How to get diagnoised...

United States
July 3, 2007 8:05pm CST
I am pretty sure this is what I am suffering from. My doctors (I have been to more than a few)have tested me for heart problems, lupus, RA, MS, and are treating me for depression. Some say it is all in my head, others do not believe FM exists. Can anyone give me advice on how they were able to get a doctor that believed in them?
3 responses
• United States
4 Jul 07
Due to lack of health insurance and money, I am unable to get formally diagnosed with FMS and CFS - to get the appropriate testing done. However, about 6-10 years ago, when I was going to various doctors for odds n ends, I was told by all of them that I had FMS and CFS - both of which were extremely mild compared to how I have progressed since. And I know I'm still "mild" compared to others I know on fibro boards. You've been given excellent suggestions on where to start. I would also suggest, in addition to the fine group of folks here who have these two syndromes, to also join a fibro message board or two. Where I live in North Carolina, there is nearly no FMS/CFS friendly doctors of any variety. I think the closest one is nearly 2 hours ago. I have a car that is barely running, so long distance driving is out of the question. So, I continue to suffer with no medicine or money for alternative treatment/relief. Thankfully, I am in a position where I can work from home, as hubby is the breadwinner of the family. Sibiology (love the nick btw), if you have done the research and believe you do suffer from FMS, then know you are not alone! We're here for ya! Vent if need be - we totally know what you are going through. HUGS (gently, don't want to hurt those tender points *winks*)
• United States
4 Jul 07
I appreciate your support. My nickname is my job - I am a supplemental instruction leader at Kingwood College for freshman biology. Basically I am an in the class room tutor :). Which is easy. I sit a lot (which leads to hip pain). But it isn't that laborious. I too am without insurance and money - so going from doctor to doctor has been a strain. I am researching doctors as we speak. Thanks again! Hope to talk to you again.
• United States
4 Jul 07
I hear this so often and it makes me so angry. It seems like just because they can't find a reason for your illness then you must not be sick. When in reality it's their lack of education. I was one of the lucky ones. The very first doctor I went to see believed me. After many tests and finding no other reasons for my symptoms, plus meeting the critera for classic FM symptoms I was diagnosed. Here are some good sites for info on Fibromyalgia. http://www.mayoclinic.com/health/fibromyalgia/DS00079/DSECTION=1 http://www.niams.nih.gov/hi/topics/fibromyalgia/fibrofs.htm#fib_i Before finding another doctor I would call their office first and ask if the doctor treats patients with Fibromyalgia. It'll save a lot of gas and fruitless office visits. Best of luck to you!
• United States
4 Jul 07
Thank you for the websites! I will check them out right now!
@patgalca (18393)
• Orangeville, Ontario
4 Jul 07
I am sorry you are going through such a struggle. You need a rheumatologist to give a proper FM diagnosis. If you are having trouble finding a doctor that knows the illness then contact FibroBetsy at kindness@fibrobetsy.com. She has a very large list of doctors referred to her by patients, not by other doctors. Email her and tell her the area you live in and she will put together a package of doctors in your area that are fibro-friendly. Good luck!
• United States
4 Jul 07
Thank you! I will do that. More than one of my doctors think that FM doesn't exist. The last one told me that she believes it is a diagnosis they give when they can't figure out what is wrong with you. I just want to know that I am not crazy! Thank you again.