Pain management.
By Deea48
@Deea48 (1166)
United States
March 4, 2008 10:43pm CST
I have a question, my daughter has endomeatriosus(sp)
She has a rather sever case of this, and is in pain a great deal of the time, I do not doubt her pain, because I can see it in her face. At any rate, her condition started to progress last year, she has in one year had 3 different surgery's. This has been very difficult for her and her new hubby. So for a year she has been on two very strong drugs, and I fear is becoming too dependent on them. During this year she has also lost 2 jobs. Her pain keeps her from work. The 2 drugs that I am so concerned about are Oxicotan, and Percaset. She takes both. Does anyone know of a more hoalistic approach we can use to help with her pain. So she can discontinue the strong drugs she is on now. She has an addiction to the Oxi and I am sure to the Percaset as well.But her pain is to great to not have something to keep it at bay. I need some help on this, I want to do the right things and get her back on track. I truely feel all these drugs are harming her. I go next week to see her doctor with her. I am planning on talkng to him as well, about some different options for pain control. So if you have delt with this condition and have any info I would greatly appreciate it.
5 responses
@Polly1 (12645)
• United States
5 Mar 08
First off I am so sorry for your daughters pain. My husband had cronic pain, so I do know how it is to love someone in pain and wanting to help them. Your daughter has several options. It is true the medicine is addicting, but so what at this point. Thats the least of your worries, treating and relieveing the pain is the most important right now. I know that sounds nutty, addiction to medicine is not the worse thing, the pain is. There are pain management clinics that can sometimes help, they do have injections that sometimes helps, you can also get pain patches, that is a narcotic and is addictive too. Studies have shown that people in pain are less likely to become addicted to pain medicine. if you have other medical condition like high blood pressure, you take medicine, so in reality your body becomes addicted to the medicine. Can having surgery take care of teh problem and then that takes care of teh pain. I have also heard that biofeedback or accupuncture can help with pain. you have every right to be concerned that the medicine can be harmful. Both of those medicines are very srong. I wish you all well and mostly for your daughter to find something that works for her.
1 person likes this
@Polly1 (12645)
• United States
6 Mar 08
If she had to have surgery would it be a total hysterectomy? Is it an option for your daughter to save some of her eggs in case of surgery. I forgot to also mention they do have something they can put in your back for pain relief. Its some kind of drip sysytem, but I think they use narcotics for that. I wish your daughter well. I will say a prayer for her. Take care.
1 person likes this
@Deea48 (1166)
• United States
6 Mar 08
Yes Polly if she had the surgery, her problems should be over, although there maybe some scar tissue ect, the pain should get better. It is looking more and more like that is what she will have to do. It is the fact she has not had any babies,that is what is holding things up, they were hoping she would get better after each surgery,she has had several this year, the last one they took one of her ovaries. But instead of gettng better it seems to be getting worse. We have talked about acupuncture, but I would like to learn more about bio-feed back. Thanks for your idea's Polly and your well wishes as well.
@Deea48 (1166)
• United States
12 Mar 08
Until we know what kind of shape her overie and uterouse is in she can not make a for sure desision, but she is thinking the full hysto maybe her only option to live mostly pain free. Even then the endo can show up later if they do not catch all of it.
This is a very scary desease for alot of women, they should be doing more research on it.
@ubuntujason (196)
• United States
5 Mar 08
hiya~
i live with chronic pain too (not the same condition though) statisically, people who have to take pain med's due to real pain, are less likely to become 'addicted' to them and less likely to 'abuse' them! (i quote that in hopes of putting your heart at ease some)
while i don't know anything about your daughters condtion...i can speak in general terms about chronic pain.
1. encourage her to relax in any way(s) she can, be it meditation, a hot tub or bath, reading or what ever.
2. i use tigerbalm, its an over the counter pain cream...it has a lot of menthol and camphor which combined work on the pain in an amazing way (if u can't find tigerbalm, try to get something with both ingredients as its stronger and more effective!)
3. massages may help
4. i also use a TENS machine, they require a perscription so talk to the dr abou t it
5. encourage her not to bottle emotions in, and to try to get conencted to other people who suffer from the same thing (or if that's not possible, try to connect her w/ people who suffer from chronic pain in any form...check my profile for my website [and we have a web forum that may be of some help])
good luck and i hope that helps some!
~j
1 person likes this
@Deea48 (1166)
• United States
5 Mar 08
Thanks you so much, I will recommend the Tiger Balm, and when I go with her next week I will ask her Doc about the Tens machine. I will also go have a look at your web. site. This is what I was looking for more options for pain relief. Again thank you so much.
@cher913 (25782)
• Canada
5 Mar 08
i will be going to see a doctor at an actual pain management centre sometime soon. i am constant major pain with my knees (i have no cartlidge in them and am thinking about gel being injected, but we have no cash to pay for it $400 per knee!@!)
i have missed work because of my knees but i am lucky because i work for a religious organization and they are pretty caring (ie they will drive me to work if the weather is bad)
1 person likes this
@Deea48 (1166)
• United States
5 Mar 08
My daughter as well has not been able to hold a job,the pain always has her missing work, I wish we could find her a job she could do at home. That is what is causing the marraige troubles, they need her income to get by. He does not always believe how bad her pain is. Then they fight. I think if she could find a job , that she could earn a reasonable living at from home would be a good solution for her. That is great you found such a great place to work, you are blessed indeed.
@QueenRainbow2001 (139)
• United States
5 Mar 08
Way back in 1980, I got this disease. Doctors didn't know much about it. After going from 200 pounds down to 97 in less than a year, and looking 2 years pregnant, they gave me an emergency hysterectomy.
These days, doctors call it a common disease for women.
The internet gives us lots of helpful info on this disease today, and in terms we non-doctors can understand. Please see the following link I found for you. It's very informative.
http://www.4woman.gov/faq/endomet.htm?src=ng#j
I sincerely hope this helps you...
1 person likes this
@clarissa1234 (22)
• United States
8 Mar 08
Hi Deea, sorry I'm late. You have received alot of responses and from my on scann "A Second Opinion" is needed. Once you've dealt with pain management issue I'd highly recommend a Fertility Specialist. Most the women I know who have gone threw this have hysterictmys and not having children before it can be another struggle by itself.
@Deea48 (1166)
• United States
9 Mar 08
Well I go with her this week to the doctors, so I will know much more then, we are working on getting her off the pain meds right now while she is with me.
We have talked about invetro fertilization, where they harvest her eggs and inplant them in her uterous.But I really do not know much about that, and we also found a supplement on the net, it is suppose to help as well. It is hard for sure, I just want to see her settled again, have her life back and out of pain. Thanks Clarissa, I am so glad you made it here finaly.
