heart kids

Canada
November 12, 2006 3:24pm CST
I have a little girl who has a heart condition (hlhs) i have searched all over the internet and can not find out how old the oldest person with this conditon is. I understand privacy laws are in place for a reason, i do not want any personal information anyone other than their age. If you can help please do.
4 responses
_hope_
@_hope_ (3902)
• Australia
12 Nov 06
i really do wish you all the best with your daughter and will add a prayer for her the quality of life is so good and with the advances in technology your daughter may indeed have a great life take each day as it comes and make the most of it take care and god bless
bonzai168
@bonzai168 (55)
• Canada
12 Nov 06
thank you for your time, we are heading into a third surgery now and i am just a touch worried - thanks for the prayer
ahalapia
@ahalapia (942)
• United States
12 Nov 06
Here is a website that has interesting information about HLHS, and has other links on it for more information. Sorry I wasn't able to help more. http://www.hlhsinfo.homestead.com/
bonzai168
@bonzai168 (55)
• Canada
12 Nov 06
Thank you very much for the link, any help is appreciated.
The_Eagle_1
@The_Eagle_1 (1121)
• Australia
12 Nov 06
Sympathy for your plight....can't help but good luck!
bonzai168
@bonzai168 (55)
• Canada
12 Nov 06
thanks for caring
imaheartmom
@imaheartmom (1)
• United States
18 Nov 06
My son is also an HLHSer he turned 8 on Nov 12!!! Check us out on www.hopeforhlhs.com. We have 2 ladies that are in their 20s in that group!!! Keep your head up!!! Tammy