The Heartbreak of Aging Family
By alaskanray
@alaskanray (4636)
United States
August 17, 2012 11:30pm CST
I just received the news that my sister D has dementia. This is the one sister out of all my sisters that I have come to appreciate. She is the one who has been there to help me when I needed it. Her daughter posted on FB that D is going to have to be put into a nursing home now because she tends to act out and has caused some serious injuries, including breaking one lady's ribs in church.
This has really been a shock to me because D was always that sister I viewed as indestructible. I just realized that she's over 60 now and, even with dementia, she still has many years ahead of her. Her daughter has been taking care of her for the past year or so and it has only been a year ago that I saw her last. Even with the little quirks she exhibited then, I had no idea that it could be dementia so she has deteriorated fairly fast.
Her daughter said that she is unaware of her condition now...which is a blessing for her but is heartbreaking to see. I am especially concerned for her treatment in the nursing home. I have worked in nursing homes and have witnessed first-hand the abuse that the aides can be guilty of, especially when a patient is prone to acting out as my sister has shown herself to be.
My prayers are with her and her family, of course. She is living in Canada and their medical coverage is very good so the expense is not an issue. I just wish I could be there to help. I love my sister so much! Please keep us in your prayers, my friends.We could really use some angels right now.
3 people like this
19 responses
@coelenterata (188)
• Indonesia
18 Aug 12
i am sorry to hear that.dementia at the right age is an inevitable things.your sister is 60 now and who knows that she will get worse at her dementia so fast.i hope your sister will get better soon and that will needs the blessing for the God.good luck for you and your family
@alaskanray (4636)
• United States
18 Aug 12
Thank you for your kind wishes but dementia is not something one recovers from. It's basically the end stages of life which is why it is so hard to take.
1 person likes this
@Hatley (163776)
• Garden Grove, California
19 Aug 12
coelenterata I beg to differ. I am 85 and I still have all
my mental faculties,. I have an IQ of 140 which I am told is
above average. I have never had a stroke and I mylot all
day here since I am retired. I know a lot of other people my age who are mentally fit and not senile or demented.So no old age
does not necessarily mean you become senile at all.It is not
inevitable if a person keeps mentally healthy all their later
years
1 person likes this
@coelenterata (188)
• Indonesia
19 Aug 12
i am sorry hatley but in my opinion i am pretty sure that all the old age eventually will have dementia but the severe is vary.if we look the pathophysiology of dementia then we will understand why it can be happened but i also know dementia not for just older people.i know you are health physically and mentally but i believed you will not be the same as your younger day at everything.i am sorry i do not mean to offended you it is just my opinion.have a nice day hatley take care :)
1 person likes this
@Cutie18f (9546)
• Philippines
19 Aug 12
That is so scary. I wonder how dementia occurs on people. What are the ways to avoid it? Sixty is still young. I know a lot of people who are in their 80's and are quite healthy mentally and physically. I hope your sister will be in her normal state again.
@Hatley (163776)
• Garden Grove, California
19 Aug 12
alaskanray I am so sorry about your sister and hope they might at least slow it down a bit my roomie has it too and I have had to
increasingly act as a sister to her seeing she does not miss meals and doctors appts and just answering her questions.she never knows the date or the year so I help her.it comes naturally as I worked all my working years as a nurse's aide.
1 person likes this
@alaskanray (4636)
• United States
19 Aug 12
I suspect that my sister has had some (what they call) mini-strokes. She reported to me that she had been having dizzy spells. Many things can cause dementia including atherosclerosis, stroke, alzheimer's...but it is not something that one recovers from. It's a deterioration and people with dementia never regain their full faculties.
1 person likes this
@AmbiePam (93739)
• United States
11 Sep 12
Oh I will DEFINITELY say a prayer for your family. My mom is 53 and is deep in her state of dementia. My dad is doing his best of keeping her living with him, but I don't know how long he can. She's had it for about 5 years, but in the last three it's gotten really bad.
1 person likes this
@alaskanray (4636)
• United States
18 Aug 12
Thank you for the kind thoughts, Cher. My mom was having some problems with her memory due to some strokes and atherosclerosis but she was never in what you could call serious dementia, which is what my sister has. We as a family have always been grateful for that. This is really hitting us hard, though.
1 person likes this
@jaiho2009 (39141)
• Philippines
18 Aug 12
This could be one of the most heart-breaking event in everyone's life- seeing/watching our loved ones suffering illness.
