Okay.......just how much more could go wrong....
By dedicated_28
@dedicated_28 (1383)
United States
May 23, 2007 5:37pm CST
well as everyone knows from my previous discussion. my son who is special needs will soon be getting a feeding tube which was totally devastating for me. well, i took him to the doctors this morning and found out that not only will he have to have surgery to insert the tube, now he will have to have a second because apparently his tube fell out of his left ear. this is just too overwhelming for me. one surgery is bad enough but two, i am so apprehensive because surgery for him is always taking a chance due to his poor health. he had tubes put in his ears back in july of last year due to repetitive ear infections caused by his gerd. which is reflux for anyone not familiar with it. Right after he had the tubes put in, one turned sideways and he had to go back into surgery. this will be the third surgery on his ears. it is the hardest thing to sit in a surgery waiting room while your child is in there alone and wait for the doctor to call to tell you how things went. every minute feels like days. i just hope and pray that he makes it through all of this okay. my nerves are completely shot and i'm not looking forward to this. thanks, i just needed to vent a little. thanks for listening.
2 people like this
7 responses
@GardenGerty (160908)
• United States
24 May 07
I am sorry your son is having such a tough time. You will find the feeding tube to be a real help since he cannot eat. I have not had first hand experience with cmy, or family kids needing tubes. I have worked with children who had feeding tubes. My first husband had to have a feeding tube inserted early in his illness, to try to keep his weight up. I was told that the key to good recovery is to begin using it right away as it helps with the healing. Will they do the two surgeries at the same time, or at least while he is still in the hospital? Let us know how your precious boy is doing, and we will hold you up with positive thoughts and prayers.
@dedicated_28 (1383)
• United States
24 May 07
No actually the surgeries will be done seperately by different doctors in different hospitals. I will keep everyone updated. i'm sorry about your first husband. much thanks gardengerty.
@dedicated_28 (1383)
• United States
26 May 07
they have also decided to do a reflux surgery but i was able to talk them into doing that while they have him under to insert the feeding tube.
@KissThis (3003)
• United States
24 May 07
I know exacty what you are going through. Each time the take my daughter in for surgery I just want to run off and hide with her. It doesn't get any easier. Just try to remember that they are trying to make his life better so that he won't have to suffer as much. I know that these words can't make it easier for you. to bad they couldn't do both surgeries at the same time. Have you asked? I know that when my daughter was having surgery for one thing that they were able to do surgery for another thing at the same time.
1 person likes this
@dedicated_28 (1383)
• United States
24 May 07
the doctors have said they can't do the ears at the same time cause an ent doctor has to do the ears and won't be available. they called today give me a date to do pre-op and they told me the doctors have decided to also do a reflux surgery at he same time. i swear it's neverending. i'm sad to hear that your daughter has had such a rough time. i sure hope she is okay now. thanks
@brothertuck (1257)
• United States
24 May 07
Thoughts and prayers will be going out for your son in hoping for a quick and uneventful surgery. May this also be a permanent or at least a long lasting solution and that it helps him to recover and grow healthy.
1 person likes this
@dedicated_28 (1383)
• United States
24 May 07
Much thanks brothertuck. that's what i hope for, him to grow healthy.
@toe_ster (770)
• United States
24 May 07
I am so sorry to hear about all that you and him are suffering from. I have a friend who's son has some of the same things happening. He was born with a tumor behind his right eye, and other neurological things. Since birth he has had surgery after surgery. He does good for a while and then it is somethng else. He just had his second surgery for the tubes in his ears. My heart and prayers go out to you both. As a parent it is hard watching my sons struggle with a cold, but to have something worse like you are going through is so heart wrenching. I wish there was more support or something I could do for you. It is good to have a good venting session. I wish you both the best.
@dedicated_28 (1383)
• United States
24 May 07
yeah, it's very hard to watch a child go through these type of things especially when it's your own. it's very sad. much thanks.
@catskisses (434)
• United States
11 Oct 07
Oh my heavens, you poor dear and that poor little tyke. Well of course you can vent here. I am lighting candles for you and your baby right after I go offline.
But you keep the faith, sweets. Only the maker determines these things. I have a severe heart defect, so severe that the doctors told my mom not to bother naming me and to make final arrangements the day I was born. Yet here I am 51 years old and still kicking. I had a rough start it's true, but since age 5 have been pretty steady, thanks to the unfailing love of my parents not least of all. I do not know how my mom or any mom can deal with such trials, but they do. We do not hold the knowledge of the future, but he may well pull through all this. My prayers are with you both. May the Goddess stand with both of you and bring healing to your son.
@silvernutbar (904)
• United States
4 Jun 07
Honey, I'm so sorry your little guy is hurting so much. He is a miracle and his mommy is one too. God saved him, he saved mommy, and mommy saved me. He and his mother are in my prayers and I love you.
