So I´m worried and bi*chy!!!
By marguicha
@marguicha (222389)
Chile
September 21, 2011 12:34am CST
After this chemo, the doctor will make several tests that will help have a prognosis on what awaits me. I am not so much afraid of death, but this not knowing is killing me. I have not been doing well and I´m sure most of it is due to stress. I prefer to know than to have to wait. How about you? Share. It might help me and others.
5 people like this
19 responses
@Professor2010 (20162)
• India
21 Sep 11
Sister
I can feel, what you are feeling right now..
Giving samples for tests, or undergoing a scan, waiting for the result in the report is real scary, we think of negetive things only and this causes the stress, come up dear Margarita
Have faith on god, you are not going to die..
Thanks for sharing
Best of luck.
Professor
2 people like this
@paula27661 (15811)
• Australia
21 Sep 11
I can only imagine how stressful this is for you! I would want to know upfront what I may be in for so that I could come up with coping strategies and make appropriate plans such as taking a nice holiday once treatment is over if all goes well...I am praying for the best outcome possible for you marguicha and I hope everything will be well with you again. In the meantime I would suggest engaging in activities you enjoy to try to relax your mind a little if at all possible. I wish you the very best...
2 people like this
@marguicha (222389)
• Chile
21 Sep 11
I´m trying to do my best, paula. But I think this comming week, and maybe the next are going to be a step away from hell to me. Until the tests are done and everything is checked, not even the doctor knows how it´s going. She just checks that it´s safe to have another chemo session.
2 people like this
@pergammano (7682)
• Canada
21 Sep 11
Marguicha...I SO understand all of the stress that you are going thru...been there, doing that since my tests began on July 25th..and just two more days to go! Others have said here to keep busy, I can't be any busier from morning 'til night...but somehow these "doubts and fears" that are so fore-front in your mind, just take over all other thoughts. I don't know how you are doing in the sleeping department...but lack of is making me extremely b**tchy! Sometimes I wish that "decision" day was further in the future...then I want to get it over with...just don't understand myself.
I, so pray, Marguicha that there are completely POSITIVE results from all your tests...and that you have the strength to get thru this stressful time!
1 person likes this
@pergammano (7682)
• Canada
22 Sep 11
YOU DO have a big circle of friends here, all with their collective arms about you....absolutely sending positive energy your way..and winging prayers to you!
OH...drats, the waiting...it is SO hard. They say, tomorrow NEVER comes..but my tomorrow is coming Friday, and my son is coming home tonite! We have NOT had a face-to-face about this yet, as all of our conversations have been over the telephone!
I am totally convinced you are made of the best fibre, dear Lady..you are so active, full of vim and vigor, and suffering like the dickens!
I will get back to you with a PM on Saturday (as Friday will be a long day--the Ferry to and from, etc.,) and let you know my destiny!
@marguicha (222389)
• Chile
23 Sep 11
I will be waiting for your PM, dearest, and hoping everithing is good for you. Today, at my chemo, I discovered that I would have to wait longer as the doctor will make the scan two weeks from now and the other bone marrow test in three weeks. So, as it will take so long, I´think where to plant my zuzhinni and I´ll forget about this for a couple of weeks
1 person likes this
@marguicha (222389)
• Chile
22 Sep 11
I don´t have sleeping problems, pergammano. The chemo takes good care of that. I feel I want to sleep as long as Sleeping Beauty although beauty has left me. My face has somehow "fallen". When I marry Bill Gates or someone else such as him (no prenuptial arrangement) I´ll do my face and neck all over.
Today I went to the doctor and she confessed to my daughter who went with me that the first tests were not nice at all but that she expected better results after this part of the chemo. So I´ll have to wait for at least 3 more weeks to know. I hope I don´t turn into a serial killer or another sort of monster while I wait.
I think that the best support has come from my friends here. I never thought that people I have never seen person to person have become so dear (and near) to me.
A BIG HUG!
1 person likes this
@ANTIQUELADY (36440)
• United States
21 Sep 11
i'M SO SORRY U HAVE THIS TO WORRY & BE BIT*CHY ABOUT. I have never had cancer for have had a few life threating problems. I learned to take one day at the time & be thankful for it. Count your blessings , marg, i know u have alot . U know i wish u the best. jo
@marguicha (222389)
• Chile
21 Sep 11
Thank you, Jo. I think that what is worse is not having the capacity of doing things. I have always been very independent and I don´t like to be helped with everything.
