Do You Have A Family Member Or Loved One With A Horrible Disease

United States
February 28, 2009 9:31pm CST
There are so many diseases these days that can be truly horrible. My Mother has Alzheimer's and Parkinson's Diseases. It is like looking at the shell of the person my Mother use to be. She was diagnosed in January of 2004. The doctors put her in a nursing home in June of 2004, because of her diabetes, with having alzheimer's, she would forget to take her insulin, and then double up on it when she remembered. With her living at home yet at that time, her blood sugars were all over the place. Needless to say she has gone steadily down hill since 2004, but is holding her own. After my mother was diagnosed with Alzheimer's, my sister was diagnosed with Lung cancer. She went through surgery and treatments, and after 19 long months she passed away, leaving us in April of 2006. Alzheimer's and Parkinson's are the 2 worse diseases to have together, they have alot of the same symptoms, but, one condition will take over the other, which we believe the Parkinson's is taking over, leaving Mom as a prisoner in her own body. I was just wondering if anyone else has had to deal with diseases in their family or friends, and how they are handling it. Take care and God Bless Hugs MaryLynn
1 person likes this
10 responses
@mimpi1911 (25464)
• India
3 Mar 09
I am so sorry to to know this Mary. Its indeed a matter of great concern and a lot really depends on the caregivers. They have to go through a lot with no light at the end of the tunnel. That worsens it all. Its terrible watching your loved ones suffer day in and day out like that. I appreciate your strength and empathy Mary. Trust me not all can withstand this. My mother was diagnosed with brain tumor and was operated on that. Fortunately that wasn't malignant and even though she has to take medicines life long we are happy with it. My grandma passed away with Uterine cancer a few years back. She was in her senses and o move till the last day and passed away in full consciousness when her heart failed. And recently, one of my uncles passed away of lung cancer after months of suffering. I guess, we have to deal with diseases and things get worse when we do not have any clue to what's happening. Sometimes, we are so helpless!
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@mimpi1911 (25464)
• India
3 Mar 09
Praying is a wonderful thing Mary!
• United States
4 Mar 09
Hi Mim, yes prayer definitely can be a wonderful thing, as well as have a calming affect.
• United States
3 Mar 09
Hi Mim, we definitely feel helpless. All we can do is be there, and also keep them in our prayers and leave the rest up to our creator. Hugs MaryLynn
@hopejordan (3561)
• Australia
1 Mar 09
hi there MaryLynn321 i am one of the family member who has a diease mine is hashimtoes diesase thats my thyroid its under active it makes me tired and makes me gain weight if i did not get it trated i would die in 10 to 15 years or mental insitution its not good but i do have tablets i take and i am glad that they caught it early mine is mild when they caught it take care happy mylotting
1 person likes this
• United States
1 Mar 09
Hi Hopejordan, I am happy that they found your hashimotoes disease early, this gives you a fighting chance. With being on medication, will this help you and the disease. How are you doing? Keep me up to date, and if you ever want to chat, just contact me.
• Australia
1 Mar 09
hi there marylynn i will let you know what else happens to me but i am ok at the moment but i still get tired and under active i got it in 2008 january my msn is stonepaper@msn.com if that helps take care happy myotting
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@grammasnook (1871)
• United States
1 Mar 09
Mary I am so sorry that you have had to experience the losses in your life. Although at the present time I do not have family members that are experiencing the same diseases, I did work with a 68 year old down syndrome which was diagnosed with alzheimers when he was just 40 years old. I entered into his life at the age of 66 after a year of being with him I began researching many different alternatives for him to find some help to possibly slow down the progression that I was seeing. Finally I found a doctor that said we could try aricept, I talked the gaurdian into letting him try it. Although he is not getting better I can see the progression slowing. He is one of the oldest down syndrome alive. He4 never remembered my name but he knows when he sees me that I am in his words his friend. He recognizes me as someone who is kind and gentle and he does not feel threatened by me. Although I do not work any longer, I call him and make sure to keep in touch with his family. There is no certain way to handle the disease of alzheimers it is one day, one moment at a time. Just keep on loving and listening to them whether they make sense or not. Your loved one loves you they just can not find the words nor the memories so every moment you are with them you give them 5 minutes of memories. God bless you and your family and I wish you the best.
1 person likes this
• United States
2 Mar 09
Thank you Grandmasnook, that is wonderful that you were able to work with this man. And to help him with the Alzheimer's, and to bring happiness into his life. My Mom barely speaks anymore, I miss hearing her talk. We all use to talk non stop when we visited, now I have to carry on the conversation, and she falls asleep most of the time. Thank you for all of your great advice. Thank you also for your blessings they are so much appreciated.
