So Should I Just Be Keeping Quiet?

@KrauseHome (36448)
United States
March 29, 2012 12:54pm CST
I have been reading and responding back to some of my discussions I have started about my Health, and some of the criticism I face from work, etc. and then people are telling me maybe I am too judgemental, or not trying to help myself, and wonder if people actually do not want to hear anymore about what I am going thru. Or do people just not relate, and think we should never have to deal with Chronic Wounds, Diabetes, Fibromyalga, Pain, Depression, etc. Personally right now I am feeling like maybe I should not post anything more on here and act like my life is A-Ok even if I feel like HELL. Sorry, but today is not a Good day, and I just really wish things were different, but if everyone is tired of hearing about it, I will be quiet and hope for the Best from here. Right now I am so frustrated and upset with life, and things going on I know the only thing that can happen is god to take control and know one day everything will be OK, but wanting to hear everyone else's thoughts and opinions here. Thanks!! ~~TINA~~
12 people like this
36 responses
@writersedge (22563)
• United States
29 Mar 12
No, it's ok. It's just that the last time when you were complaining about the person not wanting advice from you and you not wanting advice from her, that seemed easy enough to remedy. If neither of you wants advice from the other, then the logical thing to do would be to stop giving it to each other. Neither of you is going to listen to the other, you aggravate each other, so just stop. You both are convinced of your stance on diabetes and nothing is going to change either of your minds. You've had your say and that's all you can do. Move on. It's hard when you have a lot o0f health problems. Fibromyalgia, I wish you lived nearby. There is an alternative healer in VT who specializes in that and is very, very good. In Vermont, they have to be certified Drs and alternative healers. In NY, they have to be both, too, but they mostly go to the big money areas. Poor areas like ours don't get them. The alt healer gave me ginsing, but everyone is different. So he'd have to talk to you. I didn't have high blood pressure then, so I could have ginseng. It can make people's pressures go up. That's why you need to see an actual Dr. I think if you had a job where you were happier, the stress level would be less and many things would either lessen or resolve themselves. Also if your Church invited Faith Healers or did its own version of a healing circle, that would be nice.
@KrauseHome (36448)
• United States
17 Apr 12
Well, it is easiest sometimes to avoid the people at work. But when even people here, etc. are always saying I need to quit complaining and take care of my Health more it gets frustrating. But there is not much more I can do I feel about taking care of this wound, etc. until after the vein surgery so I just do what I can until then. And I have had people pray over me about situations in my life, and Health. Since the last time my sugar levels have gone way more steady again.
1 person likes this
@KrauseHome (36448)
• United States
20 Apr 12
Yes, you are not the only one who always seems to be amazed that I am able to continue working with everything being like this. I actually hear this all the time, and personally it has been my Motivation I think to not let things bring me down so much, and to eventually be able to own my Own business which I so desperately desire. Just at this time know I need Medical from somewhere as well.
1 person likes this
@writersedge (22563)
• United States
17 Apr 12
I'm amazed that you're able to work with a leg so bad. If your sugar is stablizing, then you're gaining on it. I think between the prayer and going to the Dr as well as self-care, you're probably doing all you can do for now. I would have probably poured honey on it and it would have gotten either better or worse by now, just out of frustration. But there are people who have stories of honey curing the impossible. Good luck on your operation and I think we should all keep you in our prayers. Peace and love.
1 person likes this
@GreenMoo (11834)
29 Mar 12
I think one of the great things about myLot is that you can pick and choose the discussions you want to respond to. So if people aren't interested in what you have to say, then they can show you so by staying quiet themselves. There's a lot of support to be gained from your myLot friends. I've not been feeling so hot myself recently, and knowing that people cared enough to respond was encouraging. So for me, please, keep posting. I really hope everything turns a corned for you soon.
4 people like this
@GreenMoo (11834)
30 Mar 12
Even those who are not unwell in a medical sense still need support from time to time, and I think everyone would do well to remember that.
