Does anyone else here have gout?

@dragon54u (31634)
United States
March 30, 2013 7:34am CST
I suffered for nearly a year with increasing pain in my hip and leg and finally, after it took 3 days for my doctor to call me back, I fired my doctor and went to another one. His diagnosis was a surprise to me! I thought gout attacked people who ate rich foods and partied a lot, but it turns out I do have some risk factors for it and I also was drinking more than I should. Now I'm on some medicine to help with the pain and reduce the crystal deposits that have settled into my hip and knee joints. It's not really working that well. My pain is better but constant. I'm changing my diet and habits this past week and I hope that will also help. If you have gout anywhere in your body (I never knew it could settle anywhere but the feet), do you have any advice to help with the pain? I was misdiagnosed for nearly a year so this is not an acute attack. I'm so afraid it will be a chronic condition and I'll be in pain the rest of my life. Any advice?
4 people like this
11 responses
@jenny1015 (13366)
• Philippines
1 Apr 13
My husband has the same medical condition. And it is brought about by high uric acid. He incidentally is also a stone-former. So the reason why he has gout is obviously because of not being stricter with the kind of food that he eats. Maybe the best is to eat in moderation or completely avoid food that will result to having gout.
2 people like this
@GardenGerty (160879)
• United States
1 Apr 13
Dragon, if you have stopped drinking you have cut out a lot of calories that go to belly fat right there. I had a friend who went on a special fad diet that did have some good points. For that diet she used balsamic vinegar for salad dressing. Mixed it with olive oil and a few drops of liquid Stevia. None of this is cheap but it goes a long way. Stevia is a great sweetener and is not artificial.
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@dragon54u (31634)
• United States
3 Apr 13
I tried oil and vinegar once and could not even get myself to pour it on my salad. The thought of eating oil disgusts me so much I feel nauseous. But I did not know that Stevia is not artificial and it's good to know--everything I've read says to avoid artificial sweeteners and I've thrown all mine away so I will get some Stevia. Thank you!
@wolfie34 (26771)
• United Kingdom
2 Apr 13
Doesn't gout affect the big toe? I remember when I was watching Laurel and Hardy, and poor Oliver Hardy had gout, and he had a massive plaster on his foot, and was told to rest. I looked it up and you may find this article useful my friend. http://uk.answers.yahoo.com/question/index?qid=20061022093753AApLNyb (not a referral link)
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@wolfie34 (26771)
• United Kingdom
2 Apr 13
Please don't apologize, you have every right to whine, and I didn't view it as such either, and if you can't let off steam here and offload, where can you? You have always been so supportive of me, If I could pray and wish the pain away for you I would. My neighbour swears by celery, have you tried/like celery? Apparently it's supposed to help against inflammation.
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@dragon54u (31634)
• United States
2 Apr 13
Yes, it usually manifests in the toe or foot but it can be in any joint--the knees, the hands, elbows, etc. In my case it is in my left hip and knee. It's actually called, in my case, gouty arthritis. Those uric acid crystals have been building for years, diagnosed as plain old arthritis, so it might be a chronic condition I have to live with. I've studied it this past week and cut out meats, studied which foods have low purine (that make uric acid) and I'm drinking cherry juice, cranberry juice, taking bromelain, cod liver oil extract, vitamin C and a bunch of other measures. So far, not much progress but I guess it will take time to dissolve and the inflammation go down. I'm so tired, I don't sleep long until it wakes me up. I'm so miserable I wish I could just die and get it over with. Sorry to whine, it's just getting to me today.
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@dragon54u (31634)
• United States
3 Apr 13
Thank you Wolfie, prayers do make a difference and that means a lot to me. I have been eating a lot of celery and looking for celery seed as that's supposed to help. Eating cherries, blueberries, taking cod liver oil capsules and other natural stuff like bilberry that is supposed to help. I know if I give it time and keep to a strict diet that the crystal will eventually dissolve and I'll feel better. I just have to make it till then. It's good to know I have the support of friends to motivate me!
@GardenGerty (160879)
• United States
30 Mar 13
I know diet is the way to help it. I have heard that sour cherries are very beneficial for the pain and swelling. I believe eleven a day is the suggested "serving" I know that you can get a cherry syrup in the health food section of stores. I also get dried cherries in the dried food section. I am afraid that is all I can offer in the way of help.
@GardenGerty (160879)
• United States
30 Mar 13
Someone on here said she got the cherry juice concentrate and it relaxed her so much it made her sleepy. You could get the ones dipped in dark chocolate. . . defeats the weight loss purpose, I guess. Try making salad dressings with your apple cider vinegar.