@hotsummer (13837)
• Philippines
1 Mar 09
we are in similar situation in some way actually. in this kind of situation prayer is the most important thing we should have always. it is really such a difficult situation to see our family in the hardest situation. we could only wish we can do something about it. and the only thing that i can think of besides caring for them is prayer. and there is no better weapon i think but prayer and prayer alone.
1 person likes this
• United States
2 Mar 09
I totally agree with you, prayer definitely does help. Take care and thank you for your comments, wishing your situation gets better.
@cindyhxf (1446)
• China
1 Mar 09
Hi Mary,i am so sorry to hear about your mother.i never wish a horrible disease come to any people in the world.but it alwasy take sadness to people .you must have many things to suffer and your mother too.i wish she will be better soon.God bless you and your family!
1 person likes this
• United States
1 Mar 09
Hi cindyhxf. Thank you for your concern. Alzheimer's and Parkinson's will eventually take my mother's life. She is losing her memory, after awhile she will not know who anyone is, and will be closed up in her own little world, until there is nothing. Something in her body will finally let go, and she will be at peace. Thank you for you blessing. Hugs MaryLynn
• Pakistan
1 Mar 09
my two cousins in our family dunno what kind of disease they have but they r paralyzed.i feel so much pain watching them.
1 person likes this
• United States
2 Mar 09
Sounds like life is very difficult for them, all we can do is pray and help in any way we can to help make their lives easier. Take care and God Bless
• United States
1 Mar 09
My grandmother has Alzheimers and it's a pretty scary and very sad disease. It's depressing to see the regression of her and to think that just a few short years ago, she was very coherent and although she had trouble remembering some things then, she's gotten, far, far worse since then. She has finally been declared too sick to take care of her own things and power of attorney must take place now and other legal issues have to be taken into account because of her illness. She's only in her 70's and was diagnosed fairly early with problems. It's scary to think that this probably will run in the family. It makes me terrified of the future and what will happen to me.
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@TessWhite (3146)
• United States
1 Mar 09
I'm sorry about your Mom's illness. Its very hard watching your mother suffer. I lost my Mom in 2007 to cancer. I spent the last two years of her life caring for her, taking her to appointments and helping all I could. She lost her hair twice, even her teeth, and her bones kept breaking from the cancer. She suffered so horribly and all we could do was help her and keep her medicated. I've lost my Mom, my grandmother, my MIL and my FIL all to cancer. Alzheimers also took my grandfather. Its hard I know. But spend what time you can with them now. Because when they are gone we miss them so very much.
1 person likes this
• United States
1 Mar 09
I agree with you Tess. I miss my Sister and Dad very much. My Dad's side of the family had a lot of different cancers. My Mom's side didn't. Mom ended up with the Alzheimer's, which we still believe has been brought on through the diabetes, heart condition, surgery, etc. But, one will never know. I know spending time with Mom is very important, and enjoy my time with her. Cancer definitely is a hard thing to go through with a loved one, I am so happy that I have so many good memories of my sister, that I can hang on, even ones when she had the cancer, she never gave up, just her body finally had enough. Thank you so much for your comments. Hugs MaryLynn
• Canada
1 Mar 09
Myuncle has cerebral palsey. It's not the MOST horrible, but it has always offered him challenged. Still he has always been my favourite uncle. He is really very neato. He can't conceptualize capital letters and he spells phoenically, even then names of his family members, but he can dismantle and rebuild electronics like someone who has been through a college course. I love my uncle!
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• United States
1 Mar 09
That is wonderful that you admire your uncle so much. I have known and been around many people in my lifetime with Cerebral Palsy. They are just like you and me, they just have a handicapped. Most of those with Cerebral Palsy can have functional lives, and it seems your uncle does have a good one. And with loving family members just makes his life more full. Hugs MaryLynn
@forslahiri (1042)
• India
1 Mar 09
Hi, No,Fortunately...by God's grace. Though my old parents suffer from high BP,diabetes. I will pray for U.gather courage & face it! =Lahiri,Kolkata,India.
• United States
1 Mar 09
Hi forslahiri, Thank you. I have faced the fact that my Mother has Alzheimer's and Parkinson's, it is just something very difficult to go through, and I am sure she is going through a horrible time herself, she doesn't hardly talk anymore, she has become so quiet. We use to talk for hours. Now there is silence. Thank you for the prayers, they are very much appreciated.