2 people like this
@cher913 (25782)
• Canada
30 Mar 12
thats a great point greenie! it would be nice if everyone was as supportive as you are but alas, they are not. as a person who suffers from chronic disease i can relate.
1 person likes this
• Philippines
30 Mar 12
I agree with GreenMoo, if they are tired with your situation then they should have not read your post. If it helps you to vent outu your frustrations , your difficulties here in mylot then keep it up. If you find strength in other mylotters advise then dont let the haters bring you down. Be happy and live well.
1 person likes this
• United States
29 Mar 12
I relate, and I think that our health care system is ridiculous. I have to pay nearly $500 a month for insurance, and those premiums are set to go up in July. I also have to pay close to $200 a month for medication. Doctor visits are $25, and God forbid I should have to go to Urgent Care or the Emergency Room because it's $50 for Urgent Care, and $100 for the ER. Hospital stays are $200 a day. Yes, I know exactly how you feel. By the way, I have Chronic Back Pain, Asthma, Allergies, four different skin conditions, Astigmatism, and I'm Bipolar Type II. People can say what they want, but until they walk a day in my shoes, they don't have a clue what's it's really like. It's like you always have to pretend that things are great, even though your life is falling apart.
3 people like this
@Hatley (163776)
• Garden Grove, California
29 Mar 12
thats what I have always said,do not judge others unless y ouo have walked two weeks in their moccasins. I believe in judge not lest you be judged.You must also be here in the U S our health system stinks.I am lucky for being old as I have medicare and secure horizons now called Universal Health care.but we should not have to be elderly in order to get health care we can afford.
3 people like this
@KrauseHome (36448)
• United States
14 Apr 12
So True, So True, So True. There is not a day I would want to trade someone with what I have to go thru, or what I have been thru. There are many times some days are better than others. And then I continue to always be learning from all of my experiences as well. I just know that it is a challenge and one most people might not be able to handle. But for others to judge, I hope it does not come back and bite them too hard.
• United States
30 Mar 12
I try my best not to judge others because your right, I don't know where they are or where they have been in their life, but I also know that people love to judge me because of all of the problems that I have.
2 people like this
@bunnybon7 (50973)
• Holiday, Florida
29 Mar 12
so sorry dear. iam at a point where i thought some are trying to run me off mylot. i go back and forth from saying maybe i should quit, to maybe not give them the satisfaction as ive had a bunch of people tell me my discussions are good and interesting. even when i complain about my life they come into the discussion and help. now thats true friends of which i have mostly on here and so do you. so i wouldnt let some get me down. we want to hear how you are doing. i agree with greenmo, your first respionder, if they dont want to read or respond, they should just go on. why do people pop into our discussions with just negative things to say to us? I'll tell you why, cause some have such a crappy life them selves, it makes them feel good maybe to make us feel bad? only thing i can think. i dont understand it though. so, dont let a couple of people here get you down. keep on posting and ignore their negativity!
3 people like this
@GardenGerty (160491)
• United States
29 Mar 12
I just had one pop into one of my discussions and tell me off. . . I chalk that one up to immaturity. Not a person I see regularly. With all the people on here, I can pick who I spend time with, and I can choose not to take it personally when someone is rude. Maybe, in fact, I can be rude right back (I did not say that, did I?) I will not get into a flaming war, and I will choose to totally ignore rude comments, ususally.
1 person likes this
@Hatley (163776)
• Garden Grove, California
29 Mar 12
bunnybon don't listent to those kinds of people.ignore them listen to Garden Gerty and don't you dare leave here, do you hear? Ignore them and remember who your real friends are here on mylot please. I know they can really piss you off and that hurts,.but let them blabber away. As my son used to s ay they know not what they say, the jerks.
1 person likes this
@bunnybon7 (50973)
• Holiday, Florida
29 Mar 12
you are right GG, i have let myself get carried away with these way to many times. i need to do as you do and just ignore them when they say negative things. but as you know its very hard at times when they p#ss you off so badly. but im taking your advice now. at least i will give it my best try.
