How long is the lifespan of a lupus patient??
By abmacasinag
@abmacasinag (518)
Philippines
July 1, 2011 9:25pm CST
I've been meaning to ask this for so long, maybe I'm just scared of the possible answer to this question. I'm a lupus patient was diagnosed when I was 16 yrs old. Since then I've been taking medications. I'm not like the other lupus patient, when you get to see me you wouldn't even think that I have SLE. I'm a jolly person, I lived a normal life just like any other normal human being. I used my illness as my inspiration to live as normal as I can. But what can I do, I cannot really run from my illness from time to time my illness visits me and reminds me as if telling me "hey I'm still here don't you forget about that".
Lately I have been experiencing joint pains, my whole body is aching, well it's just normal for a lupus patient like myself to feel that way, but it's not a good sign, it only means one thing, my lupus might flare up and it's a not a good thing.
I have been dealing with this illness for like 13 years, no cure just a lifetime medication. So how long really is the lifespan for a lupus patient like me? do I get to
live for a long time? like 70 yrs old? I'm 29 years old now, married and still struggling to have a child, lost my first baby, stillbirth they said.
2 people like this
2 responses
@faith210 (11224)
• Philippines
2 Jul 11
hi abmacasinag,
sorry to hear about your condition. i have searched the net first before responding to your discussion. i assume that your condition is systemic lupus since you mentioned that you have joint pains and whole body is aching, correct me if i am wrong please. i just read that the majority of people living with lupus today can expect to live a normal life span. it was a different matter years before due to the fact that it was only diagnosed when it was very severe, & treatments weren't as effective. but it was mentioned that now, with better diagnostic facilities, increased awareness & effective treatments, at least 90% of people with lupus will lead a normal lifespan. i am really not an expert on this nor i admit that i don't have any friend or relative who have this condition. knowing now that it has no cure, just a lifetime medication...i pray for miracles, have faith sis!
take care and bless you always!
lovemuch,
faith210
@abmacasinag (518)
• Philippines
3 Jul 11
Hi faith210,
Yes it's systemic lupus. Yes lupus patient can really live a normal life like any other human being. I just hope that someday, somehow, someone will be able to invent the cure for this illness.
Thanks for that words of encouragement! Will surely have faith in him!
Have a great day ahead! happy mylotting!
1 person likes this
@Loen210 (1540)
• United States
19 May 12
faith210,
You are so kind and thoughtful for others. That was kind of you to just look up the reported answers/current predictions for her. Just wanted to let you know how kind you said. All patients and all people often need support to stay alive! :o) (I am a lupus survivor too.)
@marguicha (223777)
• Chile
23 Jan 12
Let us hope that doctors will find a cure for your illness. It seem that now your life expentacy can be as good as other peopleĀ“s with some flare ups. I have seen during my lifetime how medicine learns more each day about many illness. Several years ago I had a back surgery. If I had been ill 50 years before of that same illness, I would have been on a wheelchair. Now I have cancer. A lymphoma, stage 4. Yet it is on remission with chemo and the theraphy did not have the side effects that it had years ago. Have faith! And live each day a meaningful life. Life is about quality.
@Loen210 (1540)
• United States
19 May 12
marguicha,
Congratulations on the remission for your cancer/lymphoma. That's great! I just came across this posting as I did a search for other lupus patients. But reading the replies are great, with the positive attitudes and successful stories. Wishing you permanent remission! :O)
@marguicha (223777)
• Chile
19 May 12
Thanks for your words, Loen. I hope you can fight well your own illness. I dso think that learning as much as possible online helps bacause then you can talk with your doctor with more knowledge.