Grandma, Take Me Now And I Want To Be With You Now! :(
By Daddy Neil
@neildc (17239)
Lapu-Lapu City, Philippines
September 2, 2011 12:39am CST
Hiya myLotters and friends!
Some of you already knows about my son Zay who had Sleep Apnea.
And most of you who knows about him also knows how successful the operation done to him.
But I am not sure if you can remember that my step-son has autism.
He is already 20 years old but with his personal appearance, you cannot tell he is a special child.
Anyway, last night he had his worst ever tantrum. This is the first time I have ever seen him acted that bad for 16 years.
There was something missing from his aunt's house, where he usually goes to everyday.
So when aunt notice about the appearance of the item, my wife asked him about it.
To make the long story short, they reached to an argument and they both got mad at each other. And the last thing I heard while I stayed in our bedroom, Joel was crying. With words you could not imagine coming from a special child:
[i]"I wanna die, no one in this house loves me."
"Grandma, take me now, I want to be with you now."
"I will leave this house and you will never see me again anymore."[/i]
Do you have a special child or you know someone who has a special child?
When was the last time he/she had his/her worst tantrums?
How were you able to stop or put the tantrums down?
Care to share?
~~ NEIL™~~
7 people like this
14 responses
@celticeagle (168126)
• Boise, Idaho
2 Sep 11
My grandson has a very strong personality. He will get very angry if he doesn't get his way. If he gets very bad he will say he is moving out. What can we say? We love him. Wish he would change his mind. He usually gets over his mad in a half an hour or so and decides moving isn't the best idea.
1 person likes this
@neildc (17239)
• Lapu-Lapu City, Philippines
2 Sep 11
with my step son, although he would change but it will take him some times.
and when he is mad at someone, he will ignore everyone.
one thing i could not take easily.
but thanks to my wife, she dramatically changed the way treating him and with my anger.
1 person likes this
@celticeagle (168126)
• Boise, Idaho
3 Sep 11
That is great that your wife knew what to do to hope the two of you with your anger.
@jennybianca (12912)
• Australia
2 Sep 11
What kind of operation did Zay have to treat his sleep apnea? I have sleep apnea and I use a CPap machine at night. I heard that the operation availble was usually not that successful and very painful.
My nephew has aspergers which si a form of autism. He is only mild, but has had social problems and strange food habits. Plus, he has never liked school.
My friends son has aspergers, and at times he can be very bad. He has not been to school for years, he gets very depressed, he looses his cool and has run away.
Last weekend I got a text message from my friend saying he was going through a real bad crisis.
So I can understand what you are going through with your step son. People with austic spectrum conditiions can get vwery depressed.
1 person likes this
@jennybianca (12912)
• Australia
5 Sep 11
It would seem like form your description that your son has some form of autism.
It is not good that you can not get proper diagnosis and help due to lack of money, this should be available to por people for free. Autism can not be cured, but he can be helped to deal with things.
It is must be very difficult for you dealing with him.
@neildc (17239)
• Lapu-Lapu City, Philippines
6 Sep 11
we have accepted the fact that our son has autism as per explanation of the teacher in the special education that handled him for almost ten years. my wife who is the biological mother really had a hard time accepting that fact but then, she had accepted it after some years though.
she (teacher) also recommended to have him diagnosed or get some support from a group but it's really hard for me due to lack of money and it is really out of our budget.
@neildc (17239)
• Lapu-Lapu City, Philippines
2 Sep 11
Zay had his tonsils removed. when he was still a baby, we just thought about his snores as normal thing when he sleep. until i learned a lot about sleep apnea here on mylot and other sites, i suspected he could really have that condition. finally, the doctor found out that his tonsils are not just tonsillitis but they are really big and gets bigger as he grows. but i don't think tonsillectomy is applicable with your condition, there might be some reasons and i hope it will get treated soon.
about our son with autism, we actually have no idea which type of autism he has.
we have not sent him to a specialist due to money problem.