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@dragon54u (31634)
• United States
1 Apr 13
That's a good idea, mixing vinegar with salad dressing. I'll try it when I start eating more salads this summer. The problem is that artificial sweeteners aggravate gout so that means high calories, regular dressings. I guess I'll have to be very careful about how much I use--no more liberal portions of 15-45 calories per tablespoon dressing!
@dragon54u (31634)
• United States
30 Mar 13
I have heard that and it is on my list of things to get. I did not think of dried cherries and that's a big help--I don't like cherries, they are so sour, and dried cherries will taste a lot better. Another thing is apple cider vinegar. I drank some last night and thought I would barf everything I'd eaten!! Today I tried it with honey and baking soda and it was actually quite good. You know, they recommend weight loss if you're overweight and I need to lose some weight. But man, with all the carbs and fruits that's a lot of calories!! Especially when I can't walk it off--it's beyond painful to even move around my house. I guess I will have to watch the portions and measure out half portions, being careful to get at least 1400 calories a day so my body doesn't think it's starving and start hoarding fat and eating muscle. I do know that at least I will be the picture of health and my heart will be in better shape with a vegetarian diet!
1 person likes this
@ElicBxn (63638)
• United States
7 Apr 13
I had a friend who had gout. I'm not sure where she had it, but I do know she wasn't taking care of herself, even after she started taking the meds - she sure didn't change her diet!
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@bunnybon7 (50973)
• Holiday, Florida
30 Mar 13
omg, dear friend. i was reading through comments as i dont know much about this either. i sure hope the meds help im rooting for you. doctors sometimes can be worthless. then we finally find one that cares. ive been like that with my old doc. finally found one that wants to help, then, now i have hardly ever a ride to get there poor dogs. they can have so much sypathy for us. coco also seems to know when im hurting and often hangs with me through it all. i hope their mommy will be right as rain soon. hugs, bon
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@dragon54u (31634)
• United States
30 Mar 13
I didn't look at the x-rays, which shows you how bad it was then. I'm usually all over all the tests and images but I just wanted something for it, some kind of relief. I'll ask him next time I talk to him. I have little doubt that it's gout because up until a few months ago I was a regular drinker. Two or three a day doesn't seem like much but when I read about how gout works and what affects it, I'm astonished I didn't develop this before. People definitely don't realize how much damage it can do, I know I didn't. Glad you found a good doc! I was just wishing the day before I saw this one that I could find someone like the one I had in Arizona and I think I just did. It makes everything so much better and recovery faster when you have someone who treats you as an adult and tells you everything plainly and doesn't hold back.
@bunnybon7 (50973)
• Holiday, Florida
30 Mar 13
btw, it sounds a lot like bursitis. which my old doctor said i have. does the crystals show as a lump?
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@RitterSport (2451)
• Lippstadt, Germany
17 Apr 13
hi dear dragon just wanted to ask how you are doing with that diet change. Hope the meds help you too. I dont suffer from gout but I am diabetic and thats also not easy to live with sometimes.......
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@dragon54u (31634)
• United States
17 Apr 13
Diabetes is horrible, from what I've heard--the complications are far worse than with gout or most other diseases so I hope you have it under control. I was speaking to a screener in a medical study a couple of days ago and mentioned that I'd drastically altered my diet. She said a friend of her has diabetes and the doctor was talking to her about what she could eat and he said, "if you put it in your mouth and it tastes good, spit it out!" I laughed but when I thought about it later I was sad thinking of all the restrictions of a diabetic diet. I didn't feel so bad about mine, then. I'm better as long as I pay attention and take my generic Motrin on a strict schedule. The anti-inflammatory I was prescribed twice a day needs a little boost or I have a lot of misery. I'm angry that my previous doctor's staff misdiagnosed me but nothing in my lifestyle indicated gout, nor did my family's medical history. Thanks for asking about me! I'm doing better and my weight is dropping slowly, too, which is an extra benefit, if you could say a disease has benefits!
• Lippstadt, Germany
17 Apr 13
dear friend, when I was diagnosed in 2006, newly married at that time, I was devastated first but my diabetes is only slight and I have it under control with taking meds and recently, walking more. So I dont need to be so afraid of the complications. I have changed my meds too to stuff which works much better after 7 years on the same old meds so I am a happy camper and my doctor is astonished cause the morning glucose drops to where it should be. Great you are doing better.
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@KrauseHome (36447)
• United States
19 Apr 13
Personally, when it comes to health issues, I think that there are many doctors now a days who do not know what some of these diseases are and unless they send you to another doctor or two they never believe something you might even suspect is wrong with you. And then they think all medications out there will work well for everyone and they have to experiment even when you tell them something else is wrong or not working. Makes me wonder what it is going to take, and sometimes miss the good old days where it only took one doctor and you knew you could count on them. Hope things are going better.
