my daughter was diagnosed with mpgn

wow i didnt know about that i guess i need to talk to the dr about that thanks

This is a great idea...I had it at my work place also..I totally forgot about this one...

Hiya this might be a little long so bare with me. I didnt have any sickness as they have caught mine relatively early, the only reason they knew anything was wrong was when I went to my first check up at 6 weeks pregnant and they realised I was losing protien in my urine. Having suffered with pre eclampsia last time this was their first but quick and thrown away thought. I had a million blood tests which showed nothing and this is when they mentioned the inflamed kidneys but said to me I would only know with a biopsy which I refused while pregnant for obvious reasons. We were told at 8 weeks we might lose our baby and it sort of continued that way with me having contant checkups and they eventually induced her. After she was born it was more blood tests and such like with a renal consultant but because I was suffering with severe sciatica and couldnt walk most days they put off my biopsy until my daughter was 9 months old as he didnt think mentally I would cope im glad they waited really. I had the biopsy which I can tell you i would not wish on anyone it was the worst experience ever having it was ok it was afterwards I dont know how your little girl was after but it made me really ill. Thats when we found out what it was although it took 2 months to get the results so I was diagnosed about 16/17 months ago now. I am only blood pressure tablets to help protect my kidneys against further damage I refused steroids as I wasnt happy about taking them for several reasons. So far im doing really well although like I say they have caught it really early and my consultant said this is always a good thing. Things are going so well we are planning another baby in a couple of years which I have to come off my meds for but my consultant said it wont be impossible, he said any problems may occur in the next 20 years or after the worst case scenario meaning a transplant but thats really extreme and the meds they have for it from what ive found so far are really really good, my protien loss is right down to what it was and I can assure you id never think of another baby unless we thought we could get through it with minimum risk. It varies from person to person what has her doctor said what tablets is she taking etc? I really hope things settle down for her if it helps any I recently saw my consultant and apart from upping my medication he was so pleased he only wants to see me once a year, like your little girl though tostart with I was there every couple of weeks especially while pregnant but as I got my diagnosis and medication the time between appointments has got larger so things should improve work wise for you soon so I would definatley see your doctor to see what help they can offer you about work. Sorry its so long but if you have any questions please dont hesitate to ask xxxx