I have been holding back on
By ~Jodi~
@jeanena (2198)
Bucklin, Kansas
July 6, 2011 12:51pm CST
starting this discussion.I didn't want to feel like a crybaby so I have waited to post about what I recently found out from my doctor. Some of my older friends on here might remember that I had a problem with swelling and the Dr. I was going to had no clue what was causing it but had my on water pills to slow it down some.
We had to move back to our old place in another town so it was to far for me to go to see that Dr. any more so I have been seeing an ARNP here in town. Well recently she scheduled me for an ENG and a colonoscopy. I did all the liquid diet and everything in prep for everything. I got to the hospital to get stuff done. They got my vitals and when they too my O2 sat it was 84 .so they put me on oxygen still only got it up to 94 on it. So they took me in for a chest X-ray. Fluid in my lungs.
After everything is all said and done. I have congestive heart failure , enlarged heart, and the beginning of emphysema. I am supposed to be on oxygen 24 hours a day. I am only 47 years old.
I guess my question is.. How do you think you would handle shopping and all that toting around an Oxygen tank thingy? I always feel a little weird.
2 people like this
6 responses
@Maggiepie (7816)
• United States
6 Jul 11
My sympathies, Jeanena. I must also wear oxygen 24/7, though asthma is my reason (my heart's still very good). I find going out very difficult, as I'm either using a walker or a chair, & either one is very difficult to manage while toting even a small canister of oxygen! And then there's the tube & cannula...I'm forever tripping over them (or someone else is), & running over the tube with my chair.
So no, it's not easy. If I could afford it, I'd buy a portable concentrator, & just use the canisters if or when that broke down. I have a big, non-mobile concentrator at home, but I literally am unable to take enough oxygen in even the larger canisters to last more than 3 hours. It's a problem, all right! For most errands, my helper simply does them for me. I only go out to go to Church, or to see some doctor who doesn't make house calls (& yes, I do have those!).
If you can score a mobile concentrator, that's your best bet. I know Medicare refuses to buy one (though they will pay rent--which is stupid, because buying is much cheaper! Sigh...your tax dollars at work...).
You be careful, & take things easy, dear.
Maggiepie
"The desire of knowledge, like the thirst of riches, increases ever with the acquisition of it." ~ Laurence Sterne, novelist, clergyman 1713-1768
@jeanena (2198)
• Bucklin, Kansas
7 Jul 11
I also have the big concentrator here at home.I have medicaid and they might rent one of the smaller concentrators but then you have to give up the big one. I have to take extra tanks with me whenever I go anywhere. I have to go grocery shopping tomorrow and by the time we get home I will have used most of 2 of the tanks.Wow a Dr. that makes house calls would be freaking Awesome. (Agoraphobia enabler)lol
1 person likes this
@Maggiepie (7816)
• United States
7 Jul 11
Oh, believe you me, I agree! There are actually 2 house call doctor clinics operating in Austin Texas, where I am. I've had blood drawn, tests of several sorts done, been xrayed several times--in my own living room!
I was about 7 the last time doctors did house calls--& even they didn't have mobile test units back in those days, that they could set up at your home, as they do now!
I don't really have Medicaid. Well, I do, but it's limited to paying for my helper. I think maybe you might try saving up to buy a portable concentrator. But really, I'm treated very nicely by people when I go out, so don't worry. It's kind of nice to have doors opened for me, tables & chairs rearranged at restaurants (that's a rare outing for me--maybe a couple of times a year when family comes to visit). In my case, the difficulty isn't agoraphobia (of which I have a touch, myself), but simply being able to pack along enough oxygen to cover longer stints away from home!
I really wish you the best. God bless you!
Maggiepie
"It is the mark of an educated mind to be able to entertain a thought without accepting it." ~ Aristotle, philosopher 384-322 BC
@frontvisions101 (16043)
• Philippines
6 Jul 11
Yep, it will feel weird but I guess you have to do what you have to do in order to preserve your life. I mean, if I see someone like that in public, I'd understand.
@gabs8513 (48686)
• United Kingdom
6 Jul 11
Sweetie I am so sorry to read this
I am surprised that you are on the Oxygen straight away but again with all those Problems I guess your Oxygen will be low down
I have had Emphasimia and COPD from the age of 41 well that is when it was diagnosed, they believe I have had it a few Years already then, but the good thing is that so far I have managed to keep the Oxygen above 90 but I do not have a Heart Problem or anything like that, I am just getting over Fluids on the Lungs as it keeps going and coming
Please Sweetie I am here for you and you know that it is hard to accept I know that but you will get there I promise
Love you and big hugs
@edb225112 (124)
• United States
6 Jul 11
I think you are asking the wrong question? Who cares if you are walking around with an oxygen tank on your shoulder. Who would care it it were a camp chair. Both may seem weird but can and do serve some purpose. So stop worrying about how you will look and start looking at what you can do to get stronger. You can help your heart, lungs, and your energy levels by putting on your oxygen tank and taking a slow walk. Start with a couple of blocks. Each week go further. Find some kind of volunter work you can do for a couple of hours each day. Being around people and helping people will make you feel better about your problems. Right now, you are focused on the condition. You feel guilty about getting yourself in this condition. STOP! Start from where you are and make each day a little better for yourself by focusing on getting stronger and making the world a little brighter for someone else. (you will feel better and better each day)