What to do...

United States
November 13, 2012 9:54am CST
Just a few weeks ago my brother announced that he was hosting Thanksgiving at his house this year. Everyone all chimed in and was so excited and thought it was a great idea! Except me. I said nothing. My son is in a wheelchair and my brother's house is an older trailer house which has a porch that is accessed by going up 5 wooden steps. I cannot get my son in my brother's house. I could pay a sitter to sit with my son so I could go ahead and attend but I don't want to ask someone else to be away from their family on the holiday. I think I will just stay home. What would you do in this situation? Am I wrong to feel a little bit hurt that the family does not try to make accommodations for my situation?
4 people like this
14 responses
@celticeagle (168269)
• Boise, Idaho
13 Nov 12
Is your son too big to be carried? Couldn't some of the men coming carry him up the four steps and set him in a comfortable chair that has been prepared for him? I wouldn't make my son feel like a leper and would find a way to be able to go. THis is a family event and surely they can all come together to help your son feel welcome and get into this trailer house.
@celticeagle (168269)
• Boise, Idaho
13 Nov 12
He could cook and bring all the stuff over to your house too. I mean if theres a will there is a way!
1 person likes this
• United States
13 Nov 12
My son only weighs 150 pounds but I am not sure he can be carried. The chair weighs 80. The guys all have had surgery or need surgery - my brother's knee is bad and one BIL had back surgery the other needs surgery on his shoulder... it would be me and my little sister.. don't see that happening! lol... we'll see as it gets closer if anyone else has any ideas about how it might work!thanks!
1 person likes this
• United States
13 Nov 12
This is true - except my house is very small. Which is really a problem since my family is sort of large. My brother has 4 little kids plus 3 grown kids. My mother mentioned today that he was maybe going to look at how we could get him in - we'll see he has never come up with an idea before.
1 person likes this
@Thoroughrob (11742)
• United States
13 Nov 12
Sometimes people do not think. I would call and tell them that I will not be attending because of the obstacles that they have. You may be surprised that they have figured out a way to get him in. I have stayed home many a time, due to the fact of the obstacles, we have Thanksgiving here, for the same reason. My parents house is just no meant for a wheelchair. I do know how you feel.
1 person likes this
• United States
13 Nov 12
Thanks for the insight! My parents built a ramp at there house just so I could bring my son down there. And I can get him in my sister's house relatively easy. My mom told me that my brother might try to build some sort of ramp but so far nothing.. we'll see.thanks
@Thoroughrob (11742)
• United States
13 Nov 12
How is your son doing? It has been a while since I talked to you. I hope you both are well. I hope when you talk to your brother, they figured out something.
1 person likes this
• United States
13 Nov 12
Hi, Rob! My son is actually doing very well. He has spent the last year kind of waking up more. At this time he is much more engaged, eating lots more everyday and beginning to regain mobility a little piece at a time. He is progressing nicely. Thank you so much for asking!
@AmbiePam (93898)
• United States
13 Nov 12
I would tell them your difficulty. Maybe they'll make a change in venue or maybe they'll come up with a solution to get your son in their trailer. But definitely tell them your predicament.
1 person likes this
@AmbiePam (93898)
• United States
14 Nov 12
This ticks me off. Is there someone in your family you could mention it to, and that person knock some sense into your brother?
• United States
13 Nov 12
My brother knows my situation very well and we have had this problem in the past. He is aware that I cannot get my son in his house unless he makes some sort of arrangements. As far as I know he has not done that - but i may call later to see if he has figured out some way. I do not think there is a way - but I would like to see my family care enough to try!
1 person likes this
@lelin1123 (15595)
• Puerto Rico
15 Nov 12
I agree I wouldn't want to ask someone to sit with him. The family can't get together to carry the wheelchair up the 5 wooden steps. Does the wheelchair fit through the door or not? If not can someone carry him into the house and bring the folded wheelchair inside after him? Or just carry him in the house and leave the wheelchair in the car. That would be a shame for both of you to miss being with family on Thanksgiving Day all because of your son being in a wheelchair. There has to be a way that you can both be there.
1 person likes this
@lelin1123 (15595)
• Puerto Rico
16 Nov 12
Oh I see! Well I'm happy that you will both still be going there. I hope you enjoy and have a wonderful Thanksgiving. God Bless!
