Auttoimmune disease=chronic pain
By LillianPearl
@LillianPearl (101)
United States
September 5, 2011 4:21pm CST
I was wondering how many mylotters out there experience chronic pain?
Initially, I had brachial plexus nerve damage, which severely aggravated degenerative disks in my back and lead to stenosis.
I finally found an amazing osteopath (a D.O., a physician who specializes in the body's alignment for better health) for osteopathic manual manipulation.
I went for six sessions and while my back & arm no longer hurt, I was still exhausted, in pain and continuing to gain weight.
He ordered an autoimmune screening. My C reactive protein and Erythrocyte Sedimentation Rate were through the roof, my Rheumatoid Factor was only slightly elevated.
I've been diagnosed with a rare form of Ankylosing Spondylitis and was started on Immuno Suppresants. The problem is my rheumatologist only gives me tramadol for the pain. Sometimes it doesn't even take the edge of. Things like walking, shaking hands and sleeping are extremely difficult.
Has anyone ever gone through something similar? Would you recommend I see a pain management doctor as well? I am sick & tired of being sick & tired!
2 people like this
6 responses
@snowtigger35 (51)
• United States
5 Sep 11
I myself suffer from chronic pain due to arthritis. Sometimes i find it hard to even crawl out of bed. I have an auto immune disorder called Lupus and unfortunately the arthritis comes along with it. I do not have insurance so it's hard to go to the doctor or get any medication to treat this problem. What i do is look online for healthy recipes and home remedies to help. Doing some stretching of my fingers and back also help relieve some of the pain. All pain management will do is recommend shots for a few times and that's about it. my aunt went in for her knee got 4 series of shots and is still in a lot of pain. I would only use that as a last resort if nothing else at all will work.
1 person likes this
@LillianPearl (101)
• United States
5 Sep 11
Have you looked into local charity hospitals for assistance with health care? I know my city own one of our top three health systems and they have a lot of assitance programs. The other two also have charity care, my friend uses that because she has no health insurance. She's had her annual gyn, allergist appointments (and now allergy shots), etc.
Good luck.
I am looking into an anti-inflammatory diet.
1 person likes this
@snowtigger35 (51)
• United States
5 Sep 11
I will have to check into that thank you! I don't want to have to apply for assistance or try to get SSI at the age of 35 as i still feel i have some work left in me lol.
1 person likes this
@LillianPearl (101)
• United States
6 Sep 11
I know the feeling, I'm 33.
I don't want to be disabled. I'm convinced that with the proper medical treatment we can live stable and happy lives.
I'm a full time student. I want this new career so badly!!!
1 person likes this
@soapies1973 (931)
• United States
10 Sep 11
I suffer with chronic pain every day of my life. I hate it so much. I have a tumor in my spine and it is just awful to live like this everyday. Now they have found my thyroid is also messed up. I have so many problems I don't even now where to start.
@LillianPearl (101)
• United States
12 Sep 11
If you get the thyroid condition managed, you should start to feel a little better, at the very least. I have had many friends with thyroid conditions.
Is there anything that they can do for the spinal mass? Surgery, radiation, etc.
Sometimes even therapeutic/palliative radiation can offer a lot of comfort, if it is bone pain.
My best advice, is to take it one day at a time and focus on the big issues first.
I wish you comfort and answers.
@suspenseful (40192)
• Canada
7 Sep 11
I do not have it and I do not know anyone personally who does. I know a few who have arthritis, cancer, ms, and als. I cannot help you I am more used to diabetes, heart conditions, and stroke plus als since my husband had the latter.
@LillianPearl (101)
• United States
10 Sep 11
I got some massage therapy through my osteopath and it was amazing.
I've heard acupuncture can really help with fibro.
If I could afford it, I would go for massotherapy every two weeks, but being a full time student, it just isn't in my budget.
@Hatley (163776)
• Garden Grove, California
6 Sep 11
hi lillianpearl I have plain old severe osteo arthritis and have been on tramadol for years. lately its not been enough so am goling to ask my doctor if he feels I need a stronger dosage as it used to really stop the pain. it has not got all the side effects of stuff like Celebrex for instance. ask your doctor for a heavier dosage. I also have diabetes so my immune system is damaged too. Seeing and hearing you have far more pain I would sure ask my doctor about going to a pain management doctor.I have heard they really do help; people with a lot of pain.
@LillianPearl (101)
• United States
10 Sep 11
I am definitely going to go see pain management.
I also am going to ask for more aggressive treatment for my autoimmmune condition.
I NEED to be in the best state that I can.
@WakeUpKitty (8694)
• Netherlands
6 Sep 11
I have chronic pain and except for bad allergies also 2 auto-immune diseases. You can't see the pain so many people don't know. I can't remember any day in my life anymore I did not had pain. Some days are better as the others that is all I can say.
If I have a bad day I can't take a plate out of the cupboard, lift a beker or shake a hand. I can't sleep on my back anymore and at my sides it's painfull too, I can't lay one leg (knee) on the other. I try not to think of all the pains I have because if I do so it's a never ending story.
I try to ignore it and keep myself busy but it's a fact that pain cost a lot of energy, so I am always tired out. I don't accept being sick because this is one of the hardest things to do and it will still cost me energy. I am sick and very tired of being sick and tired too and probably a very strict life without anything (incl. travelling, stress, paying someone a visit, invite a visitor, doing my own shopping) would make me feel better. But I am way too alive for that. So I live by the moment, ignore as much pain as I can and try to make the best out of it. Staying at home in my bed is no option for me.
@LillianPearl (101)
• United States
10 Sep 11
Trying not to focus on the pain and keeping your mind busy are two very good coping skills that I learned in Chronic Pain Rehab.
Getting good sleep, also helps you be able to better deal with the pain.
I am not a good sleeper and was recently diagnosed with sleep apnea.
Like I've mentioned in other replies. I am a full time student. I try to keep up with daily life, but get exhausted. Last night I fell alseep on the couch within five minutes.
There's so much I want to do in life, I need to be able to move on and in my life.