Autism Community?

United States
September 7, 2007 7:07am CST
I am a mother of two boys, one being severely autistic. I can't count how many times I have heard the phrase "autism community" and just want to laugh, or sometimes even cry. Needless to say, parenting a special needs child can make it difficult to maintain active friendships with those whose children are "typical." One would think it would be easier to strike up friendships with those who can relate. However, I have come to the conclusion that there isn't much sense of community when it comes to parenting a child with autism. The competition amongst parents may be unspoken, but nevertheless, it is real. Conversations tend to revolve around comparisons about what your child is doing/saying now vs. theirs. Even worse, some parents are so adamant about what treatments and therapies are most effective that they tout them as being absolutely necessary. If you make the mistake of disagreeing...watch out! Basically, my perception now is that this is a community divided. There are no absolutes here because autism presents in so many unique ways, and no two children respond quite the same. Parents should come together to share the joys, heartaches, and advice. Let us remember to respect one another and the choices we make for our own children. By doing this, maybe we will one day be a community.
3 people like this
3 responses
@gwendovere (1279)
• United States
22 Oct 07
I agree with what you're saying. Parents should never compare what their kids are doing. It shouldn't be a competition! Every child is unique & should be treated with the utmost respect & kindness. My son has Asperger's syndrome & I am almost inclined to think I have something like it. At any rate, he & I both have trouble connecting with other people & it is difficult for us to make & keep friends.
@tiku1977 (664)
• United States
7 Sep 07
Even my nephew has 'Autism'. But he has improved a lot after treatment. We have kept him under training for 6 months. Now he has started speaking few words also.
@lightningMD (5931)
• United States
7 Sep 07
You are so right. It shouldnt be a competition. My grandson is Autistic. He is doing great. He has shown so much improvement in just the last three months that it is amazing. He has a great school and he loves going there. Good luck on your journey. God doesnt give us more than we can handle. He gave you this special child because he knew you were the best parent for him.