only the teacher (special education) who handled him for almost 8 years told us that he is.
he went to the special class for 4 years before the teacher let him attend regular education up to 4th grade. he lost interest to school. he went to school, i even personally sent him to school everyday. and all we know after such time, he always sneak out of the premises. since then we stop sending him to school and let him stay at home.
we cannot tell if he still can read because he doesn't want to read the words if we tell him to read this and that. but we know he still knows how to tell the numbers, but could not count.
he is sociable but he cannot tell if the people he is talking to will teach him bad or good or will do him harm. one reason why we do not let him out of the house but most of the time, he will just sneak out when everyone could not notice. he will return home when he wants, because even when we always tell him not to stay late at night, he doesn't know how to tell the time.
1 person likes this
@secretbear (19448)
• Philippines
2 Sep 11
Hi neil!
That sounded really sad. I would have been surprised and maybe a little bit scared if I heard that lines from a special child. He probably heard that somewhere and just copied it. But that's really disturbing.
We don't have any special child in the family and I don't know of anyone with a special child. But I can imagine how hard it must be to raise one. Not just because understanding them and taking care of them is hard, but also because there will always be those people who will talk about you and maybe taunt you.
Anyway, I hope Joel has calmed down now.
1 person likes this
@neildc (17239)
• Lapu-Lapu City, Philippines
2 Sep 11
that was really sad and at the same time disturbing.
i really cannot imagine how those words came out from his mouth.
i never expected he has thoughts like that.
we are really scared about him leaving the house and time will come we really could not find him.
or something worst than disappearance.
well, hopefully that will not happen.
good to hear, you don't have a child who needs special attention.
and it's really not that easy to have one in the family.
how much more with a family with more, like one that we know here.
actually, they are not someone who is just someone, but biologically, joel's aunts.
no wonder.
but i would like to reiterate, joel has normal physical apprearance.
he's not a special child with down syndrome or extraordinary facial formation. (i hope i have explained it very well and my apologies to the parents with this kind of syndrome)
joel calmed down after my wife talked to him that moment.
i guess he listened to some kinda "baby talk" strategy she used and got to sleep after a few minutes.
but it is sad that until this time, he won't listen to me and keeps ignoring me everytime i try to talk to him.
1 person likes this
@secretbear (19448)
• Philippines
3 Sep 11
He has someone to look after him all the time, right? If he's being taken care of well, he won't get lost.
If you're the only one he's ignoring, then maybe he's mad at you or maybe scared or something? Did you get mad at him?
@savypat (20216)
• United States
2 Sep 11
There is much to be said for a tantrum like this. He is not contained by good manners or other social restrictions. This means he can vent his anger and frustration instead of bury it causing extreme stress that the rest of us so called normal people would do. So allow him to do this, just try to keep it in the home and not in public. But don't look on it as a bad thing. You might also
arrange for him to do some physical exercise to work off his emotions, a punching bag or running a tract, anything that allows him to work out this energy. Blessings
1 person likes this
@neildc (17239)
• Lapu-Lapu City, Philippines
2 Sep 11
we let him vent it out at times and yes, we keep it inside. and we really do look on it as a bad thing. but this last time, we are just getting a little scared of the words that came out from his mouth.
with the physical exercise to work off his emotions, we try to keep him from getting out by giving some house chores like to fetch water from the well and filling the containers, to arrange the recyclable items to sell them in the junkshop, lighting the charcoal fueled stove, helping her mom do the laundry, and so on, which mostly he loves doing so much when he is not in tantrum mode.
@neildc (17239)
• Lapu-Lapu City, Philippines
3 Sep 11
that's true and if i do not love my wife's children, they could not have been here until this moment, when the truth is, we start living together, my wife and i, all because of our love with out step children. that's only one of the many reasons why i keep working too.
@savypat (20216)
• United States
2 Sep 11
This did give you a wake up call to some of his feelings. I know there are many different ways that autisam affects people, but at least now that this is out in the open you can face it and work on the fact he feels unloved and unneeded. You have my prayers and blessings, I respect deeply the fact that you have kept him in the family home and are dealing with this condition. Many is the same position have sent their children away because they could not handle it.