3 people like this
• United States
29 Mar 12
I think perhaps people do not understand what it is like to have a chronic condition. I also may be wrong but I think you sharing it with us here gives you a constructive way of dealing with it. It is part of doing what you can to get better.. so don't listen to them - they don't get it ... yet.
@KrauseHome (36448)
• United States
17 Apr 12
Yes, this is True... Unless someone has walked down our Paths with various Health issues, especially Diabetes how can they relate and be judgemental? I know there are a lot of them out there with it that think they are OK, but seriously until you have walked in someone else's shoes you need to be careful, because what if it was them someday?
1 person likes this
@Hatley (163776)
• Garden Grove, California
29 Mar 12
macdingolinger you are right on the button if they have not got diabetes they have no clue nor could care less unless they have a family member and then they do know what its like.I think if each person here with diabetes would open up and talk about it we could educate a lot of people and maybe even help steer someone into avoiding diabetes by telling them what the prime cause of diabetes 2 in people is from. you would never guess,it not too much sugar its too much fat on our bodies.they have learned the fat cells interfere with insulin's job of steering glucose into our muscle cells so the 'glucose instead ends up in the blood where it does a lot of damage to our bodies and a lot of people do not even know that they have it until some few clues lead them to go to their doctors.
2 people like this
• United States
17 Apr 12
This is very true. And while I do not know about diabetes I do know about caring for my son who has a brain injury. I hear lots of judgmental statements about handicapped people and such.. and I am like you just don't know!
1 person likes this
• United States
29 Mar 12
I feel that it is important for you to get your feelings out in the open. Randy is diabetic and he also has a serious foot condition called Charot's Foot and we both feel that one of the best medicines for him is to talk about his conditon. We are learning that unless people share the same experiences you do, most do not want to hear it. I know that my sister in law had sent me a nasty email back after I told her what was going on with Randy. Her email stated, "sorry Randy is sick, however it is unfair of you to expect me to quit my job, leave my husband and kids, to come out and help". First off I never asked for her help (and believe me she is the last person I would ask)and secondly, since she is family I actually thought she cared (obviously I was wrong). You should never hide your true feelings and it is important to share because it helps with the healing process.
3 people like this
@KrauseHome (36448)
• United States
14 Apr 12
Yes, unfortunately many times, people here, and via even people we might think in person care, and then the way they sometimes respond back to something really makes us wonder. I know many times even here people have not always responded and sounded helpful. It can be quite frustrating at times and really makes me wonder. But honestly I just let life go on, and hope for the Best from there.
@Hatley (163776)
• Garden Grove, California
29 Mar 12
hi randylovesdar yes it really does help and I also have diabetes too and a malformed foot but mine was from a ruptured tendon and a doctor who w as a quack and didnot know a ruptured tendon in the foot from a sprained ankle so now I walk with a brace. I have found through responding here to others there are a lot of diabetics here. but I did not know that until some did talk about their diabetes. talking about it does help and I have always respected Tina for being open and honest about her problems.Its too sad the way your sister responded to you.Family should care honestly.
2 people like this
• United States
29 Mar 12
I wouldn't say you should keep quiet; but what you can do is watch who you do vent to about your issues. You know for the most part which people who are in your every day life will act what way; you should make sure to vent only to those who will give you the most benefit in return. Try not to let on how bad you feel to those who will only give you silly advice that is unrelated, or those who think that you are simply complaining for attention. Editing whom you actually vent to will help you a lot.
1 person likes this
@1corner (744)
• Canada
29 Mar 12
Hi Tina, Not everyone responds this way. There are people who are keen on following up on your progress. Just direct your message to them, and ignore the ones who comment negatively. Obviously, there are those who haven't gone through what you have, so they find it easy to criticize. Been going through what you have myself, so I can understand. Take care.
