My Youngest Grandson and His Progress (He has PDD NOS on the Autism Spectrum)
By Teresa W.
@horsesrule (1957)
United States
August 16, 2009 4:03am CST
My four year old grandson is on the autism spectrum and has been diagnosed with PDD-NOS (pervasive development disorder not otherwise specified). He is difficult to live with. My life, my daugher's life and his brothers lives have revolved around him for his entire 4 years.
He never said a word until he was almost three years old and his first word was our dog Rosie's name. He also never referred to any of us by any name or title until he WAS three. His mother had to work with him, showing him pictures of each member of the family and saying their names over and over which eventually worked so he knew our names and his own name and tried to say the names. He didn't exactly call us by our names for a long time but if you asked him where momma or grandma was, he would run to us and point.
He is almost fanatically attached to his mother. He MUST know where she is at all times and he will run from room to room looking for her plus he has to sleep with her. If he falls asleep in their bed, he will wake up after an hour or two and come crying for her. It is a difficult way to live.
We can not take him in public often because there are times that he starts shrieking and will not stop. There is no ignoring him or waiting through what some might call a tantrum because he never stops and he is LOUD! This means we do not go anywhere as a family together. I stay home and babysit him so that my daughter and the two oldest boys can have a somewhat normal life. Sometimes I resent this which I think is normal because it is hard not getting to go together as a family to the park; public swimming pool; water park or to the library's storytime hour. I feel like my grandson is missing out on a lot.
So when my little guy does something that is especially "normal" though I am not certain that's the right word, I get excited for him. I believe it is a sign of progress and it gives me hope for his future.
My mother gave him a magnetic drawing board and he loved it from the beginning. In fact, he would sit next to me and ask me to draw trains for, ahem, what seemed like hours though probably wasn't quite. Well after seeing me draw all those Thomas the Tank Engine trains for him, oh plus the other train characters from the show and even the non-train characters, Terence, Harold, George, etc, he started drawing his own pictures. And they actually look like something a little boy would draw too.
I was so happy that I had to take pictures of his drawing. He's really good at making lots of wheels on the trains. He is copying a lot of what I drew for him when I was drawing pictures for him. And then he likes to erase the pictures so he can draw more or ask me to draw more for him. We have a lot of fun together, me and my little guy. It's going to be very hard for me to see him go to pre-school this year because he is wrapped so tightly around my heart. Yes I get tired of him sometimes and I complain but I really love my family and this little sweetie a lot.
4 responses
@meandmy3 (2227)
• United States
19 Aug 09
I feel your pain. I have a son with Aspergers and PDD NOS, the best advice I can give you is get him in ABA, OT and Speech at once. This will help a great deal with his progress.
never force him to look into your eyes, he can not concentrate on what you are saying when you make him do that. The features of your face is a distraction to him and when he is looking at it he is not able to hear what you are saying. He is too focused on your face to do so.
In addition preschool is great for him, he will thrive he will come into his own while there. Do not fret over this he needs it and it is something that you will never regret
the shreaking in public., have something if it is art work, keep a magnadoodle with you something he can draw on. you may also try music. that works for me. I keep my sons head phones in my purse at all times. if he gets overwhelmed I will put a cd in and the shreaking etc stops.
@Thoroughrob (11742)
• United States
17 Aug 09
It is always nice when they succeed at something. My son has CP and we have to search for things that he can do and also motivates him. My son is 14.
It is difficult having a child that really needs worked with all the time. It really isn't that you are tired of him, you get burnt out. You need that break from him and it may do both of you some good.
It is hard sometimes to deal with the always needing your attention, to keep things going smoothly, but when they make their accomplishments, it is so well worth it.
They should help to find ways to deal with the tantrums and things and maybe they will come up with ideas to calm him in a crowd. Keep your hopes up and you are a special grandma and mother. It is so nice that you are there to help her also. If you need to talk PM me and I would be glad to talk with you.
@ElicBxn (63651)
• United States
16 Aug 09
it mus make you proud to see him doing something a child his age would normally do, I know it must make your heart swell with love - I'm sorry that he has this autism...
The feral cat I rescued this summer is now at a horse barn where they put handicapped kids on horses - would that help your grandson any?
@mommaj (23112)
• United States
16 Aug 09
Forgive me for asking, he's not in a head start program or any type of special education group?
I could tell there was something wrong with my son before he was two. I had been fighting to get him diagnosed and in programs since then. They kept telling me they didn't test until the child was three. When your child doesn't talk, doesn't have any normal skills a two year old would, the child needs help. I moved in between those times and was able to get him diagnosed and into a special pre-k program. This helps him at least be around other people.
It's really hard with an autistic child because it puts your life upside down. Your daughter is lucky she has you to watch him. I am with mine 24-7 and sometimes my daughter feels left out. My child at least sleeps in his own bed and that is a habit you will have to break. It sounds like he is around the mental age of two years so you might be able to break him of sleeping with the parents. Just remember he's going to be like any child that is used to getting his way. He will probably scream bloody murder until someone comes and gets him. I know because I used to sleep with my daughter. When my son was born there was no way I was going to let him sleep with us too. LOL
My son for some reason still sleeps a couple of hours and then he's up the rest of the night. The bad part is he won't even take naps during the day. He can only go to school half a day because the class will all take naps. If they try to put him down he screams. I told them he wouldn't sleep. I guess they thought they could train him. He's never been in daycare so he's never been forced to take naps. They learned not to try if they want the other kids to sleep.
I know you will miss him during the day. He will be so much better off and he might even be able to start talking to you. He'll grow a little at a time.