Does anyone out ther know anything about Spasmodic Torticollis?

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I was just wondering if anyone out there participating in MyLot happens to have Spasmodic Torticollis and, if so, how you're dealing with it. I was diagnosed in 1999. According to what I've read, it's supposed to plateau after about five years. Only mine didn't. It seemed to start getting worse again after 2005. The pain is more intense & the pulling is worse. My head now turns further to the left than it did previously. I tried Botox injections in 2004 & 2005. I had 4 sets of injections. The first set didn't seem to do much. The second set helped a little. The third set seemed to make things worse & the fourth set didn't seem to do anything. I finally decided that there was no sense in going through the pain & expense of having the injections if they weren't going to do anything to help with the pulling & pain so I stopped having them. Since I stopped the injections, my main source of relief has come from warm rice socks or heating pads placed at the back of my neck. If you have ST, what do you do to help with pain? Blessings, JoannH