2 people like this
@KrauseHome (36448)
• United States
9 May 12
Yes, it is so true when a person has never walked in your shoes, how can they really understand what you are going thru? I know personally that people need to think sometimes before acting or talking and realize what if it was you? Could you handle it so well? But that is a Great scripture to rely upon.
@1corner (744)
• Canada
29 Mar 12
Just to add, when things are really rough, remember Isaiah 26:3 "You will keep him in perfect peace whose mind is stayed on You, because he trusts in You." It's helped me tremendously, even when near impossible during painful times.
2 people like this
@Hatley (163776)
• Garden Grove, California
29 Mar 12
hi one corner that was one I needed a year ago when I pratted fell face down on the tile floor here.I really hurt my right leg. in pain and the first ER never thought to ask if I couuld stand on it. they x rayed every thing on that leg,no breaks send her home. so that night the paramedics had to literally carry me to my bed.so next morning our medical liaison person called my doctor and I was sent to the rehab hospital. that leg hurt so bad I screamed when they tried to get me to walk but after a lot of physical therapy my led healed. but I did a lot of praying and I guess that helped too.I fell because someone had spilled water on the tile and I did not see it and my feet went out from under me.people here still do not understand someone can fall from spilled water.they never fell s o they do not realize its very dangerous.the tile floor is heavily waxed too so its slippery when damp.
1 person likes this
@carmelanirel (20942)
• United States
29 Mar 12
I guess I haven't known you long enough to make that kind of judgment, I mean from the posts I have seen, mostly on your health, (at the moment I can't recall anything about your job, I don't even know what you do..lol)and I know a few people who deal with chronic pain, it isn't something you just take an aspirin for and move on, it is a daily challenge to get through the day. So if you have any updates, I would continue to let us know, some of us do care..
@KrauseHome (36448)
• United States
1 May 12
Thanks my friend for these kind words. I have shared a lot on here from time to time about my job, and some of the many situations that goes on there to where some have said things, plus some about my Health. It is not always easy, but I know one day I will wake up and a lot of it will be over, and I will have grown in spite of it.
1 person likes this
@Hatley (163776)
• Garden Grove, California
29 Mar 12
hi tina wow things are really getting to you. I have had times like that too. with me it seems at times like the kitchen staff like to make things really hard for all the diabetics here. they nade such an issue when I came here,hurting, scar ed,not wanting to live here and the last thing I needed to hear was we do not make diabetic meals here. o k a y got it. so I have to c ut back and sometimes refuse most of whats on my plate or else have high blood sugar which will m ess up my body..then other days we have mostly food that i can act ually eat all of it too. I do know what its like to ' be a diabetic too.but finally got the b umpy rash on my leg to clear up by using a certain prescription ointment I was given by the wound specialist. the only thing is ths bumpy stuff will be gone for say two months then it comes back. but this ointment does keep it from getting like it did before. now it does not make my leg swell and weep like it did that first time. Tina don't let some judgmental people here get you down. a lot of us have similar problems and we do and can feel for you. How can they say you are too judgmental or do not try to help yourself.The only way any one can truthfully judge another is to live in their shoes for a week.I doubt they would be coming down on you then. I know what a problem you have had getting that wound healed. so many do not realize that a diabetic's wounds take a long time to heal. I have a scab from a skinned knee and it has taken me weeks for it to get really small.My opinion is people here should not be criticizing you when they have no idea what its like to live with diabetes and fibromyalagia everyday.Chin up and realize things will get better in time.God really is Good but he works in his own time it seems like.
@KrauseHome (36448)
• United States
9 May 12
Thanks for these kind words my friend, and that is why this is such a Great place to come and be able to talk and share our thoughts and experiences. You never know though the words you say and how they really might impact someone, so when it is something that I do not really agree with or know anything about, the Best thing for me is to continue to keep quiet and in the end everything usually turns out Ok.