I have seen my grandma dying in her bed and that was a nightmare
@NailTech (6874)
• United States
19 Aug 12
Wow, ys that has to be one of the most illnesses to aquire in one's old age. I think a nursing home has to be imminent for her if she resorts to inflicting injuries on people. I took care of my grand mother for 9 years (on and off but mostly on with a few or so break sin between and alittle help from a few others but not alot of the stressful stuff) with it and let me tell you when the cops had to be called in she was really gone too far. I had accidentally scratched her while in a scuffle over keys, she wanted to go out of the house at night late. Then the other ladyfriend of hers who helped her on occasion heard her sob story and called the cops on me! Mygrandmother was acting like I did it on purpose or something. It was not true that I even hurt her at all cause she was actually injuring herself when I thought I had accidentally did it with my fingernail (on her arm)at the time. She continued to injure herself in the nursing home after her stroke shortly after the cops were called, and I couldn't take care of her at home anymore. They can be a danger to themself as well as others. I will keep your sister in my prayers and hope she will be at peace in the nursing home. I'm glad the cost isn't an issue.
2 people like this
@Hatley (163776)
• Garden Grove, California
19 Aug 12
hi nailtech I am so glad my roomie has not got to that stage, she is sweet but confused and Ihave to guide her to meals tell her the dat e each day. hers is mostly not remembering anything and having to tell her the same things every day. it comes naturally to me as all my wo rking years I spent as a nurses aide.
1 person likes this
@alaskanray (4636)
• United States
19 Aug 12
Thank you, NailTech. There really isn't a whole lot I can do from Oregon other than pray that she is treated with understanding and compassion. If I could, I would gladly take her on here. But her kids are stepping up and taking good care of their mother. She really has some wonderful daughters.
@sid556 (30959)
• United States
20 Aug 12
I am so sorry to hear about your sister. {{{HUGS}}}. I know that dementia is a very hard thing for family to live with. My mom did not have dimentia but the meds they gave her were so strong that she may as well have had it...she was not in her right mind at all towards the end. My brothers and I took care of her and I would not wish that upon anyone! My mother who didn't even drink wanted us to go buy her pot!! And then threatened to go downtown in search of it herself!!. I will definitly pray for your sister and all of you who love her! I have heard of so much abuse in these nursing homes also and stealing of the meds. etc. I'm very surprised that they don't have cameras in the rooms. I suppose they can't because of the patients privacy but nurses are in and out all the time and they help dress and bathe them etc. How much privacy do they get anyway?
1 person likes this
@alaskanray (4636)
• United States
20 Aug 12
Oh, I know what you mean. They really should have cameras but because of all that falderall about privacy they don't. It's ridiculous because the aides end up getting away with all sorts of things because of it...and the only possible way to truly police them is with cameras. Kind of a catch 22.
I told my daughter never to put me in one of those places and I will go off into the wilderness and let the animals eat me before I will go to a nursing home!
@Hatley (163776)
• Garden Grove, California
19 Aug 12
hi alaskanray I am so sorry about your sister and she's still so young too,I know what you mean about nursing homes as I worked
out of a nurses registry and was sent to a lot of nursing homes,.
Some were really excellent but short of workers while others
were horrible with a lot of patient abuse.i will send all the pray ers I can to yo u and your sister hoping she will get better or at least be in a good nursing home. I hope one day they can discover why some fairly young women become demented. I am glad at least yo u can get better health care there than here in the US,. we should all be ashamed of our horribly exoensive'health insurances. blessings and I will keep praying for yo u all,
@alaskanray (4636)
• United States
19 Aug 12
You are so right, Hatley. It is the patient abuse that worries me the most because they are able to manipulate things so much that it's so easy to cover up those things. I, too, pray that she is treated with compassion at all times. It is not easy when a patient acts out like that and my sister is physically very strong and she is unaware of the power she puts into her punches and slaps and pokes so when someone gets injured she is either surprised or doesn't believe they are really injured and thinks it's funny. It's very hard to deal with and people who are hired to deal with people like her don't always have adequate training and they can very easily get frustrated which is where the abuse comes in because they are in self-defense mode so they don't see it as abuse.
@Shellyann36 (11384)
• United States
21 Aug 12
So sorry to hear about your sister. Prayers for you and your family. I know how hard it is to lose a family member to this disease. My Granny had this and we watched her go down hill for years. The family looked after her for as long as we could.
After ten years of her living with us she fell and broke her hip. After that she did not last too long. She was so frail and just a husk of her former self in that nursing home. In many ways I wish she would have went quickly instead of lingering in that state for years. It was very disheartening to watch. Bless your family.
1 person likes this
@alaskanray (4636)
• United States
21 Aug 12
Thank you, Shellyann. Yes, I have always been grateful that my mother never got dementia. It was a mercy when she passed on as it was as much pain she was in but she was still with us to the end.
I just wish I could go visit my sister. She's in Canada, though, and I'm stuck in Oregon so I can only pray for her.
@oXAquaXo (607)
• United States
19 Aug 12
Thank goodness she lives in Canada, haha. Health coverage should be excellent there.
I remember the times I used to have with my grandma. She was such an important person in my life, and we would always spend a ton of time together, cooking wontons, making little crafts, tending the garden, and reading books. In a blink of an eye, ten years had passed, and she was getting old. She used to be so smart and clever, but it was clear her mental capacity was diminishing, and I was so sad. I still spent time with her, but it just wasn't the same.
