As Real as it Gets
By Jo Ann
@akalinus (43366)
United States
May 19, 2016 1:59pm CST
This morning, I found out that a long time friend is going into hospice. I have known her since she was a little girl. She is now a mom with a six year old boy.
She has fought ALS for the last two or three years. She has an inherited type. We watched her dad die from this awful scourge. I was just devastated when she emailed me and said that she was having trouble walking and they suspected she had it.
She wants to spend the rest of her time with her son and husband. My heart is broken. This is as real as it gets.
10 people like this
10 responses
@ElusiveButterfly (45940)
• United States
19 May 16
I have had a few clients who have had this disease. One lady lived quite a while with it. She was nearly 90 when she passed.
Sad to see them go through it.
2 people like this
@ElusiveButterfly (45940)
• United States
19 May 16
@akalinus horrible disease. I send a big hug to you.
1 person likes this
@akalinus (43366)
• United States
19 May 16
@ElusiveButterfly Thank you, I will send it to her.
1 person likes this
@BlissfullySilent (476)
• India
19 May 16
Tragic! its so terrible...well we cannot change or see whats going to happen but i pray to lord to give them all strength and endurance to face this
2 people like this
@pufitzamison (626)
• Romania
19 May 16
I'm sorry for youre friend. It's terrible enen when you thinck of that but to be in here place. I don't want to thinck of his husband who knows that he will remain without here...and she...how must she suffer when she thinck's to here child that he won't be beside him when he will grow...when he will get married...it's absolutly terrible.
1 person likes this
@pufitzamison (626)
• Romania
19 May 16
@akalinus not only...the fact that she knows what will hapen with here...nobody must be in here place. I'm verry sorry for here. I wish all the best and hope that the diagnostick not to be true and God macke a miracle with here for here son.
@akalinus (43366)
• United States
19 May 16
@pufitzamison I have prayed for a miracle too. The diagnosis is true. She has been in research projects and even went to a center in Boston to give DNA samples. Her case is genetic. It is a defective gene passed on to her by her father.
1 person likes this
@akalinus (43366)
• United States
19 May 16
It is a degenerative neurological disease that never improves. The patient gets weaker and more helpless until they die. Their brain is not affected and they know what is happening to them. Here is a link for anyone who wants more information.
@CRK109 (14556)
• United States
20 May 16
I'm SO sorry about this. You're right, it's heartbreaking. That little boy will be devastated.
