My Child has Aspergers Syndrome, Does Yours?
By gettinggreen
@gettinggreen (125)
United States
January 2, 2008 5:00pm CST
Have you heard of it, Aspergers that is? Well, it is a neurological disorder that is on the autism spectrum. The high end of the spectrum I'm told. My child can talk and interact with others unlike most autistic children. She is in a regular, mainstream kindergarten classroom thankfully and up until December 7th we didn't really experience many issues at school. On the 7th, lined paper was introduced into the class. This incident has created extreme anxiety and now we have to find a way to help her through it. We have to find a way to get her to write on the lined paper without anxiety so there are not meltdowns in the classroom. I went to the Special Day Class teacher who is supposed to be a autism specialist. I wanted suggestions from her and she came up with NOTHING! She asked what works at home. What? We don't have this issue at home. Can anyone out there help me with tactics that you've used yourself?
2 people like this
8 responses
@tcolwell (138)
•
3 Jan 08
HI, I use to teach Special Education before deciding to stay home with my kids. So first of all, I applaud you for being in involved with your child's needs. You'd be amazed at how many parents don't. I'm shocked that the autism specialist didn't have any suggestions. I think the lined paper must be pretty overwhelming for her, concidering the fAct that those on the spectrum do not like change. It needs to be introduced gradually. Take the lined paper, white out all lines except one at the bottom and then make photocopies, using a color copier of course if the school is using colored lined paper. Have her use that paper for a while. After a few weeks, add the next line. If the 2nd line is too much go back to the one and then add half or even less of the next line. It sounds silly, but I've used this process of gradual change to get children on the spectrum to do many things. Do a search for systematic desensitization. Also, it may just be the colors on the page that she doesn't like. Try black and white. Make sure that she is not being penalized for not using the paper that they want her to use. If this isn't listed in her modifications already, have them add it at the next ARD. Let me know if I can be of help in anyway.
@gettinggreen (125)
• United States
3 Jan 08
Wow! Thanks. I'm definitely going to try the gradual introduction. We knew that she needed warning, but we didn't think about it being a gradual transition. We just thought by telling her it was coming was enough. I'm going to try just what you said. The teacher is willing to help us with it too, so I'll send copies of the paper with her to school. This helped tremendously.
@spiderlizard22 (3444)
• United States
2 Jan 08
Try putting two rulers on the paper. Have her write between the rulers so she can write straight. That is just an idea. I heard it is rare for a girl to have autuism.
1 person likes this
@gettinggreen (125)
• United States
3 Jan 08
I have been told as well that it is rare for a girl to have autism. Thanks for your suggestion.
@Phaedra_Scythe (3325)
•
2 Jan 08
I'm sorry if this isn't helpful, as I am not a mother myself and have no experience, but today I read a book review article in my Psychologies magazine in which several mothers with children with Autism or Aspergers recommended the book, "The Curious Incident of the Dog in Night-Time" by Mark Haddon. Apparently it's very helpful for understanding how life is for a child with the condition and how they think.
@gettinggreen (125)
• United States
2 Jan 08
Thank you so much. Anything is helpful at this point. I appreciate it.
@hugs78 (9)
• United States
3 Jan 08
as a mother of a daughter who is P.D.D.N.O.S., (pervasive developmental disorder not otherwise specified). which is in the autism spectrum, i can tell you this. you are battleing an uphill battle all the way when it comes to the school system. they are required by law to meet any and all of her special needs. including therepy needs at school. if they cant, then it is their responsibility to transport her to another school that can benefit her as well as pay any and all costs for her schooling. with that being said, ask for an occupational therepist. if they try to tell you no, tell them yo want an I.E.P. done (individualized education plan). the occupational tehrepist will meet with her so many days a week, depending on her need, and work with her one on one in areas of need. you can also request a para. thats someone who will help her one on one in the classroom itself. another thing that worked for my daughter, treats! treats are always a great incentive when it comes to children like ours. i know my daughter has her days when she wont work for any, but the days where she does outnumber the ones she doesnt. marshmellows and skittles are easy and not so messy. if she does one letter...one treat. so on and so forth. i hope this helps.
@gettinggreen (125)
• United States
3 Jan 08
It is great to hear from someone who is battling the same issues. You gave me great advice that I need to put to use. She worked when an occupational therapist before when she would refuse to color in pre-school. It seems that she needs one again.
Thanks,
@Momma_B (51)
• United States
6 Dec 08
Interesting that you would bring up the issues of lined paper. I am quite interested in hearing some helpful tips with this. My daughter was not diagnosed until she was 9 with her Aspergers but sure does explain alot of things! Right now we are also dealing with the lined paper issue. We are at the point that she will not write in the lines she writes on like 3 or 4 lines at a time. Sighh! It is definitely a battle and oh boy don't get me started on the school system! I was told by the school counselor that the reason my daughter has social issues is because I am not involved with activities. Well HELLO! I am busy at home taking care of my daughter! Anyways. I am sorry I can not really help you with the lines issues as we are dealing with that now, but I can tell you that you are not alone!
((HUGS))
Momma B
@gettinggreen (125)
• United States
8 Dec 08
Hi Momma B,
We have been able to overcome the lined paper issue. Luckily her teacher decided what is important is that she does the work not what paper it is on. We took our time getting her used to it. Her anxiety came from not being able to make it look right on the paper. Right to her was how her teacher made it look. We finally got through to her that a 5 year old just learning to write isn't going to be able to make it look just like her teachers. I remind her of this still when she gets mad about how something turns out. I find that it isn't her trying to be stubborn or difficult it is just her anxiety that takes over and this usually comes from her wanting it to look right.
Anyway, as far as your daughter, hopefully you have understanding teachers to work with her. Maybe set a goal together that says this week we can use 4 lines, next week 3 and then 2 and then 1. Maybe if she isn't rushed into it, it will help keep her from resisting. Also, remind her that it doesn't have to look perfect. Don't stress over the neatness. Allow her to just do it as she does. It is quite frustrating as a parent/teacher, but I think it is best to accomodate the aspie rather than having her accomadate you or her teacher. I am learning that parenting an aspie requires a great amount of compromise on everyone's part.
Another thing that the school should be able to offer you is O.T Therapy. They can have an occupational therapist come to her once a week or more often if necessary to help work her through this issue. Fine motor skills are tough for a person with Aspergers and the Therapist should be able to help your daughter through this.
Baby steps each and every day! Good luck. I'm sorry I don't have a magical answer. I'm learning as I go too!
1 person likes this
@ronaldinu (12422)
• Malta
11 Sep 08
Join the club. My son has Asperger's too. His handwriting is horrible and it seems a common thing with children suffering with Aspergers.
Is there a remedial teacher which can give you a helping hand how to deal with your daughter?
Try to make a clear set of rules regarding school work. One rule at a time. You have to be patient but firm with these type of kids. Aspergers children can be helped to lead a normal life
@sweetgirl_k1 (3972)
• United States
2 Jan 08
I'm sorry the teacher couldn't give you any suggestions. I'm not real familiar with that but I know a lady whose son was just diagnosed with it. I hope you can find something that works so your daughter won't have meltdowns because of it.