@KrauseHome (36448)
• United States
9 May 12
Thanks for these kind words my friend, and that is why this is such a Great place to come and be able to talk and share our thoughts and experiences. You never know though the words you say and how they really might impact someone, so when it is something that I do not really agree with or know anything about, the Best thing for me is to continue to keep quiet and in the end everything usually turns out Ok.
@ladym33 (10979)
• United States
29 Mar 12
I don't think you should stop talking about it. This is a good place to vent and a good place to get advice and such from other people. I think you need this outlet, there are always going to be people in every situation who are not kind, but sometimes people are blunt because they care perhaps some of the people are not trying to be critical but are actually trying to help by being blunt and outright honest, some people just don't know how to communicate those things in a way that does not sound mean, although they mean well. I do want to say that God is there to give us guidance and strength but it is us who have to change our own lives. The healthier you get the more your pain will go away. You do have a lot going on though and I do feel badly for you. I have diabetes my self and I fight it every day of my life. I am angry that I even have it but I am determined to beat it. My life is so much better now that I have taken control of my health.
@KrauseHome (36448)
• United States
4 May 12
I think personally for us as Diabetics, we have to be the ones more in control than sometimes our Doctors as there are very few Doctors out there anymore, unless Diabetes is their specialty. I really think anymore it is up to the individuals themselves to be proactive, and want to do something about their Health as well.
@Hatley (163776)
• Garden Grove, California
29 Mar 12
hi ladym I am also a diabetic and have been there and angry I had it but a diabetes educator made me think, we are still better off than some who have bad heart trouble or cancet. we need to be grateful that we do not have those. we can control our diabetes and live pretty normal lives and with our glu cometers and checking our blood sugar often we can really know what we can handle and what will shoot our blood sugar up. I have had type 2 since I was fifty and am now 85.yes b eing in control makes all the difference as we can sort of forget in between meals at least.
2 people like this
@ladym33 (10979)
• United States
30 Mar 12
Thank you Hatley it is nice to hear that someone with the disease is living a long and healthy life. It is true it is controllable but it is something we have to manage daily.
1 person likes this
@vandana7 (100127)
• India
29 Mar 12
I am all ears and eyes, and I have time to listen, time to share my experiences, and time to learn from yours. So out with it, even if it is a rant.
2 people like this
@KrauseHome (36448)
• United States
25 Apr 12
Thanks for sharing these feelings here. It has been a long journey with everything going on, and will be Glad when and if it ever decides to end.
@bunnybon7 (50973)
• Holiday, Florida
29 Mar 12
me also. i agree with you vandana!
3 people like this
• United States
29 Mar 12
Hi Tina! No don't keep quiet. This is a safe place to share your thoughts. Most people are familiar with type 2 and type 1, but they don't know about your type. They probably can't relate to your situation because they've never walked a mile in your shoes. You might get some judgmental comments but I think most people are supportive. Lifestyle change isn't going to magically make you better, because you don't have the type of diabetes that is most common among the fat and 40 crowd. I feel that you have a lot to share with the people here. If anyone doesn't want to read about it they can skip and go on to the next discussion. Take care my dear friend.
1 person likes this
@KrauseHome (36448)
• United States
13 May 12
Thanks for your comments and I do know what I go thru is not a normal Diabetic experience and not everyone would be able to handle things like I can. One of the main reasons I know I share and others here share their experiences with Health, etc. on here, is in hopes of being able to offer someone else some glimpse of hope when they go thru things, and sometimes just to get some other ideas on ways they can help themselves as well.
1 person likes this
@KrauseHome (36448)
• United States
18 May 12
Well personally my friend, there is so little known about my type of Diabetes, that most Doctors still think I am type 2, and can never relate with the Highs and Lows I experience all the time as a Diabetic. I hear people who think I drop too fast, and should be like them if they are 450, it should be 8 hrs. later they are in running about 125, when I have been told anything for very long of time over 200 will create problems. I have an apt. with a New endo as of next week, and waiting anxiously to see how they can help try and get everything more back in order for me. It will be nice to feel like someone actually knows something and can help instead of constantly frustrated.
