im loosing my mind

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okay, so i took my daughter to the eye doctor, she was having trouble with the exam so they dialated her eyes and did some xrays. they said she needs to see a specialist because she has discoloration of her optic nerve which could mean a lack of blood. so i started doing some research and the more i read i ran into symptoms of neurofibromatosis,(NF) which my mother has. now im freaking out. neurofibromatosis is a disease that can show up for no reason or be inherited, its supposed to skip a generation but doesnt always and if you have a history of it in your family you have a 50/50 chance of getting it. my daughter is 6 years old. other symptoms she has that were on the list were bedwetting, behavior problems, adhd (which her school has suggested may be an issue, she is always getting detention forms) sleep problems including waking early, interrupted sleep and such and emotional problems and hypertension. now my daughter, sara, always freaks out and cries untill she can barely breath when she gets in trouble. she stresses alot. my husband says i shouldnt read all of this because it makes me cry and stress out myself but i dont want to go into this doctors office blind and dumb. i mean, 2+2=4 right? granted it could be nothing, as much as i would like it to be i doubt it is nothing. do you ever just look at you child and know something isnt right and the next day she has a cold, or throws up ? mothers intuition, i have always thought something just wasnt quite right with her. the way she makes up stories, lies and is always in trouble.. i just always thought she was different and i couldnt figure out why. am i just paranoid? should i not reseasrch because it scares me more or should i make sure i know as much as i can before i go to the specialist? i want to walk in and say "hey, i think my daughter may have this problem and i want her tested" should i leave it to the doctors to do their guesswork and possibly be wrong? i mean if im wrong, thank GOD! ill feel a huge relief and be happy as all hell, but if im right i guess i just want to psych myself up for it. i want to be somewhat prepared when and if they say, your daughter has a small tumor pressing agains the back of her optic nerve cutting off the blood supply and if its not removed she could go blind. that was one of the suggestions i found while researching. my mother has tumors above her eyes and in her brain. she has them all over in her elbos, hips, i mean.. what else am i supposed to think? any suggestions?????