To anyone with a special needs child

I am severly disabled and sadly I must say it never ends. im 26 years old and people constantly treat me like a lil kid. I wish what I could tell you was possitive. I am from a large family but they arent my "family" my family really is only my mom aunt and grand ma. the rest just.... Best I can say is for you to be supportive of him push him to do the best he can. too many parents shelter their disabled children especially if with "mental delays", although im not sure how sever it is with your son, I do know its part of fragile x syndome though. Thing is many people underestimate many kids with "mental delays" (I hate using the term retarded its very negative), many are much more capable then most think. He may not be able to walk nor talk (btw its common for even "normal" children to not talk yet by then I didnt talk till I was 2), still try to be supportive of the things HE CAN do and push those things for him to explore them further. Please feel free to add me as a friend if you want and to contact me privately if you wish.. I know you requested parents of disabled children but I can give a personal view on alot of things since ive been disabled from birth and seen how it affects others ect. I wish you the best and hope your cute sweet boy is doing well :)

Hi MsAmie! I can understand how you feel about your son. I'm also a mother who have a normal eldest child (daughter), very pretty and smart, she has already started pre- schooling, whilst, my youngest (son), who's also very sweet and lovable indeed though he's still not able to talk until now at the age of 4. I've made this a topic about my son last year, regarding he's condition, and surprisingly I got about 50 responses. Prior to sharing that topic, I really felt sad about how my son's condition seemed to aggravate and the increasing number of people telling me that there might be something wrong about him. Of course, for us parents, it hurts to hear such words from other people even from our own relatives. Nevertheless, I wanted to be brave and strong for him, I sought for some opinions and suggestions from other mylotters who may have the same experience as I am. I truly appreciated those who replied to me. They brought a sense of encouragement and hope for our present condition. Regardless of how others treat your son, shower him the unconditional love of a mother. Explain also to your family your son's condition, he's capabilities despite the disabilities. Share to them your feelings and anxieties regarding your son's condition and how he's going to perceived others treatment of him. Through this they may be able to understand the situation and change their way of treating your son.

Children like you son often develop a wonderful empathy for others because of treatment like this. I don't have a special needs child but I've known a few and their mothers spent time explaining to them that their needs might scare adults. Your son is too young to understand right now but when he is older you might try explaining that people love him but are frightened by his needs and maybe afraid that they'll harm him accidentally. I think you should have a talk with your family members in the meantime. Tell them they are hurting you and your son and that you know they don't mean to. Maybe they don't realize what they're doing to you and to him.

it is said that God gives special children to special people , so feel blessed if you can . i personally have been blessed with normal children , i do have one that has attention span deficit but hes functionable to a large degree , just doesnt concentrate for long , he will never drive a car , work a normal job but hes doing ok . i have a cousin who has 2 downs kids . they are treated differently outside the family but in the inner circle of family and friends no . good luck and feel blessed

child is have lots of privacy