ME/CFS : your thoughts?

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For six years (from the age of 15 until 21) I suffered with a condition called ME (Myalgic Encephalopothy). It is also known as CFS (Chronic Fatigue Syndrome) and PVFS (Post Viral Fatigue Syndrome), although I disagree with using these terms as the name only implys fatigue, whereas many patients suffer many more symptoms. I suffered severe light sensitivity, extreme fatigue (I had no energy to even wash some weeks), noise sensitivity, memory loss, muscle aches and inability to concentrate, to name but a few. Throughout my illness I lost a lot of friends and even family members, who believed the illness was in my head. As there is no blood test for the condition, doctors and specilists were unable to diagnose me for almost 18 months. Anyway, I was wondering if anyone here at Mylot has ever encounted ME, and what your thoughts were? Here are some support sites with further information: www.meassociation.org.uk www.ayme.org.uk www.afme.org.uk Thanks for reading, and have a great day :)