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@dragon54u (31634)
• United States
19 Apr 13
I have not ever met that doctor. From the first they assigned me a PA to take care of me. I rarely used the services than a year ago my "arthritis" got really bad and the PA recommended more movement, weight loss, and Motrin. When it became unbearable she said the same thing, no tests or anything. Based on my weight and my age she assumed it was arthritis and I really resent that. She prescribed something for the pain and when that did not work I called in. It took them 3 days and 4 calls from me to call me back! Naturally, I changed doctors and thank God I got one that cared to take the time to properly diagnose me. I think older people suffer from prejudice from medical personnel. If our hair is grey they assume arthritis or some other age related malady. If we are overweight they think they have found the cause of whatever is wrong with us. I'm angry about this and when I sent in payment for their last charge I included a note saying I would never be back or recommend them because they misdiagnosed me due to laziness or ignorance or both. On the check I wrote in the note section "for sub-standard medical services". It took awhile but I'm not in agony 24/7 anymore and the pain is down to being bearable. I hope it continues to improve. I've made some pretty drastic changes to my diet and daily routine and am still researching the condition. Thanks for the good wishes! As you can probably tell, I'm still really, really mad about the substandard treatment I received that was probably because of my age.
@BarBaraPrz (47611)
• St. Catharines, Ontario
30 Mar 13
I don't know much about gout either, but I did once meet a 30-ish party animal with it. Hope you get better soon.
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@dragon54u (31634)
• United States
30 Mar 13
Thanks for the good wishes! I was a party animal 20-30 years ago and it just proves how foolish we are when we're young and don't look forward to our later years.
@mentalward (14690)
• United States
30 Mar 13
I've never suffered with it but I have a friend who does, chronically. His is in his feet and knees. He told me pretty much the same thing you've said here. He is also watching what he eats very carefully. I'm amazed at how many foods are on the "no-no" list for gout sufferers! The only difference between him and you is that he has been put on different meds. If one wasn't helping much or at all, his doctor would switch to something else, then something else until, finally, one seems to be helping him more than any of the others did. I can't tell you what he's on now but that is an individual thing, anyway. If your meds aren't working that well, let your doctor know. If that doc is any good, he/she will switch to something else until you feel comfortable with one. I sure hope you're feeling better soon. I can't say I totally understand because I've never had gout pain but I know enough about it from my friend to know that it is horrible. I hope you can soon find the right combination of foods and meds.
@dragon54u (31634)
• United States
30 Mar 13
Well, I've only been on the meds for a week and I'm waiting 10 days to give them a chance to work. This new doc seems like a dream come true. He spent 40 minutes with me. The other one, I never met. It was always hurried PAs that took care of me. I don't mind PAs, they are fine for normal stuff, but diagnosing me with arthritis when it was something else--without tests or anything--prevented early treatment and now it may be chronic. If I'm still feeling this awful next week, I'll call. Actually, I feel 50% better than I did when I went to him but I don't like being in pain. It's settled down to a roar--I'm not crying anymore, which really pleases both myself and my dogs. I, too, was surprised at all the foods high in purines and I'm surprised that more people don't have gout! Crap, even oatmeal is forbidden!! I was eating that for a few days since nearly every medical site I investigated said to eat whole grains. So this morning I went for GrapeNuts. It's in a container just like the brown rice. Guess what I poured into the bowl?!
@rog0322 (2829)
• Cagayan De Oro, Philippines
30 Mar 13
Hi, It has something to do with diet, the more meat you eat, the higher is the uric acid in the blood, the more painful it is. You're right, crystals do form on the joints and if they are not addressed properly, may stay there for life. I am not familiar with the medical treatment but I hear somewhere that doctors prescribe a medicine that can metabolize the uric crystals but I forgot the name of it. It is really a real pain, being not able to eat what the body needs, being deprived of essential nutrients found only in meat. It can get worse really if not treated properly.
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@dragon54u (31634)
• United States
30 Mar 13
Thanks. Yes, he has me on meds to dissolve the crystals and a strong one that I discontinue today for pain--it can't be taken for very long. I was surprised at the list of foods, the ones I could not eat were longer than those I can! But I take a multivitamin and will learn to love tofu and soy protein. Pain is a powerful motivator and I'm much more willing to sacrifice most foods in order to be rid of it!
@STawhidi (84)
• Tehran, Iran
31 Mar 16
I have gout too but major of time before reaching the climax of the pain I drink a lot of water and do much exercise. It has been helpful for me. I hope you'll be better soon.