• United States
16 Nov 12
Son in chair - This is the large sized chair I cannot just carry in. It weighs 80 pounds alone!
My brother said he had "helpers" to get my son in the house. The trouble is that he is not in a small chair. It does not fold up. His chair alone ways 80 pounds. I'll attach a picture - that's the problem is his chair is heavier than most. My son cannot just be carried in as he weighs 150 pounds and has some physical limitations that make that difficult. I am going up there no matter what - since the weather is nice my son and i are going to stay outside!
1 person likes this
@rubyroy (824)
• India
14 Nov 12
I know the difficulty of surmounting our problems.Family and friends have their share of difficulty,and our difficulties are in our hand to deal with.These situations we feel a little disappointed,but when I feel like that I read the bible verse in John1(16),his grace is enough to overcome our situations of sorrow and disappointments.Give this matter into the hand of our god, and he will definitely show us a way to solve our difficulties.Pray with faith to open a way..
• United States
14 Nov 12
This is true - and He does give us the grace to sustain us as we walk through the difficult times in life. Thanks for the reminder and help to refocus on what is important and not worry about the disappointment!
• United States
14 Nov 12
When people aren't dealing with accessibility issues on a daily basis, they often forget about them. It's okay to feel a bit hurt, but you should also speak up and ask them to help you think of some ways to accommodate your situation. Your son shouldn't have to feel like he is a burden and should be allowed to celebrate the holiday with family.
1 person likes this
• United States
14 Nov 12
Hi! I will probably make a call to see if he has made any arrangements (but I shouldn't have to!) And I may watch the weather and go on up and just stay outside..thinking seriously about that option!
@p1kef1sh (45681)
13 Nov 12
Can you not make a ramp or even with help carry the wheelchair up the steps? I would not have thought that steps alone are a reason for you both not to go to the dinner.
1 person likes this
• United States
13 Nov 12
He has 5 wooden steeps which are very steep. The chair weighs 80 pounds alone - it is sizeable as it is a tilt-in-space chair. And my son weighs 150 pounds. My sister and I would be the only ones who could do it and I am not sure we are strong enough - it's also not worth the risk of dropping my son and injuring him by trying something unsafe...
@sjvenden27 (1840)
• United States
13 Nov 12
First of all I am sorry that you are in this situation.. I would be upset too.. It does sound like no one thought about your son.. I personally would not want to leave either one of my children alone with a sitter during the hoildays.. Have you told anyone in your family your concerns? I am not sure who all will be attending but is there a way for some other family members to come out when you arrive with your son and help him into the house by carrying him and then setting up the wheel chair in the house.. Or setting up some sturdy boards that you can push him up? I have no idea what your brothers outside looks like so I am just shooting a couple ideas in the dark.. But in the end if your son wasnt able to attend and you really do not want to go without him; then I would just tell your family members that you will not be able to make it this year.. And hopefully other arrangements can be made for Christmas (if you celebrate it) so then you both can attend without any issue.. Even though they are your family; it is easy to forget about a detail with one family member.. Why? They are not there every day having to face the challenges that are present with someone that is bound to a wheel chair.. I hope something can be worked out for you.. I hope you have a great Thankgiving.
1 person likes this
• United States
13 Nov 12
It would be up to my sister and I to lift my son and his chair and that's not going to happen. The chair weighs nearly 80 pounds and my son is 150. They all know I cannot get him in the house or my brother would not have made the comment about trying to figure something out. We usually have things at my sister's house because it is large and we have a way to get him in - it's just one step up there. I am planning right now on telling them I will be having Thanksgiving at home with my son. The steps are very steep so I am just not sure how it might work. Thanks for your ideas!! Have a wonderful Thanksgiving!
@millertime (1394)
• United States
13 Nov 12
It's a shame they didn't take your son's situation into account when they made their decision. If it was me, I would flat out ask him if he plans on building a ramp or accommodating your son's needs in some way. The easiest and most inexpensive way would be to build a ramp out of wood but there are other options available too. One is a portable ramp. You might even think about investing in one of these for future use. They are kind of expensive but you may get a lot of use out of it. Here are a couple of links to check out: http://www.portable-wheelchair-ramps.com/ http://www.discountramps.com/handicap_ramp.htm I hope you can find a solution to the problem so everyone in the family can have an enjoyable holiday season.
