Does anyone have Fibromyalgia?
By NayNay579
@NayNay579 (180)
United States
13 responses
@meshellrose (286)
• United States
11 Nov 06
My mother and a friend of mine have it. They both are on meds, but my friend has 4 children to take care of while she is suffering. My mother said it is genetic and related to Lupis..which my grandfather had. I'm hoping she's wrong, I can hear the pain in her voice when I call her and I do not wish to feel this or have my children suffer from it. I hope you find the answers you are searching for.
1 person likes this
@NayNay579 (180)
• United States
11 Nov 06
I have 3 kids, and the stress can definitely make things harder at times. I'm not sure that any direct link to Lupis has been shown -- other than it being some kind of auto-immune problem. Lupis shows up on tests, fibro does not. Also, other than migraines being in my family, I'm the only one to have these particular symptoms. I haven't heard any hereditary links yet either. So I wouldn't worry yet. There's so much they still do not know about fibromyalgia. Thanks for sharing!!
1 person likes this
@prncesssly (1373)
• United States
11 Nov 06
My best friend has fibromyalgia. What sucks for her is that she has diabetes and other problems too, so when she has a spell, she goes into a lot of pain. She has been seeing a lot of doctors to try to figure out what to take/do to ease the pain. She said that acupuncture helped her!
@NayNay579 (180)
• United States
11 Nov 06
That's great. I really hope she finds relief. Sounds like she's really got it rough.
1 person likes this
@margieanneart (26423)
• United States
11 Nov 06
I have it, and just live with pain.
1 person likes this
@NayNay579 (180)
• United States
11 Nov 06
So sorry to hear that. Getting good sleep is really important. Do you do that? I hope so. Good luck!
1 person likes this
@NayNay579 (180)
• United States
11 Nov 06
That's great! I think I may be finding out that my thyroid deficiencies have more to do with it than I thought too. I've had low thyroid since 1994, but I have found out some new info. that seems to be helping. Plus, sleep is way important!! Have to have some help there. You??
1 person likes this
@speakeasy (4171)
• United States
26 Jan 07
I don't BUT a friend of mine was diagnosed with it. She eliminated all aspartame and MSG (see www.truthinlabeling.org/hiddensources.html for things which contain MSG but are not labeled MSG) from her diet. This really helped her, in less than a month she was almost pain free. These 2 things make fibromyalgia worse and sometimes they are actually the cause of the problem because too much of them can "mimic" the disease and then the person gets misdiagnosed.
1 person likes this
@juls2me2 (2150)
• United States
14 Nov 06
My sister suffers with fibromyalgia. She has linked a lot of her pains to allergies in foods, chemicals, and some other things. She can't have MSG, beef, or any sweeteners or man-made chemicals used in foods. She has basically started eating fruits and veggies and sometimes a little chicken or fish. She has found Sunrider Concentrated Herbal Foods...they're not medicinal at all. They help her get the nourishment her body needs and she isn't suffering anything like she used to. I'm an Independent distributor of Sunrider foods if you'd be intertested in more information, let me know.
@juls2me2 (2150)
• United States
14 Nov 06
My sister suffers with fibromyalgia. She has linked a lot of her pains to allergies in foods, chemicals, and some other things. She can't have MSG, beef, or any sweeteners or man-made chemicals used in foods. She has basically started eating fruits and veggies and sometimes a little chicken or fish. She has found Sunrider Concentrated Herbal Foods...they're not medicinal at all. They help her get the nourishment her body needs and she isn't suffering anything like she used to. I'm an Independent distributor of Sunrider foods if you'd be intertested in more information, let me know.
@MySpot (2600)
• United States
11 Nov 06
....advice on fibromyalgia and sleep.
Pain relief is essential. Understanding what helps you through paintracking allows you to amass strategies to prevent and relieve pain. Heat in various forms soothes aching muscles as does gentle stretching. Earplugs, lightweight but warm clothing (such as silks and polar fleece) and sunglasses can ward off flares from noise, cold drafts, or bright lighting. Meditation, hypnotherapy and self-hypnosis, biofeedback, and diaphragmatic breathing exercises all offer ways to lower the thermostat on pain. For some, massage therapy works wonders. Pain medications help people to feel well enough to do the other things necessary to improve and live a fuller life. Some doctors prescribe pain medications to be taken proactively. The analgesic effects of medications are more effective before pain escalates. Discuss with your doctor short versus longer acting medications. For some, over-the-counter medications may be adequate. For others, stronger medications such as narcotics are needed. Some physicians are reluctant to prescribe narcotics for long-term use, a bias that stems from a fear of addiction. Yet evidence shows that people in pain do not abuse painkillers--we desire to engage in life, not escape it. There is an important distinction between physical dependence and addiction. It is important to keep track of how you take any medication to monitor its effectiveness. Slowly our society is realizing the need for more comprehensive treatments for chronic pain in conditions that are not fatal.
Pacing becomes a very important aspect of living well with fibromyalgia. You may find that taking a break every few hours will allow you to gain a second wind, and maybe even a third or forth. By tracking how you feel and your activity levels, you can learn how to organize your day and weeks to make the most of the energy you have. Creative scheduling can allow people with fibromyalgia to engage in a full life. Knowing when you need to rest and when you can push on make this condition much more manageable.
http://www.medicinenet.com/fibromyalgia/article.htm
http://www.quackwatch.org/03HealthPromotion/fibromyalgia/whatisfms.html
http://www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm
http://www.quackwatch.org/03HealthPromotion/fibromyalgia/whatisfms.html
@NayNay579 (180)
• United States
11 Nov 06
Well, could anyone have explaine that better??? LOLOL
1 person likes this
@beautifulceiling (1300)
• United States
26 Jan 07
Getting divorced did wonders for my symptoms. The stress of being married to that particular person was killing me. Seriously, stress is a huge key. It's hard to reduce it though, I know. If it was easy to reduce stress, we'd probably do it without even being sick!
@drashok (53)
• India
18 Jan 07
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