How often do you find yourself explaining PTSD to others?

By Leca
@lecanis (16647)
Murfreesboro, Tennessee
May 18, 2007 7:13pm CST
I've noticed that it seems I'm always trying to explain myself to people, because I do sometimes behave very oddly. It's not so much that I care what other people think of me, but just that I value honesty and want people I care about to know what's going on with me when I'm being weird. I was wondering what other people's experience with this was. Do you often wind up explaining your behavior to others? Are people surprised to find out you have PTSD? Do you ever tell people it's none of their business if they ask why you act strangely sometimes?
2 people like this
4 responses
@nonew3 (1941)
• United States
19 May 07
I startle quite easily, especially when someone is behind me without my knowing it and suddenly says hello to me. Then I tell them that I nearly jumped out of my skin and they scared me, and please don't do that. I get tired of explaining, because when I do explain people don't understand. And, I get told again and again to just forget about what happened to me. Hey there, I know you from another discussion I think. :-)
1 person likes this
@lecanis (16647)
• Murfreesboro, Tennessee
19 May 07
Yep, we do know each other from another discussion! Which I need to get back to sometime today, but I haven't felt I have the brain power to absorb everything you said there yet. =p Thanks for sharing! I get tired of explaining sometimes too, but I do find myself doing it sometimes anyway.
@nonew3 (1941)
• United States
19 May 07
Hey, thought I'd at least throw some suggestions and info your way, and then you could take your time in digesting it all. And, I could perhaps help you out as I learn the stuff myself. (The Deaf and hard of hearing world is a whole lot bigger than a lot of people think. It is often a surprise to find out just how big. We have barely even begun to scratch the surface. And, the Deaf languages and cultures in other countries are different than in the US.) Between the PTSD, pinched nerves, and other disabilities, I really don't have many friends or much of a social life anymore. Other people are often not very understanding. It seems that few people who don't have PTSD understand what it is and what it does. I've been labeled as being "mental" and "crazy" by some rather ignorant people. You'd think there would be a lot more public awareness since 9-11's terrorist attacks. But, there still is a long ways to go. More later. Back to icing my back and pouring another cup of coffee.
1 person likes this
@lecanis (16647)
• Murfreesboro, Tennessee
19 May 07
It sounds like it would be really tough to have a social life for you. I'm sorry it's like that. For me, with all my health problems, and the fact that I have a young child, I don't often get to go out other than to go to work. I spend a lot of time at home online, or with my husband and son. I do have some really close friends that were friends of my husband's before I moved here, and every Monday some of them come to visit at our home for a roleplaying game. I've been pretty lucky in that over the years that group of people has become really used to my PTSD, and are good at both knowing how to react when I do have a problem, and treating me normally even afterwards. It wasn't always like that. When I was in high school, I was branded a weirdo and treated differently because I freaked out if you touched me unexpectedly, and sometimes when certain topics were discussed I would just flee the room. Even now, sometimes there are situations for me at work or among people other than my close friends where I come out looking like a "crazy" because I have a reaction caused by the PTSD. I have a really hard time making new friends because of it. I'm so scared of meeting new people in the first place, and then even when I do take a chance I find they don't understand me, either because of my health problems or my PTSD. There are so many times I've been asked to do activities that are really physical, that I can't do either because of my lung problems or because of my Meniere's disease. And I've had friends invite me to see movies that I won't watch because I know they would trigger me. It's hard having so many things that set you apart from everyone around you.
@Ravenladyj (22902)
• United States
21 May 07
I do it all the time actually and for the same reason you do pretty much..I couldnt give a flying *beep* of what ppl think of me, but it IS very important that ppl who are close to me or I have regular contact with knwo where I'm coming from...and/or why I do the things I do (my after effect quirks)... Ppl arent necessarily surprised I have PTSD or any of my other disorders but I do find that ppl are very oblivious that many of these exist...and I think some ppl are surprised how I ended up wiht my disorders....Oddly enough I find that ppl like that, once they find out my history, are shocked that I'm not locked up or so medicated I'm a vegetable ya know which in a way is flattering yet also baffling really....
1 person likes this
@Ravenladyj (22902)
• United States
23 May 07
but oh the fun that could be had in an institution! seriously..I could have such a wonderful time...just hook me up to a morphine drip, nevermind if I forget to put on undies and my butt sticks out the back of my gown and for the LOVE OF PETE KEEP THE DOORS LOCKED LOL or I'll roam the entire hospital and be a cheeky little monkey
1 person likes this
@lecanis (16647)
• Murfreesboro, Tennessee
23 May 07
Thanks for your response, ravenladyj. =) I've found that people are pretty oblivious to the existence of such disorders too. Or that people that have them might lead fairly normal lives now. Whenever I start talking to people about my disorder, or about my history, they're really surprised because their image of someone with such a problem doesn't fit with what I'm actually like: holding a job, being intelligent, having a husband and child, etc. People often think it's suprising I'm not locked up too. =p
• Australia
29 Mar 08
yes I do fined my self explaining to others constantly I all so found because it is basically hidden others will test and push to see the reaction. at times I feel like some people would push a wheel chair over just to see them not be able to walk. one of my reations is to say if I was in a wheel chair would you push it over when thay say no I call them liars and say well thats what you just did to me mentaly and walk away.
1 person likes this
@lecanis (16647)
• Murfreesboro, Tennessee
30 Mar 08
*nods* That's a very good point. I knew a guy in high school who would intentionally hit some of my triggers just to see me freak out, and continued to do this until I finally beat the snot out of him, and then he went on this huge rant about how he hadn't really done anything to hurt me. *growls* I like that metaphor you use, it's very good. It's true, triggering someone on purpose is just as bad as pushing a wheelchair over.
1 person likes this
@djbtol (5493)
• United States
21 May 07
Of course we all do this. When we are quite used to a certain acronym (PTSD), we use it when communicating with other people - never considering they may not know what the acronym stands for. As you can tell, I do not know what PTSD is.
@lecanis (16647)
• Murfreesboro, Tennessee
23 May 07
I rather assumed that if someone had Post Traumatic Stress Disorder (which is what PTSD stands for) they would have heard the acronym before. So I didn't bother explaining because I was mainly looking for responses from people who had the problem, or a loved one who had it. You're right though, using acronyms without explaining them is annoying. I'm sorry.