Autism
By applsofgld
@applsofgld (2506)
United States
October 4, 2007 6:54pm CST
I have a nephew that is about 3 yrs. old, and he is currently undergoing testing. He does not talk or communicate with others. He is a precious, sweet little guy, but lives in his own world. I thought maybe he was deaf, but they tested him somehow, they put him to sleep and did an MRI also. His mother is now thinking maybe he is autistic, I know very little about this and when I googled it, it was overwhelming at the sites, but really I didn't find what I was looking for. Does anyone here on mylot have any personal information they wouldn't mind sharing with me that maybe would help our family in knowing how to handle this? Any useful sites to check out or really any information at all would be greatly appreciated. I would share this with my sister.
5 people like this
16 responses
@Rozie37 (15499)
• Turkmenistan
5 Oct 07
I am not very familiar with these kind of disorders. But, my best advice to you would be to wait for the diagnosis before doing research. You would not believe all the different diseases I have had in the past 6 months alone from trying to diagnose myself on the internet.
3 people like this
@AmbiePam (93834)
• United States
5 Oct 07
One thing I know that autistic kids do is stack things up, and they often twirl their arms like they are going to take flight. Those are distinctive traits, but although a lot of autistic kids have those symptoms, I wouldn't want to assume either.
3 people like this
@SpitFire179 (2536)
• Canada
5 Oct 07
And Doninos, my sister is amazing with those, and the concentration she has!!!!!!!!! OMG it's insane, and amazing all in one!
2 people like this
@maddysmommy (16230)
• United States
5 Oct 07
Oprah.com had Jim Careys girlfriend (sorry forgot her name) on her show and she has written a book about children with autism. Check out her site and it might give you more information.
3 people like this
@heavenschild (4777)
• Canada
9 Oct 07
Her name is Jenny McCarthy and she was also on Larry King Live.
Her son is five and has Autism....It looks like a good book and I am seriously thinking of buying it myself! She also had an article in October's issue of PEOPLE Magazine!
She is a huge advocate for Autism. Well worth looking into to read these articles! :)
1 person likes this
@SpitFire179 (2536)
• Canada
5 Oct 07
my brother (the one born right after me) was deprived of oxygen at birth, and they didn't think it caused any problems, he didn't say 1 word, not ONE until he was about 6 years old, and then it took him about 3-4 years to actually put sentences together and such. now my brother doesn't have autism or anything else like that, but is just a slow learner, some kids don't progress at normal speeds, take longer and such, i wouldn't worry about it if they don't find anything in these tests, it may take him some time but if they continue to do things like naming off the foods as they give him to them, colors, crayons, toys, take him for walks and name stuff off to him and what not, it should help him to talk, if he is autistic, autism is really not that bad, they are very happy people.
My baby sister who has downs syndrome is also autistic, she talks but only says words of her favorite things, and swear words of course, she's 12 years old, but the later development is also caused by the downs.
She's happy and smart as hell, and knows what she wants, she'll do anything to get it. the only thing you have to watch for with autistic children is their strength, when they get mad they can get up to 2 times as strong as an adult, but otherwise, a little longer to learn, they learn in a different way, and their just sooo happy, if i could be as happy as Alyssa is all the time, i would never care about anything!!!
2 people like this
@SpitFire179 (2536)
• Canada
5 Oct 07
They are just the most precious children in the world aren't they.
Alyssa does get pretty upset when she doesn't get her way or when she can't make something work, though she is sooo smart, she can do anything with anything.
in some ways, i wish we could all be autistic though, so we would never have to go through all of the trivial pain that we endure.
2 people like this
@heavenschild (4777)
• Canada
9 Oct 07
They certainly do see the world through different eyes! :)
1 person likes this
@heavenschild (4777)
• Canada
5 Oct 07
Wow!! You have described my autistic four year old to a tee SpitFire179. They truly are happy (All the time except when hurt or frustrated) and know what they want and very smart as well as physical strength.....Oh yes that's my boy! :)
2 people like this
@Grandmaof2 (7579)
• Canada
5 Oct 07
I will have to PM you back on this after I talk to my daughter to get the name of what my grandson was diagnosed with having. We went through the same darn thing with him. He talked a blue streak and no one could understand a word of it. Ba meant milk and I can't even think of any others right now, but they had him to the city and he had the MRI and he also had a seizure and we all thought the worse. He had a hearing test too. To make a long story short he was speach delayed real bad and it cost the kids a lot of money but they had to get speach therapy. He's now 6 and a real chatter box. Talks as good as you and has very good voccabulary. Talk to you later. Take Care
2 people like this
@Grandmaof2 (7579)
• Canada
5 Oct 07
OK I got it straight now they thought my grandson had apraxia which is a disorder of the nervous system which can cause your lips and jaw to not work properly, although our boy wasn't positively diagnosed it was thought to be the problem. It was also mentioned it "Could be autecism", much as I know you dread the whole MRI thing I'd say it is what it'll take to make you feel good about knowing if there is any brain disorders. I hated to see our boy be put to sleep but in order to do the MRI you need to remain very still and good luck when you're dealing with a 3 year old. Good luck and keep me informed. Take Care
2 people like this
@mamasan34 (6518)
• United States
5 Oct 07
http://www.neurologychannel.com/autism/symptoms.shtml
This site was very informative and easy to read and understand. From my experience with kids with autism, it is not uncommon that they appear to be deaf and they are unresponsive to the outside world. But check this site out and see if he meets anymore of the criteria. It is worth getting the testing done.