2 people like this
@bluemoonpavilion (4658)
• Singapore
21 Sep 11
Hi marguicha,
I think I would prefer to know too, at least I can do some planning or at least engage in some efforts to improve things. On the other hand, no news may be good news. It would be good if you talk to somebody, join a support group, maybe that will help to reduce your stress.
1 person likes this
@marguicha (222389)
• Chile
21 Sep 11
Unfortunatly, in this case no noewas is, at the most, no news. I have the worst news and it can be better only after some tests that will take some time. I talk to some of my friends, the ones who can take it. I cannot talk this with everyone in my family either because some of them are in denial. The best suppport group I have is here, at mylot.
1 person likes this
@bluemoonpavilion (4658)
• Singapore
22 Sep 11
You need to keep up your spirits!
1 person likes this
@rollylolly (2843)
• India
21 Sep 11
I have gone through a very critical phase in my life but my reliance on Jesus made it so easy and smooth . Miracles happened when we all(whole family) started praying and wholeheartedly depended on Christ . The New Testament gave us inspiration and I firmly started believing that things will improve although medical science said that it was almost a marginal case . I know you are strong and this no advice . I just shared my experiences .
1 person likes this
@marguicha (222389)
• Chile
23 Sep 11
I´m so glad for tou that everything came out right. I believe in the power of collective prayer.
1 person likes this
@daeckardt (6237)
• United States
31 Oct 11
I can't blame you for being worried! I would be too. In fact I am. I have been on temoxefen for almost a month now. I think it might be helping since some of the pain that I had been having since August has gone away and the area that had been hurting was the area where the largest tumor was. I guess I will find out if I'm right on the 7th. I have also been getting acupuncture so I don't know if it is one, the other, or the combination of the two that is helping, but I haven't had to use the binder they gave me when the pain started in a couple of weeks at least. I don't want to have to wait to find out if all this is working, but if the way I feel means anything, I think it is. Have a great week!!!
@daeckardt (6237)
• United States
31 Oct 11
I'm sure it will. I try to think positive because if I think negative thoughts those are more likely to happen. By thinking positive, I think I can curb at least some of the potential problems. Besides, keeping a positive attitude is better for your health.
1 person likes this
@marguicha (222389)
• Chile
31 Oct 11
Hi Deb,
It seems that for both of us the 7th is the X day. I have an appointment with the doctor then and I wilol know about my bone marrow test. The first one wasn´t very good, but the doctor hopes that chemo will help with that. But the chemo has made the lymphoma smaller so I have reasons to hope that it will all go better.
Anyway, whatever happens in the future, I´ll try to live as happily as possible.
i´m glad that you are feeling better too. Let us hope our trip to the doctor has the result we want.
1 person likes this
@neildc (17239)
• Lapu-Lapu City, Philippines
22 Sep 11
i think i would also like to know than to wait. so keep yourself busy but not too much that will stress you more. take care.
@marguicha (222389)
• Chile
23 Sep 11
Today, at chemo, the doctor told me that the scan was going to be made in 2 weeks and the bone marrow test in 3 more weeks. It seems that my stress went down as I had to postpone the worrying.
@la_chique (1498)
•
21 Sep 11
By waiting to hear and worrying, you are wasting your own time. You know that you are ill, and you know that there may be an unfavorable outcome. You need to get living whilst you can! Spend time with your family, or do a hobby that you enjoy. Maybe even do one of those things you've never quite been brave enough to do. You only live once, so there's no point in wasting this lifetime with worrying!
@marguicha (222389)
• Chile
23 Sep 11
I like to think that worrying, as laughing and crying are part of being alive. They all have helped me become what I am: a writer. I could not write if I wasn´t able to live and feel different sorts of emotions. Worrying is one of them. Of course, I cannot express myself too well here as English is not my native language.
As for things to do, I have a helper now because my energies as few, But I still, with help, tend to my garden, do my veggie plot, imagine and make gourmet food. AND I write in Spanish and I´m involved in my country´s politics from my computer.
@marguicha (222389)
• Chile
22 Sep 11
One of the problems with chemo is that you don´t have too much physical capacity to do anything. I´m always tired and it seems that´s the way it is. That does not help much with being happy either. I can´t wait until this ends one way or the other. I´m starting to lose my patience.
1 person likes this
@allknowing (135354)
• India
23 Sep 11
That restlessness is natural. Go with the flow marguicha and wait. Keeping your mind occupied could be one of the ways. How about listening to some soothing music that you like or keeping in touch with your friends.
@marguicha (222389)
• Chile
23 Sep 11
Today, at chemo, the doctor told me that the scan was going to be made in 2 weeks and the bone marrow test in 3 more weeks. So I decided to stop worrying until the time got nearer. I´m going to do some reiki on myself (I have been putting it off until now, but will start as my doctor gave me that advise when I told her that I didn´t trust psychiatrists, her first idea).