1 person likes this
• United States
13 May 12
Yes, that is helpful Tina. I think also, you should talk more about your particular type of diabetes. Most people aren't even aware of your type. They think of just type 1, type 2, gestational and that's about it.. so it would help to discuss your type of diabetes more so that people understand it takes more than lifestyle changes to get better.
1 person likes this
@WakeUpKitty (8694)
• Netherlands
29 Mar 12
I have a big part of what you are mentioning and who knows what more (at least 3 different auto immune diseases). Fact is: if you have a chronic disease nobody is interested. This includes the doctor, family, friends etc. The longer you have it the less interesting it is. Mostly because you hide what you have (and in good times nobody will notice and they also get used to you having it). It won't help to complain because people do get tired of that, but also it's not ok for yourself. It will only make you more aware of what you have and the fact you can not handle it at the moment. So what to do? I try to be optimistic, and in very bad times I go to bed early, stay out of the way of people (since I can have a bad mood too if I am in a lot of pain). I don't think btw that people get tired of but more they don't know how to respond. If you give up on yourself others will do so too. So try to chear up yourself no matter how hard it will be. Try to pamper yourself in any way and don't be too hard on yourself. I know I am and there are times I can't stand my body not wanting what my always active, busy, creative mind wants. Its frustrating but by now I know I can't win this battle anyway. So it's better to enjoy, to find something to keep my mind busy and not focused on what I can't do.
2 people like this
@KrauseHome (36448)
• United States
4 May 12
Well, personally there are a lot of times I do keep quiet unless someone asks, but what bugs me is the people who tell you to be quiet, and they themselves are the ones making a Big deal about their Health, while at the same time doing everything against what their doctor is ordering and think that that is OK. It makes me really wonder. Maybe there are times I have talked a lot about what is going on in my life as in health in here, but thru the Trials and problems maybe I can help someone else become a little more aware of their problems as well and take care of themselves more.
• United States
16 Apr 12
I do find myself feeling the same way about some things going on in life though it's important to you, it may annoy others. I've found just keeping my lips zipped unless someone asks to be helpful. However, I know it's hard when you don't always have alot of people to talk about it or have walked in similar shoes to discuss daily aspects of things. I feel like I annoy people with my problems as well. But it seems many of us do that in various formats.
@MandaLee (3760)
• United States
28 Apr 12
Dear Tina, Just respond to discussions when you feel like it. We are here for you and understand completely. I will keep you in my prayers. I hope you feel better soon. Have a good weekend!
@JamesKYTan (1605)
• Malaysia
25 Apr 12
In myLot, there are many topics being discussed. If you like the topics then you response. If you dislike or have no idea on it then do not response. Of course it take all sorts of people to make the world. Some are good, they give good advice in the response. Some who are nasty, they criticize by tearing you down without thinking of your feelings. Constructive criticism however, is good as it is a advice which we can learn from. Nevertheless, destructive criticism can destroy a person life. So give good discussion in response. Cheers!
@cerebellum (3863)
• United States
30 Mar 12
Some people critize anything and everything. Don't take it to heart. Healthy people might not understand. They don't seem to understand what it is like to have health problems, and seem to think it is the disabled person's fault. Of course not all normal people are like this, but even the most compassionate person, doesn't know what it is like until it happens to them.
@ecaron (678)
• Canada
30 Mar 12
You're right!
@bounce58 (17387)
• Canada
5 Apr 12
Don't worry too much about what some people write in here. I know that for a handful that want to listen, read, and help you; there are even more who wouldn't relate, and may even be critical to all that you're going through. As people have the right to pick and choose which discussions they want to respond to, I think you also have the right to pick and choose which ones you should really understand (as opposed to the ones that you should just disregard).
• United States
4 May 12
NO one relates to you the way you want them to people will always let you down if you let them. So dont take it to hard try to take peices of their information and use it