1 person likes this
@ybong007 (6643)
• Philippines
2 Sep 11
This is the first time I heard about your other son's condition. No wonder why you're wife got tantrums, it's not an easy feat taking care of normal children how much more a special one with special needs. It's only but right that you shower your wife more with love . I'm glad all my children are just normal kids but they're already draining but I suggest you read books on how to deal with autism and do research so you can better understand what make them tick so to speak. I think there are support groups out there who will gladly give you a hand as far as giving advises on what to do, someone who can give you a better understanding about them.
1 person likes this
@neildc (17239)
• Lapu-Lapu City, Philippines
2 Sep 11
i understand how it feels to have a child who needs special attention like our joel.
problem with this house is, the other members are not so cooperative with us, the parents. just like step daughter and my other kids.
anyway, we actually thought of taking him to a specialist.
but as you know, we don't have much money for medical fees.
we try our best though to understand his needs, and his mind.
but it's really not that easy to handle him most of the times.
and with support groups, i also tried searching for them within this area.
but all just lead us to expensive training or learning something facilities, which we cannot afford.
and to think, zay still has something that also needs an specialist, with regards to adhd.
now i wished when the next rain comes, it's money that pours from above and not waters.
@ybong007 (6643)
• Philippines
3 Sep 11
What a coincidence I just watched a movie in HBO just moments ago. The title of the movie is Temple Grandin. She's an autistic who was able to achieve things because of her gift and that's for being autistic. You watch the movie and I hope you encourage a lot of people to watch the movie as well. I'm not going to divulge so much of the movie but it will enlighten a lot of people on why and how a lot of autistic tick.
@danishcanadian (28955)
• Canada
3 Sep 11
I have Aspergers, which is part of the autism spectrum. Im very high functioning, but I have my challenges, and over my 29 years, I've had to learn how to cope.
@rsa101 (38166)
• Philippines
2 Sep 11
I am as well shocked that you stepson was able to blurt that one out. I think that he may have experience a depression from what he experienced there. I certainly hope that he can recover from that since I know that many times this can stay longer especially with special child. But there are instances they easily forget as well.
I do have a cousin almost same age as yours is. Her mom was able to make her son functional by being dedicated to him always and training him very well. Now, I guess he is able to work already but of course he is with limited functionality as well as he could not easily adjust to different situations in a work place. So he is given a designated work to do everyday and is never given a new task without having him trained to do so. So far it is working well for him and tantrums have lessened already.
1 person likes this
@neildc (17239)
• Lapu-Lapu City, Philippines
2 Sep 11
well, we were really shocked at first hearing those words from him, and all with crying out loud. imagine, it was already 10 in the evening and people in the neighborhood were all asleep by that time.
later on, i guess my wife had figured out what she should do.
so he got near the room from where he was crying.
like a child, she talked to him in a very low tone of her voice.
i can't explain it clearly here, you know the english language.
(so inamo nya ito na parang batang musmo, yung parang baby lang)
something like she talked with a baby who was stolen with his candies.
"calm down joel, do you want to go to your father?"
"i'll tell daddy neil to call your father so he can pick you up."
"calm down joel, sleep now and tomorrow i will let daddy send you to your grandpa's place."
things like that.
actually, joel is someone that you cannot tell has a problem.
with his physical appearance, you cannot say he's special.
when he stops going to school, me and my wife helped each other training him.
we keep him busy with house chores so we won't sneak out.
but even how much we try to let him understand some things, like it's not safe to be out when it's too late at night, besides, he doesn't know how to tell the time. so when he's out, he will be back home, i guess when he feels tired.
we do everything to keep him always within our sight.
we gave him music player.
we let him play psp (imitation only ) as long as he wants.
things like that, just to keep him grounded.
but this is really something he cannot learn. when he wants something he saw from other people, he will do everything just to get it or get one for him.
he saves money too. but we cannot always tell that those money gets, he got legally. you know what i mean? if he did that, he doesn't know it is not good, even how much we try for him to understand that this thing is good and that is not.
