For those who need to be informed on fibromyalgia...
By patgalca
@patgalca (18366)
Orangeville, Ontario
June 1, 2007 1:20pm CST
and for those who know someone who has fibromyalgia and doesn't understand. Though this article specifically focuses on mould (one of the many things that can be attributed to some of the symptoms), the list of symptoms are here. Perhaps you have some of these symptoms and didn't even know they are fibro-related.
If you have a loved one who doesn't understand, be sure to show them the list of symptoms. It may help them to understand better.
http://www.mold-survivor.com/fibromyalgia.html
There is no cure, there are treatments that might help ease your symptoms and help you to cope with the life you have. Just remember, we are not going to die because of this.
Hugs to all!
3 people like this
4 responses
@patootie (3592)
•
1 Jun 07
Ohh yess .. I recognise just about all of those .. I suppose one of the 'good' things about having fibro is that we get a variety of symptoms each day .. somrtimes changing from morning to afternoon even ..
Honestly I never know what symptom awaits me when I wake up each day .. sometimes I get a 'nice' surprise and it's one of the 'funnier' symptoms like clumsiness for the day .. or can't get my words out properly .. even my eyes go in and out of focus somedays .. it's all very odd ..
But sometimes it's the crushingly painful symptoms .. nasty things .. go away .. grrrrrr
BUt this symptom I have most days "Fugue"-type states (staring into space before brain can function) .. hahahaha .. ohhh yesss .. been there done that .. over and over ..
There is some very good and helpful info on the http://www.fibrohugs.com/ web site too ...
1 person likes this
@patgalca (18366)
• Orangeville, Ontario
1 Jun 07
Yes, I have been on fibrohugs, but their message boards are so busy I just have to stay away.
Yes, that staring off into space, I didn't know that was a symptom of fibro. I know about lack of concentration but I guess this falls under a different category.
I like being able to say that the brain cells are affected. That explains why I am so up and down and all around. Need to show that one to the old man! LOL!
1 person likes this
@emeraldisle (13139)
• United States
3 Jun 07
I didn't know that was a symptom either. I too have it more often then I'd like to admit. I wasn't sure what was causing it. I'll be here and stare at the screen and the brain just doesn't want to function at all.
@emeraldisle (13139)
• United States
3 Jun 07
Thank you for the link and the information. I have not been "officially" diagonosed with it but every doctor keeps looking at my file and asking me if I have been. Go figure. My GP said I had to go to a specialist to be diagnosed and for that I have to wait for medicaid to kick in, if it does. Finding out more information before hand though helps and also knowing that some of my problems are related to it makes it easier. So thank you.
@patgalca (18366)
• Orangeville, Ontario
3 Jun 07
I am sorry that you appear to be acquiring this illness, but I am glad I could be of help. I have learned to manage my illness, know my limitations, know to pace myself, but that doesn't mean I don't still have bad times (flares) because I do. And some of those symptoms don't ever go away. I feel at this point my mission is to help other people with fibromyalgia so that is what I am doing. I will post more information on here as I receive it. Take care!
1 person likes this
@emeraldisle (13139)
• United States
3 Jun 07
Thanks. I do believe that knowledge helps a lot. It does help to know I'm not alone in this. When I find out that one of the symptoms I'm dealing with is actually part of that I feel relieved, at least I know I'm not imagining it or making mountains out of mole hills or just crazy.
I'm learning to function but with all my other problems it doesn't help. I have spinal stenosis, degenerative disc and joint disease, along with compression of the upper back and straightening of the lumbar. Makes life very interesting at times.
Thank you again for the good thoughts and the good wishes. Hopefully things will get better soon. If I get medicaid I can get into a doctor and then perhaps get things to assist in it.
@Woodpigeon (3710)
• Ireland
2 Jun 07
My older sister has fibro, so I will take a look at this and pass it on to her. I hate seeing her suffer, and the older it gets the worse it seems to be getting, especially as her other health problems kick in. Thanks for the information because I am always on the lookout for things to pass on.
@dania13 (96)
• Canada
4 Jun 07
Hi Pat!
Thanks a lot! Hugs to all Fibro-Friends on MyLot.com
Dania amiga
