Snake Oil Salesmen & Doctors In Denial - How do we fight back?

You can magnetize the mangosteen and it still wouldn't help. I was in USA Today twice in reference to arthritis and I couldn't even believe that a pitch came in the mail to buy mangosteen, and they thoughtfully included one of the articles cut out from the paper. Jeez. Anyway, I suggest trying a pain management specialist who does treat Fibro. The definition of a syndrome is 'a collection of symptoms that are expected to occur together'. If that doc doesn't believe in syndromes then a LOT of his patients are in trouble. What do you do about it? Change docs fast. If you can't get a pain management specialist (not one of the physical therapy kind -- they don't believe FM is real, either -- you need the anesthesiologist kind) then try an all out search for a neurologiat who treats FM. FM is primarily a neurological dysfunction with a hypersensitivity to pain signals being the primary symtom. You need help in turning the pain signals down to a manageable level, especially during flares. All of us have an overabundance of Substance P and we also all don't get enough restorative sleep due to our syndrome, as well. Now that it is known what FM is there isn't an excuse for not treating it, except for denial or willful ignorance.

i dont take medicins or supplements my whole family thinks i am lazy,and i am a hypochonder. my doctor thinks it is real but most people dont sad,but true

Fibromyalgia is an immune disorder as well as a neurological one. Any doctor who DOES believe in it will tell you this. The first doctor that diagnosed me said, "Exercise and in 6 months you will be better." Imagine how my husband felt thinking there was a light at the end of the tunnel. That was 11 years ago! Granted, exercise does help. It keeps your weight down, gets the blood pumping, helps your mood as it releases those "happy" chemicals from the brain, and keeps your muscles from atrophying. As for diet, I think that hits more for the IBS end of the illness. Of course the stomach is a second brain which also releases chemicals. So certain foods can affect that. However, I find that different foods affect different people differently. Everyone is different. No two people are alike and what works for one person may not necessarily work for another. I have found relief since I lost weight. I have also found relief since taking Mag-Citrate (magnesium and malic acid). Those with fibromyalgia are severely lacking in magnesium which aids in over 300 bodily functions. This supplement is a MUST. I hate going into the health food store and having them point me in the direction of this fibromyalgia kit that costs $50 for one month's supply. That is ridiculous. This stuff isn't covered under insurance and I can't work so how am I supposed to be able to afford this crap that probably doesn't work to begin with? Find a fibro-friendly doctor. If you want to find one in your area you can contact Fibro Betsy. She keeps a list of doctors who are recommended by patients ONLY, not other doctors. She can be reached at kindness@fibrobetsy.com. This email address is common knowledge so I am not giving out personal information. She will give you a packet with information for good doctors in your area. Magnets didn't help me, nor any of the other stuff. Heated bean bags are the best source of relief for me.

you like me suffer from a medical problem that can not be seen and there for is open to all sorts of interpretations. I have vascular dementia, for lack of a better word as my doctors can not explain what exactly is wrong with me other than every test indicates I have a cognative/ comprehension/behavioral problem and when given medication I am as normal as any one can be, but mri's ex rays and all sorts of test can not show exactly what it is. I was very luck as my doctor has seen me at my worst and under medication and knows there is something wrong and was able to convince disability that I am unable to work. As for being on the government hand out my pension is very small and most people can not see how I survive on it, I can because I must is the only answer I can give. It is a difficult thing to live with because unless there are broken bones or blood then you are faking it. and that is how most of the world sees us

I watched a dieting program recently where the woman trying to lose weight had fibromyalgia and the guy showing her how to excersise and keep fit etc did not believe in it either. She was really upset about that but he said diet and excersise was the best thing for her, it seems that is what her doctor had told her would help also, by the end of the show she had lost a lot of weight and become much, much fitter throught the excersise and was loads better. She had also changed her diet and ate healthy not junk food which helped also.