hydrocephaus, cerebral palsy, adhd, oh my!
By asheets88
@asheets88 (124)
United States
July 24, 2012 9:46am CST
My Brothers story!
Lou was born on Jan 10, 2006. He gave momma the worst labor that she went thru. He was delivered twice. And the cord was wrapped around his neck. so not only did he have fluid on his brain but he was blue, daddy said he looked like a blue berry and his head felt like a water balloon. 3 days later he went under surgery for his 1st shunt Mclanahan didnt know what to think about him. He said we need to watch him carefully bc he honestly didnt know if my little brother was gonna make it or not. at 2 months he started goin to his eye doctor. said he had a little stignatism and he wanted to put glasses on him but since he was little he said it was to early. months he started seein his EIP : Stacy . She helped him get up to some potencial but he still wasnt rolling over. he scooted with ONE arm, he doesnt use his right arm. at 13 months he started goin to therapy over at touch stone therapy for PT. Then a few months later when a spot for OT came in he started it then. And then later on Speech. when Lou was 17 months old Sam was born we still wasnt gettin no where He had to be carried everywhere. His terriable 2s started coming in and lets not forget about his 15 month molars. He was wanting to start potty training then to. but he couldnt walk. so at 22 months His PT said lets put him in a leg brace to strengthen up his right leg and with in a week he started pulling up. with in 2 weeks he started takin baby steps in another 2 weeks he was walkin full speed, falling but he was walking. His therapist was proud and me and momma was proud. at age 3 he started school with Mrs. Charity and Miss. Mona at Child Development center. they wanted to put him in another brace so we got his pediatrictian to write a prescription for it. It said Cebral Right Hempistere on it. This is when we found out he had a touch of cebral Palsy. Dont know much about it but him not liking crowds and loving water so much made some since now. But everyone at CDC feel inlove with lou. They loved him they said he brightens their day. :) then Feb in 2009 Lou experienced the worst headache someone could get. He screamed for 15-20 mins straight he vomited clear watery puke. Called momma took em up to CMC and found out his shunt has gone out. hour later he was in emergency surgery to get his pain and get a new shunt in him. recovery went great came back home. Then in 4 months He had another episode. momma got home rushed him back up to the er. this time it wasnt that bad bc we caught it as soon as it was goin out. so the next morning he had another surgery. Recovery went great and they also put in a shunt assistance in to let it pump slower and not work so hard. So ya see Lou has been thru sooo much but he doesnt let anything get him down. you have to have patience and be gentle and love him everyday all day. Hes a 6 yr old with a mind of a 3 yr old. Alot of people dont understand him and alot of people looks at him thinkin gosh he needs some discipline but what they dont know is that hes not your average 6 yr old. Hes a special needs special special yr old. If you read this it'll mean alot so maybe next time you see a child that you think needs some discipline look at them 2 before you judge them. listen to the way they scream, their body frame and even how they talk, or in lous place the way the head is shaped. Some kids cant help how they act. Lou is a 6 yr old with hydrocephalus, cerebral palsy, limp in his right leg, dont use his right arm, has stigmatism and on top of all that He has ADHD. I thank God for my miraclle little brother I love you Loubird!
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