Cherish the time you have with your loved ones. I'm still glad my grandma is here, and we still have some great times together.
~ Annie
1 person likes this
@alaskanray (4636)
• United States
19 Aug 12
I'm glad you can still have times with your grandma. I'm afraid I may never see my sister again.
@lelin1123 (15595)
• Puerto Rico
21 Aug 12
To be over 60 and dealing with dementia has to be so hard on the family. That to me is still very young in todays standards. How sad and to know she is going into a nursing home has to be even more devastating. I will definitely keep her and your family in my prays. God Bless!
1 person likes this
@RitterSport (2451)
• Lippstadt, Germany
20 Aug 12
Poor Rayda I feel for you as I know the relationship to your other sisters is not easy.
I guess its a little comforting to know she is not aware of what she does any more so thats really a blessing plus its a blessing that money is not an issue for her daughter as real good care can be afforded for her.
hugs
1 person likes this
@manduri20 (108)
• Uganda
18 Aug 12
May God be with you cause that is so sad my dear
1 person likes this
@sunshinefame (287)
• Philippines
18 Aug 12
I will pray for your sister that she will be treated well with compasion and love by her nursingI aid. I understand that its hard to take care of the sick and old age, but they must be love and cared after all we are all going to this stage also. It's really heartbreaking to see the sick loved ones I experienced this with my grandmother luckily my mother take care of her until her last day Moms brother and sister lives far away. And for me I felt the pain and agony of my late husband who was sick for almost three years, draining our finances but no regrets because love and care was given to him. GOD please take care of our sick love ones. Heal them please and lighten their pains. Amen.
@alaskanray (4636)
• United States
18 Aug 12
Thank you for your kind wishes, my friend. It is hard on me because I am not there and cannot be a presence in the nursing home to make sure she is treated kindly. I did caution her daughter to make sure she is a strong presence there and hope she will heed my warning. Thank you again for your prayers.
@GemmaR (8517)
•
18 Aug 12
I am very sorry to hear that your sister has dementia, and I imagine that this is something that you're finding very hard to deal with. It can be hard to see when things go wrong in our family, because it is scary that it is so close to home when you're normally only used to seeing these things happen to other people from other places. It is important that you are supported through this by your friends as it is going to be just as hard for you as it is for the rest of your family. Take care of yourself, and try not to let the stress of the situation get to you too much.
1 person likes this
@louievill (28851)
• Philippines
18 Aug 12
Count me in as one who would be saying prayers for you friend and your family
1 person likes this
@alaskanray (4636)
• United States
18 Aug 12
Thank you, Louie. I knew I could count on you, my friend. Hugs back.
@natliegleb (5175)
• India
18 Aug 12
we need comfort and good suggestion,positive vibes at this time and hope everything is fine and the patient has to feel good. i will also pray with you and i always hope that best only happens to you always and life will be back to normal
@deazil (4730)
• United States
18 Aug 12
I am very sorry to hear this, aray. It is one of the unavoidable tragedies of old age. Although your sister, being only in her 60's (?) is a little young, I think for this. I have a friend whose mother had to go to a nursing home. After a few days she became violent, threatening people with her cane. She hit her roommate twice. So she was put in the psychiatric ward of the hospital. Now she is biting and hitting people (or trying to) and dropping the F-bomb every time she opens her mouth. At times they have to use bed restraints. She may not be able to go back to the nursing home. It is a very good home. My experience with nursing homes has been that the ones run by religious groups seem to be very good. You don't have to be of the particular religion to be a resident. The one this woman was in is run by a monastery and is a very beautiful place. My mother was in a Jewish nursing home and was very well cared for. Another friend's mother was in a Catholic one and the nuns took very good care of the patients. My experience with state run or large corporate run homes is the exact opposite. Horrible places, as you know from first hand experience. My sister is 74 and lives in Wisconsin, I'm in Mass. I worry about her. She's all I have besides my brother, who I hardly ever see. I have no other family to speak of. My sister is fine now and works, etc. I can only imagine how you must feel. I will pray for your sister and for you to have the strength to deal with this. It is devastating news that you've received.
1 person likes this
@alaskanray (4636)
• United States
18 Aug 12
Thank you very much for your kind words, my friend. I appreciate your prayers and kind wishes. God bless you.
@bdfreelancer (518)
•
18 Aug 12
It is always difficult to accept severe illness that our loved and near ones suffer from. It is good for your sister that she is not aware of her condition. I do not know if her age has anything to do with the fast deterioration of her general conditions. I pray so that she continues to improve and put smile on your face.
@alaskanray (4636)
• United States
18 Aug 12
It is so hard because she is in Canada and I'm here in Oregon. She's so far away and I want so much to help with her but can't. That is the hardest part, I think.