.

How terrible for you, I wish that there were more to say to make you feel better, but I know there is not. Just remember to be strong but take care of yourself, too, because you need to be whole and well to take care of that precious baby. I wish there were more options for you to help him get the nutrition that he needs. I saw that someone else asked about support groups, that would be my suggestion. My husband and I lost our only daughter to SIDS and it was terrible. The best thing that we did was to get together with another couple near our home, and be able to discuss our feelings and issues with someone who had experienced the same thing. I know that you are a wonderful person just by reading what you do on a daily basis to give your son a good life. I know that the quality of life for him may seem bleak to you, but I am also sure there must be some good times, too. I wish you the best of luck and I will keep both you and your son in my thoughts and prayers.

I'm so sorry. I don't know what to say. I couldn't imagine having to sit there and watch my child be in so much pain and not be able to do anything about it. My heart goes out to you and your family and I hope you could find the strength to get through this. (((HUGS)))

just pray. God wont give that problems to you if he know you cant handle it. i'll help to pray for your son's health and recovery.

Hi dedicated my heart does go out to you. Please dont cry and dont be sad. It sounds like your taking very good care of your little sweetie. And by the way he is so cute. You must be strong and continue to stay strong for your son. I wish you all the best and will keep you in my prayers. Hugs to you.

I'm so sorry for your difficulty. May the Lord Jesus hold you in His Loving Arms and give you the strength you need for this time of testing. Only the Lord knows why. We just need to keep our eyes on Him and ask for His strength in time of trouble. He will walk with you and comfort you. He loves that little one more than you know and why this has happened. Draw your comfort from Him and cry when you need to. He holds all your tears in a bottle in Heaven. Praying for you.

I really can't begin to understand how anyone in this position feels honestly. All I can offer is my support in the power of prayer. I believe GOD can do all things! I'm a firm believer in miracles, this is because I'm not supposed to be here today but I am! I'm very saddened that you are very sad, but then that's how moms are when things go wrong, so it's normal. I will hope and pray for the best possible outcome, it might not happen instantly, but in GODS time he'll come through and thngs will all work out for good. Just try you best to keep your head up, I'm always here to talk anytime anyone needs someone to listen...God Bless :)

Oh, dedicated, my heart is breaking for you. I feel like I have nothing to say that would make you feel better. But I will promise to pray for you and your family. I know that my child has gone through some time frames when he has not wanted to eat much for one reason or another, perhaps your situation will turn around eventually. I hope you are remembering to take good care of yourself as well. You have to be strong physically and mentally. If mental health support is difficult to come by for whatever reasons, I recommend you start visiting churches and ask for support with it. You might be surprised at the help they could find for you.

i feel so distressed with your situation. a 2year old baby, and having to cope with so many problems. poor little darling soul. there is nothing that prayers cant achieve, pray to God with all your heart, be very sincere, and then depend on Allah fully and leave him to sort out your matters, and only trust him in this situation. i am a muslim and believe me, when we trust Allah and believe that no one but He can save anybody, it usually happens that you learn to surrender in front of Him and then he takes you out of your troubles.

So painful to read this for another family suffering the CP problem. My nephew has just the same like your son, I have already heard so much about such situation. My nephew always got ill after the birth, he even stay in the oxygeon cabin for several days just after the birth. He was so thin and very weak when I sew him first time. But, we have some good news also, when he was 4 years, he begin to act better, there is a big improvment. Yes, there is still small difficulties, but mostly he act like a normal child. My words are, be patient, try not think too much about the delay, at the same time, try to force him to get enough nutrition, it is hard to change the diet of a small baby,maybe he will cry a lot, but is this important, after several hard days, he will begin to suit to the new food. Good luck, dedicated 28. Please accept my best wish for your son and you.