I just wanted them to see if her hand was broken!!
By TriciaW
@TriciaW (2441)
United States
June 28, 2007 6:20pm CST
The littlest one slammed her fingers in the door at a friends today. Her little finger swelled pretty bad and was bruised instantly. Since she has low bone density I took her to the clinic for them to take a look at it. I just wanted to know if it was broken. Well a new doctor saw her and well here we go again. It seems like everytime we go to a new doctor they want to find her syndrome and cure her. Well there is no cure for dwarfism or the other things she has and we are ok not knowing what syndrome she has. When we got back from taking Xrays he had printed out a list of specialist he wanted us to see. I had to explain to him that I would think about it but we had been to Mayo and we know she has some sort of syndrome but she doesn't fall into just one and we are ok with that. He looked so sad*L* Then it was oh by the way it isn't broken. Is it wrong for us just to be ok with knowing she is special and not have a name for it? She is going to be 13 in August so we have lived with it for 13 years.
4 people like this
11 responses
@paruparo (8)
• Philippines
29 Jun 07
Well, if I understand you correctly, my comment with that is if you are so sure that there is nothing wrong with her hand, then a simple home therapy would be fine. I mean my baby's head was bump one time when he slipped on the floor. His head was swollen but I didn't take him to the doctor immediately. I just put some ice on it and the next day, its gone. Moms are especially sensitive when it comes to there children. They would know if it will be well or not. So trust your instinct. If within 24 hours it won't work, then the doctor will be glad to assist you with your concern. :)
1 person likes this
@TriciaW (2441)
• United States
29 Jun 07
The reason I took her in is that her bones are not as stong as other children so if I am unsure of a break I take her in. When she first walked she took 4 steps and fell down. She broke her arm. That was when we found out about her bone problem. What I was talking about already knowing is what she has and what to do with her special needs.
@smacksman (6053)
•
29 Jun 07
Now's your chance to go down in History! Call it the TriciaW Syndrone!! haha The medics feel cheated if they can't give a name to something!
Seriously though, poor girl. Trapped fingers as so easy to do and soooo sore. Give the sore one a kiss from Uncle Smacksman and then it will get better.
@deebomb (15304)
• United States
29 Jun 07
I can think of one advantage of knowing what sort of syndrome your daughter has. That would be being alerted to any new treatment that might come out that would help her or you to cope with any future problems that might arise with her syndrome. But if you and she are doing ok as of right now I would do as you are.
1 person likes this
@Kowgirl (3490)
• United States
29 Jun 07
Well I my self would not be ok not knowing what syndrome she has.
I know it is hard when you live with a special needs child and after 13 years you get tired of all the test and questions. But I would be the one doing the questioning not the doctors. I would be looking for answers anywhere and always.. It's hard for me to accept the fact that you are willing to just live with it and not want to know.
There may be something you could do about the other syndromes if you knew what they were. I know you would have rather had the doctor check her hand and ignore the rest but as a doctor he is obligated to do all he can for a patient. You should be grateful he took an interest in her well being. Too many doctors now days do not do that.
1 person likes this
@castleghost (1304)
• United States
29 Jun 07
One of my families favorite shows to watch is " Little People, Big World" I think that is the name. Anyway, Amy the mom explained that there are several different types of dwarfism and that each one can have its own problems. I assume that it would be a good idea to know which one your daughter is so that you can watch to catch the symptoms sooner. It really is your choice though on how you want to handle it. If you and your daughter don't care to know then I think that the doctor should respect your decision.
1 person likes this
@Thoroughrob (11742)
• United States
29 Jun 07
If you are happy without putting her through a lot of tests, they should leave you alone. Sometimes it seems that they try to be too helpful. I find that with my son. He has CP and they all try to send me to the specialists they know. I know they feel they are being helpful, but we already see enough and are happy with what they are doing. My son is 12. They seem to forget exactly what you came to see them for when they see a special needs child. Maybe it is more to find out if they are getting the help they need. I don't know.
1 person likes this
@beutfulmama6701 (1718)
• United States
29 Jun 07
Im sorry that this happens everytime you have a new doctor. ive had some expiernces with new doctors as well, they think tha they are newer out of medical school etc etc that they know more or that there thoughts are sharper. Its wrong that they cant just focus at the one situation at hand that you went in for. I am glad to hear that her hand wasnt broken thats good news. Well take care and gld bless
@ivyoon (673)
• United States
29 Jun 07
It never ceases to amaze me the extent doctors will go to to give a referral. I just read in a book that doctors actually have a stake in the companies (ie. specialists and pharmacies, labs, etc.) that they refer you to and get a nice kick-back when they do. I'm sure that if your daughter is healthy, then whatever syndrome she may have is not having a negative impact on her health. The fact that doctors always "need to know" just leads me to believe that they do have another reason for trying to send you somewhere else.
As long as you and your family are okay with not knowing... why put her through the stress of unnecessary testing just to put a label on her? Why must people always have a label?
I say, good for you. Hang in there and try to keep in mind that doctors often don't think like real human beings. I think it's something they learn in med school. LoL.
@jenius (131)
• United States
29 Jun 07
If knowing the name meant some kind of viable treatment I could see the value in that. If not and you are content and don't want to put your child through testing etc ...there is nothing wrong with that. It sounds like she has great parents :)