@MsTickle (25180)
• Australia
10 Sep 11
Hi Neil ~
I have had a little experience of looking after an autistic child but not to any great extent and that was over 40 years ago.
However, I did a bit of searching and I came up with a site I think may be a little bit helpful. Here is a link to the site:=
http://home.vicnet.net.au/~asperger/Strategies.htm
Once again I am hopeful that you find the strength to get through the trials that are yours.
@neildc (17239)
• Lapu-Lapu City, Philippines
12 Sep 11
thanks for informing and for the link. hopefully it will help.
@paula27661 (15811)
• Australia
2 Sep 11
I don’t have experience with special needs children, I can only imagine that as a parent you would love that particular child even more if it is possible and would do anything to make his or her life easier and to see the child smile. It must be difficult to deal with autism because I imagine it is hard to know how the child is feeling unless they are throwing a tantrum! It sounds as though your step son is depressed by other issues besides a missing item. Trying to get him to open up would be helpful but tough to do I guess. I hope things ease up with him.
1 person likes this
@neildc (17239)
• Lapu-Lapu City, Philippines
2 Sep 11
you cannot tell our son that he is special.
by the looks, you will tell he's a good looking young man.
and we even heard that there are few girls in the neighborhood who have a crush on him.
and we also know, he has some crushes but he doesn't know how to tell it to the girl, he doesn't know how to court a girl.
actually, he is not that difficult to mingle with him.
he talks normally, though he talks fast sometimes that you cannot understand what he is saying.
it's just that there are some point that his mind could not reach so he cannot understand.
like some things about good and bad.
1 person likes this
@maygodblessu44 (7336)
• India
4 Mar 12
Hello my friend neildc Ji,
Well, first of all I wish to apolize with you and all my friends that I got hibernated due to many reasons. Let me see if I could be regular here-after. Well, I never faced any such scenes in my life. You are great curageous to hev solved out such things.
May God bless You and have a great
@bhabycatch013 (9150)
• Philippines
2 Sep 11
hi neil,
I don't have an experience like this
All I know is the person who will talk to them should be patient enough to explain things.
Well I have tantrums to and I turn into a monster
happy mylotting
@neildc (17239)
• Lapu-Lapu City, Philippines
3 Sep 11
hi bhaby. yes it's true, parents who have children who needs special attention needs to be patient enough but tantrums are bearable most of the times. it's probable much lighter to handle tantrums as with joel but not with children and not so young kids who has ADHD like you.
@abatencila (970)
• Philippines
2 Sep 11
One of my nephew is a special child but I doesn't see him tantrums yet. He is hard to take care of, sometimes uncontrollable but with tolerable behavior I must say. He is now enrolled with occupational and speech theraphy. He improved a lot as far as I can see.I guess, lots of patience,understanding and love is important so they'll be able to live with us.
@neildc (17239)
• Lapu-Lapu City, Philippines
2 Sep 11
well, our son spent 6 years in the special education class before he was released by the teacher who handled him to attend regular schooling. he went to the regular class up to 4th grade with his classmates, a lot younger than him. we just could not understand why and how he lost interest. so now, he is not able to read but knows some numbers. he already forgotten what he had learned from school for 10 years. he does not even know how to tell the time. i always tell him, when he gets out of the house to not stay too late outside. but he won't back home in time, he will, maybe if he just feel tired.
@abatencila (970)
• Philippines
4 Sep 11
My nephew is already 8 yrs old. I am so sad to hear your story but still try to convince him to study again or do something that might interest him. Ask him or better communicate to him often, maybe he's just into something right now.
@WakeUpKitty (8694)
• Netherlands
2 Sep 11
yes I do know how it is and how it is and feels to watch it.
I always ignored it and sooner or later it was over :-(