As for friends, my friends surround me as angels. Today I had the long chemo and I had 2 friends with me all the time. One of them takes me across the city all the time I have the long chemo although she works. Today she changed her whole work schedule to be with me. The wosrt was that I fell asleep and did not join them for the conversation. I slept for hours.
@marguicha (222389)
• Chile
26 Sep 11
Please remaind me of the 5 points prayer. I had it written but I missplaced it. Reiki helped a lot when my grandson had cancer. I could soothe him in a way no other thing could, even at the end, when he was unconcious.
@allknowing (135354)
• India
23 Sep 11
Vow! You slept. That's great. Sleep is so precious more precious than talking to your friends! I too am a Reiki channel and I do it every single day. Do you say that 'prayer' those 5 'Just for today....'?
@hardworkinggurl (37063)
• United States
21 Sep 11
Hello marguicha!
Oh my the waiting and not knowing makes me a very stressed out person. I absolutely loath waiting on just about anything. I have improved in some areas where if I know I can't control certain things that I try and accept and simply wait. It still does not deter me from feeling stress and antsy sometimes though.
I do hope all goes well with the test results and that the time awaiting does not stress you any further. There are no words of comfort I can offer as I would be lying if I said I would just wait and see. I too would be so stressed in just the need to know. My prayers are with my friend and really do hope all results come out well.
@marguicha (222389)
• Chile
23 Sep 11
Today, at chemo, the doctor told me that the scan was going to be made in 2 weeks and the bone marrow test in 3 more weeks. So I decided to stop worrying until the time got nearer, Funny enough, the high pressure went down immediatly.
Thanks friend
@stringer321 (5644)
• Kiryat Ata, Israel
30 Oct 11
Not knowing what the future hides for us is always a thing one can worry about.
In your case , the results of the tests can give you hope or maybe not.
The minimum you can do is to enjoy the now , and try to do what you really want in life , do what is important to you .Almost no one can tell what the future holds for him. Many people make planes for the future , thinking nothing can go wrong , and are not worried most of the time...but some of them get a surprise.
I am sure you want to stay alive and enjoy the holidays with the family and remember many happy moments. That is a very important goal in life. So maybe you can focus on this , you can just decide you feel good and happy for the family , invite them more often , buy toys for your grand children , and you will be happy seeing them loving you. I think maybe the boddy will kick the cancer out. The power of thinking and emotions is strong and can effect our reality.
@marguicha (222389)
• Chile
31 Oct 11
I´m enjoying the present. Next week I´ll know what´s ahead. Meanwhile, i´m planting to have tomatoes for the Summer. After all, in my country Summer is not that far away. Carpe Diem!
@befrindwithme26 (5805)
• Philippines
21 Sep 11
Hi,sorry to hear you ... i hope that thew doctor will not late ding to care your chemo..They should be on time and not to delay , i thought that they do not need schedule for patient because it is emergency..I know and feel that you are not well, and hope you are cure soon...hope and pray to God is the key to have better healing..thank you...
@marguicha (222389)
• Chile
23 Sep 11
Chemos are not delayed but diagnosis changes according to new tests and scans. The doctor will check my bone marrow and scan my abdomen after 4 chemos. Let´s hope it is better than at the beginnig.
@dawnald (85146)
• Shingle Springs, California
18 Oct 11
Well part of me would prefer to live in denial forever. But yeah, I'd want to know.... Hopefully you have something and I just haven't gotten to that discussion yet...
@savypat (20216)
• United States
21 Sep 11
What I would do is try to become busy, if you can help others that works best. Even just giving you time talking to people or even reading to them, is an easy way to help. I know that you must not have much energy so you will only be able to give so much. But if you can work with people who are much worse off then you, it sure helps to put your life in perspective. Keep talking to yourself and telling yourself that no one knows what tomorrow will bring, your time will come when it comes, just like the rest of us. And you might look at tapping.com and learn how to tap away emotional stress, I find that this helps even with my constant pain. Blessings.
@shadow41 (2351)
• Philippines
21 Sep 11
Hey how do you do? I hope you're feeling better now. You really should do things you love in order to save yourself from stress. Stress cause a lot of illnesses and could probably worsen your current condition too. I am not sure but I think the fear you're dealing with now is "fear of the unknown". Fight it. Gather strength from your love ones. Pray. It might somehow ease the fear you're in right now. Take care my old friend.
shadow41