2 people like this
@heavenschild (4777)
• Canada
5 Oct 07
So true mamsan because if it is Autism the earlier the diagnosis the better for the child as treatment can be started! Certainly what you have listed here are traits of autism along with linning up objects, stacking them or repetitive movement play (My son would open and close the little people barn door for hours or roll a car back and forth while laying on his side...In fact he would lay on his side to play with everything!! )...Arm or hand flapping, rocking, spinning, etc.
3 people like this
@mamasan34 (6518)
• United States
5 Oct 07
My friend from church, her son is autistic, although he is quite a bit older, she has gone through all of this. It is imperative to get the testing done as soon as you even suspect it could be autism. Your right heavenschild! They do make repetitive movements for long periods of time, lost in their little world, just to be content doing that. I find this to be very interesting, the human body is so vast and mysterious.
2 people like this
@fineartist (1217)
• United States
5 Oct 07
Hello,
I did a search on an excellent and extremely reputable website called:
www.medlineplus.gov
and I found a great deal of information about it autism.
I am not able to post any links on mylot yet.
If you send me a private message I will be happy to provide you with a link to accurate info about autism.
:)
@GardenGerty (160936)
• United States
5 Oct 07
I work with autistic people, both young and old, and some that have a form called Asbergers' syndrome. Quoting the materials I have received in some of my classes, I would tell you that Autism is a communications disorder. Failure to talk, respond, make eye contact. A person can be autistic and mentally retarded, and they can be autistic and gifted. It runs the gamut of intelligences. Early screening and diagnosis will help get the little boy the help he needs soonest. They are on the right track. Structure is important for these children, and learning what they need to cope, and communicate. Good luck, I hope you get lots of helpful information. I have run into lots of families with autistic members on myLot.
@Cajunhellcat (2073)
• United States
5 Oct 07
Sorry but I have no ideal about it wish I could help ya
2 people like this
@Debs_place (10520)
• United States
5 Oct 07
I work in a center for Autism, and before you jump to conclusions, wait until you get a diagnosis.
It is important to consider the whole name for Autism - Autism Spectrum Disorder. Autism does not have a single set of symptoms. I have read articles that said that Bill Gates had Asperger's syndrome (High functioning Autism), as well as Einstein. The person who won the nobel prize for economics this year said they could not have done it if they were not autistic.
Autism is the fastest growing disability in America today with 1 of every 150 babies being born affected by it.
With any learning problem, early intervention is key.
Here is the one site that I Subscribe to..as you know there are many.
http://www.autism-society.org/site/PageServer?pagename=homepage&autologin=true
No one really understands Autism as this point, but things are sure better then they used to be.
2 people like this
@heavenschild (4777)
• Canada
5 Oct 07
Hi applesofgld,
My son had his hearing tested and he also was put to sleep and had an MRI done. At the age of 2 1/2 he was diagnosed as severely autistic. I agree that there are an overwhelming number of websites out there and it is very daunting to research at times...
The key is to get diagnosed as young as possible and then to begin as aggressive a treatment as you can as quickly as you can!
I recommend IBI therapy as many hours a week as you can afford! This is very expensive but very much worth it. Also, if the "More Than Words" Program is available where you are it is also a valuable tool!
I am still researching the Gluten Free Cassien Free diet and am seriously considering starting him on this. It is apparently beneficial to those especially with bowel problems which my son gets frequent diarhea!
I also have a couple web addresses with Jenny McCarthy whose son is autistic if you are interested...I found them quite informative and my son was diagnosed almost two years ago....
I took also took several avenues in order to find help with the funding for my son's treatment over the last year...If you wish to send me a PM I would be willing to answere any questions you may have to the best of my ability!
It's along hard road and it's life long but we are so proud of our son as he has come so far and he is progressing all the time.
Feel free to ask me anything... I am willing to share and help in any way I can!
Take Care My Friend!
xxx
2 people like this
@wiccania (3360)
• United States
5 Oct 07
The Autism Speaks website has a page with signs of Autism listed here: http://www.autismspeaks.org/whatisit/learnsigns.php Check it out. Of course, having a bunch of the signs might not necessarily mean Autism, and not showing a lot of signs might not mean that he doesn't have Autism. It'll be up to the doctor to do the complete assessment.
2 people like this
@topei12 (272)
• Philippines
6 Oct 07
Maybe autism would appear to be a disorder, but there are positive characteristics of an autistic child that we should focus into. They are sweet and lovable but sometimes get irritating. Respond to their good side. Then they will know you're always there for them more than the medicines that he would take. Pray for patience.
@AmbiePam (93834)
• United States
5 Oct 07
I'm not at all familiar with the ins and outs of autism. But in People magazine a few weeks ago, Jenny McCarthy was featured in an article about her autistic son. She was told if she acted before he was five, there could be a huge difference in what his life will and could be like. There was a special diet along with some therapy. I don't know if I still have that magazine, but it was amazing what a difference it made. Her son finally told her he loved her, and he started interacting with people. Holly Robinson Peete had used this method for her autistic son, and had passed in on to Jenny. I know part of the diet was gluten free, but there was more to it. It's really encouraging, and those methods just may work for your nephew. At least I hope they can. : )
@listmaomao (6)
• China
5 Oct 07
in my opinion, I think it is right to have some enough tests for the actual diagnosis, at the same time it is better to read some books about the methods to get over autism or other related problems.
God bless your nephew!
2 people like this