• United States
13 Nov 12
Thanks for your input! I may need to check out a portable ramp for future use, however after I get my son and his chair in the car there is literally no more room for anything like that. I will maybe ask him before it gets too much closer, but this has actually happened before so I will most likely hope for bad weather so I will have a good excuse to just stay home! lol!
• Philippines
13 Nov 12
hi mac, This event can be held outside the house like in the garden if it possible and if the weather will permit that will be more convenient since he is the host he must figure out something that might help his guest to come specially that it was his nephew. hope you can attend the Thanksgiving along with your son happy mylotting
1 person likes this
• United States
13 Nov 12
I hope to go - I don't think they would have it outside. It is possible that the weather could be nice, but I cannot plan on that. If the weather is nice that day I guess I could go and my son and I could sit outside while everyone else is in the house...it is usually too cold here by then. The weather has already turned cooler and we never know what it might be like a week down the road. It may be very warm and it may be an ice storm! I will have Thanksgiving here with my son and friend at least if I cannot find a way to get him to my brother's house.
• China
17 Nov 12
If you ask me,your son and you may as well as attend the family feast your brother will give.It is a goldren opportunity where your whole family will reunion.If so,You son will certainly be happy, because he has seldom been in such an occasion.As for wooden steps,I don't know if there is a person who are able to carry your son on his back and enter your brother's house.Sorry,I am not clear what condition your son is in now.
• United States
13 Nov 12
I think your family should take into consideration the fact that you have a son in a wheelchair. Is there any way to get him up the steps if people tried to carry the wheelchair up the steps? It would be sad for you to get someone to watch him while you go to the dinner and have him left behind on Thanksgiving. Is there any way you can bring this up to your family and see if they have any suggestions on what to do?
1 person likes this
• United States
13 Nov 12
my mom swears my brother is going to get something set up but unless I hear from him i will not plan on going. The steps are too steep and my son's chair weighs 80 pounds. My son weighs another 150 so that's pretty heavy to try to carry.. not really feasible because of how the chair is designed...
@doroffee (4222)
• Hungary
13 Nov 12
If I could afford it, and it could be done, I would pay for strong people to lift your son up and into the house (and then back)... otherwise I probably wouldn't go, because your son is a also a part of the family, and I wouldn't want to celebrate such an important holiday without my child. You could also tell your concerns and complaints to your family. Maybe they just didn't think it over, and after you speak with them, they are going to come up with ideas, who knows.
1 person likes this
• United States
13 Nov 12
They already know as this has come up before. I could pay someone to help but I usually have to pay $10 an hour - that would be an hour drive up and then how ever many hours in between and then an hour back home. I am not sure it would be all that safe either. The chair weighs almost 80 pounds by itself and it is kinda bulky. It's not a normal chair it's a tilt-n-space chair.
• United States
13 Nov 12
Before spending Thanksgiving away from family, I would hope that you will have had an opportunity to talk to your family members to find out if the accommodations have been made. I know that I am more aware of the needs you and your son may have because I work in long term care. But I can assure you that before I started in my career, I would have been totally in the dark. I would have hosted an event, invited you to participate, and if you didn't communicate to me the specific needs of access, special diet, and perhaps a quiet place to take a breather...I would not have had a clue. No one, absolutely no one, but another caregiver like yourself will know your financial, physical, emotional, and spiritual needs and those of your son unless they have walked a mile or more in your shoes. Am praying that it all works out so you can be with family for the holidy.
• United States
13 Nov 12
My mother keeps assuring me that my brother is going to come up with an idea. My brother has not talked to me about it as of today and the holiday is only a week away. I will probably call him later this week to see if he has even tried to come up with an idea. But I am really content to just stay here with my son -and hang out with friends. Before I became a caregiver I actually had no idea either! I was just at a friend's house this weekend and they had prepared their house to be conducive for the use of wheelchairs (wide doors, tile floors) but they forgot about how to get them in there. I found that very funny rather than offensive. It was purely not being around people in chairs and at least they made an attempt when they built their house! i don't blame people who really do not understand.. but my brother knows - and has been to my house 1 whole time since I have been in Oklahoma the last 3 years...and has NEVER even helped me transfer Chris one time... so even though I will talk to him - I do not expect too much!