What is Sensory Processing Disorder, I have been asked this a good bit lately
By meandmy3
@meandmy3 (2227)
United States
April 19, 2009 2:23pm CST
As a result I thought I would take the time to explain it here, I know I updated this on my blog as well but what the heck. The more people that are aware of the condition the better chance we have at finding a solution.
All three of my children have SPD, SPD is a disorder of the brain in which the person with it can not process all the information that their brain and senses are receiving. It is for them sensory overload, their bodies do not react to stimuli as we do. Noises freak them out, something that seems at a normal decibel to us will be too loud for them, making being in crowded places or loud events unbearable. It is not just sounds that are too much for them, bright lights hurt their eyes, different textures of food can make them chock, they can seek out these things or do everything within their power to avoid them.
SPD results in children developing slower than their piers, as they either try to avoid sensations that are troublesome to them or they seek them out. Their gross motor and fine motor skills do not develop at the same rate as their piers. IN addition children with SPD often have speech delays.
There are many aspects of SPD, children with it can be sensory seekers, sensory avoiders or they can be a mix of both. If they are Sensory seekers they seek out high impact activities, they have a difficult time sitting still, can not focus on things for long periods of time, need high impact, need to run, crash etc. They do not notice when foods are too hot or cold, they are dare devils, take risk. Sensory seekers are also very oral, they tend to put things in their mouth a good deal of time, have a desire to chew things, lick things etc.
Sensory avoiders are just the opposite of seekers, they avoid sensations, are often very picky eaters, gag on certain food textures, vomit easy, do not like tags in clothing, seams on socks, are picky about the texture and feel of their clothes. Freak out when they walk barefoot on grass, sand and or rocks. Have a difficult time adjusting to change and have problems transiting from one activity to another. They focus on things and can not move to new things, they need deep pressure, tight hugs and have a difficult time calming down.
Then there is the child that has aspects of both, in some situations they need the high impact, need the sensations, and at other times they will avoid things, these are at times the hardest to know what to do to help, as you do not know what event or what thing will set them off or be acceptable today.
It is a very diverse condition/disorder that affects many children. Doctors are finding that many that once were diagnosed with Autism are actually SPD kids, and a lot of kids with SPD are later diagnosed with Aspergers or Autism.
Hope this helps to explain some of it.
3 responses
@Raven7317 (691)
• United States
19 Apr 09
This is the first time I've actaully seen a name put to what a few people have described my son as and what I've experienced with him...
He's a very picky eater, he gags and vomits very easily. He hates the feel of certain things on his hands, but this has greatly improved with outdoor play. He once had a terrifying reaction to a bug walking on his skin...
I had my son in speech therapy from 27 months because he just wasn't talking alot.. He's now in 0-K and still receives speech therapy once a week.
His therapists have ranged in advise from "don't worry, he's just a slow talker" to "he's almost a year behind in development" and one has mentioned specifically the sensory thing. She actually didn't put any names to it, just mentioned he "may have sensory issues."
He'll be 4 in August. He's a rough and tumble kind of kid; jumps, lands hard, likes to crash and is constantly seeking out impacts of various natures. He has a hard time calming down, whether it's a high he needs to come down from or a tantrum he needs to work out... He's very focused and we often find he has a one track mind and have joked that he's obsessive...
So my question is this: who do I see to have this definitively diagnosed? I had a VERY loose eval done on him by the OT when he was in Speech and based on that they didn't have reason to worry... But I'm wondering if alot of what he does was passed off as boy behaviour, baby stages, or natural age things... Can this be 'cured' or improved with some kind of therapy? He's in school now, as I said, and even his teacher has noticed certain things...
As a first time parent, I rely on the experts to guide me and most - if not all - up to this point have told me not to worry. "He'll grow out of it", "it's the age" and "he's a boy"
Now I wonder if I should pursue medical evaluation. Advice???? TIA
@Raven7317 (691)
• United States
19 Apr 09
OH and I forgot to mention the most obvious thing: HE'S terrified of loud noises... Just the thought of a loud noise freaks him out to tears...
Once our smoke detectors went off and he about had a nervous breakdown... now if he sees the battery lights blinking on them, he says, "it's going to be loud and you have to turn it off."
@meandmy3 (2227)
• United States
19 Apr 09
Yes there are things you can do to help him a ton of information on the topic on the internet, the best site for information and a list of symptoms etc is http://www.sensory-processing-disorder.com/
Everything you just described about your son is typical SPD, you need to get him evaluated by an OT that is not associated with the school or even a Developmental ped. There are so many things that you can do to help him, the most important thing is getting him OT as soon as possible.
a few things you can do at home. If he is melting down, seems to be past his point of no return, calm things down, this is not the time to fuss at him or make matters worse. i have found with JM that if I can get him in a quiet environment and remove him completely from the situation it helps. We have a calm down room, it has bean bag chairs, soft lights and books. We also play classical music in there during calm down time. I sit with them and hold them while they are calming down.
for the sensory seeker, provide him with things that can get the energy out, let him jump and run. Target has a great indoor trampoline that does wonders for my sensory seeker. It is safe to use indoors and gets that energy out when need be.
Visit the site I gave you and please pm me or email me anytime..
@meandmy3 (2227)
• United States
19 Apr 09
The sound thing is very normal for sensory kids, get him child size ear plugs. Mine keep them in their pockets at all time, they have become a security blanket for them
speaking of blankets you may want to look into weighted blankets as well. the deep pressure provided by them helps them to calm.
@katb28 (225)
•
20 Apr 09
hi there sorry im in the uk so there were a couple of things in your comment i didnt understand what is dx and dh thank you, im quite lucky in a way because in th uk if you are diagnosed by the sycologist its quite rare so you can be pritty sure there right but if you are diagnosed by a gp you carnt be sure because its not there field
@Foxxee (3651)
• United States
31 May 09
My son is a little of both. He was actually diagnosed with Autism.
Sometimes its hard to understand myself because some of the sensory toys they have out on the market doesn't really work for us because my son freaks out.
I heard play-doh is a good sensory, but my son wont touch it, his body locks up & he will get upset when its infront of him. But his teachers actually bring play-doh out every day & they make him touch it a little at a time. They said its sensory exercise & they are hoping he will adjust or learn to cope with certain textures.
He does love water, but only if it doesn't touch his head. Nothing can touch his head or he freaks out. So washing his head, brushing, cutting, can be a nightmare for us.
We do find that the sock blankets & weighted down vests work for him. He gets more in touch with his body this way & gives more hugs & so on...
Sensory is hard to explain to people, but your post explained it pretty well & hopfully it will help someone understand a little.
Every child with sensory is soooooo different...
@meandmy3 (2227)
• United States
1 Jun 09
You could not be more right about that. Sensory is different for everyone, as well is Autism and that is what makes it so difficult and why so many people can not understand it.
Your therapist, teachers are right, slowly introduce him to it, put it in front of him, have it in the room. You sit and play with it and eventually he may come around.
We took a big step forward today, Douglas my Oral sensory avoider, who once would not sit by someone eating eggs, he asked what they tasted like, I told him they were very good, he asked to try them, So I gave him a small bite on a spoon. He did not want anyone looking at him so we all turned around, he tried them, took the small bite I gave him, but that was all he would eat. But hey he put some in his mouth...