Big Day Tomorrow
By Ryan Reid
@bobo2500 (153)
Howell, Michigan
January 19, 2016 10:22pm CST
Tomorrow is set to be a big day. My son, Noah, has an appointment for a spinal MRI and then a consultation for a big surgery later in the day. We are going through the motions to get him into surgery for a "Selective Dorsal Rhizotomy" Long story short : they open your spine and cut some of the nerves...
Maybe i should back up a bit...
My son has Cerebral Palsy that affects the use of his muscles in his legs and arms. This procedure is to limit that effect and hopefully give him a better quality of life. My wife and I have come to terms with the idea, but we're still very nervous about the whole thing. Tomorrow will be the day that we set the date once and for all.
The procedure comes with a 2 week hospital stay and months of intense therapy and rehabilitation. This will take a huge toll on our finances, family, and most of all Noah. We're not going into this lightly.
I don't really know where i was going with this post, but i just had to vent somewhere, to someone.
Wish us luck, this is when things get interesting....
6 people like this
7 responses
@yukimori (10145)
• United States
20 Jan 16
Huge hugs for you and your family, Ryan. I know it sounds intimidating, but from what I've just read it sounds like SDR is a commonly performed procedure for patients with CP and complications seem to be a pretty rare occurrence. I can't imagine how difficult the decision to have Noah undergo this surgery has been for you and your wife, especially with your twins being so young on top of it all. I wish I lived close enough to you that I could babysit, or even just bring you a homecooked meal or three when you needed it.
I'll be keeping all of you in my thoughts and prayers. I'm not sure if you've considered starting something like a GoFundMe account, but if you happen to, please message me with the link. I've always enjoyed reading about the things you and Noah do when you post them.
3 people like this
@carexing25 (1822)
• Philippines
20 Jan 16
good luck i hope everything goes well ... i'll pray for a successful procedure
2 people like this
@GardenGerty (160708)
• United States
20 Jan 16
Ryan, you and Katie do such a good job with your kids. I know this is a huge decision. I have worked with many kids with CP and seen the hearts of parents who care for them. You should always feel free to vent here. The people are the best as far as I am concerned.I will pray for you guys tomorrow. Or rather, today.
1 person likes this
@katsmeow1213 (28716)
• United States
21 Jan 16
I can't imagine how difficult this must be for all of you. Hoping everything goes well. Please keep us posted!
1 person likes this
@silvermist (19702)
• India
20 Jan 16
@bobo2500 I wish you and your family good luck.Hope the surgery is successful.
1 person likes this
@bobo2500 (153)
• Howell, Michigan
4 Feb 16
Things are alright right now. We weren't able to schedule the surgery quite yet, but we're going forward with it. Noah was supposed to start a 5 day a week 4 hours a day therapy program this week but he got sick and the doctors just confirmed pneumonia, so...yeah...But we're trucking along. Thanks for the well wishes!
1 person likes this
@infatuatedbby (94914)
• United States
20 Jan 16
myLot is very therapeutic for me and sometimes I like to vent also. Feel free to vent! I hope all the best tomorrow for the consolation and appointment.
1 person likes this
