Doctor Appointment Today
@just4him (317249)
Green Bay, Wisconsin
November 14, 2016 2:47pm CST
My appointment was this morning to discuss the next medication for my UC since nothing has been working. My options were severely limited. I had two choices. Both of them a biologic, and both seen in advertisements on TV. You know the ones, they have the side affects as long as your arm and could ultimately lead to death. Of course that's the worse case scenario.
Both involve needles. One is self administered. Absolutely NOT. I don't like needles so I would not be able to administer that one myself. That left the infusion. That one is administered every 8 weeks by IV. It takes three hours for the infusion. But at least I wouldn't be administering it to myself. So that's a plus. On the other hand I did tell her about how hard it is to administer an IV to me. They need to use a baby IV. I have very small veins. Also finding a vein is also a problem. The last time they used an IV on me for the colonoscopy it went into the muscle instead of the vein. Yeah, I'm not an easy IV candidate.
In order for Medicaid to approve the biologic, I needed to be tested for TB and Hep B. She, the nurse practitioner, also ordered other blood draws for blood level, iron, and D. So in all I had 7 vials of blood drawn today.
I'll know the test results by the end of the week. I won't be surprised if I'm back on iron. It would be nice if I was off D, but I don't see that happening.
So the good thing in all this, if it works, is that it will only be once every 8 weeks I'll go for the infusion and I should be back in the pool in a couple weeks. I hope. So the suggested option is Remicaid.
No, I'm not a happy camper, but if it will put the UC in remission, that would be great.
I did talk to her at length about diet, and she told me what I'm doing is good. I told her about the Blood Type diet, and she suggested another for me to look up specific for UC. So I'll go to that site as well and see what all is involved in that. I also told her what supplements I'm taking and she made note of it.
So it was a good visit that took two hours of my time, but I'm none the worse for wear, considering the blood they took from me. Now I just wait for the results.
The good thing coming out of the colonoscopy is that I do not have cancer or even a hint of it, so that's a good thing. I do have severe UC. So now to get it under control so I can get my life back to normal. Sort of.
I hope you have had a good day. Thanks for reading.
15 people like this
14 responses
@just4him (317249)
• Green Bay, Wisconsin
16 Nov 16
Ulcerative Colitis - it attacks the large colon.
@simone10 (54187)
• Louisville, Kentucky
15 Nov 16
I have had experience with biologics so I can understand your concern. I have taken Humira and Enbrel which I administered myself. It's not hard to do because it's just a pen that you push the button and the medicine goes in. It doesn't hurt much either. But, I can understand going for the infusion and if that is easier for you, then that is what is important. I hope Remicaid works for you and helps relieve your symptoms.
1 person likes this
@just4him (317249)
• Green Bay, Wisconsin
16 Nov 16
Humera was suggested, but I can't self inject. Not with my fear of needles. So this is the only other option and I hope it works because there isn't anything else after this. I'm just waiting on one more blood test to come back before I start taking it.
1 person likes this
@just4him (317249)
• Green Bay, Wisconsin
16 Nov 16
Thank you. So do I. I'm just waiting for the last blood test result before treatments can begin and they said that would probably take until Friday.
@just4him (317249)
• Green Bay, Wisconsin
16 Nov 16
Yes they will and I have to tell them if I have any right away. Thanks. I didn't expect I did. That would have been a shock and another first for the family since cancer doesn't run in the family. My thoughts when she was telling me the odds of certain symptoms happening were yeah, you don't know me - I'm the one in a million person.
1 person likes this
@DianneN (247186)
• United States
16 Nov 16
@just4him That is good news. It runs in my family. As a matter of fact, the dermatologist wants my husband and me to keep an eye on two sores he has. I noticed them when I was showering him. She wasn't concerned enough to do a biopsy, yet. Just what we need now. So I will keep an eye on them in FL. If necessary we will see a dermatologist down there or fly home to Yale. My brother had some growths removed there last year. You are a one in a million person, in more ways than one!
1 person likes this
@OreoBrownie (3755)
• Commerce, Georgia
15 Nov 16
I know what you mean about needles. When, I was taking vitamin B12 shots, I had my daughter them.
My daughter is very good at giving shots. I can do it in my leg but I really don't want to do it.
1 person likes this
@just4him (317249)
• Green Bay, Wisconsin
16 Nov 16
I had two options available to me, this one and Humera - Humera is self injected. I hate needles and wouldn't be able to do that. So this is the only one that will work for me and I hope it does.
@just4him (317249)
• Green Bay, Wisconsin
16 Nov 16
It is horrid. I knew I didn't have cancer. It doesn't run in my family and the chances of it were slim to none. I just wish I didn't have this. Not looking forward to the infusion. But I am looking forward to it going into recession.
1 person likes this
@just4him (317249)
• Green Bay, Wisconsin
16 Nov 16
So am I. It doesn't run in the family so the likelihood for it was nil. I'm hoping for good results too, thank you.
@just4him (317249)
• Green Bay, Wisconsin
16 Nov 16
I hope so. I'm not looking forward to it, but if it works, then I'll be happy.
@Jessicalynnt (50523)
• Centralia, Missouri
14 Nov 16
sounds like she listened, and I hope this helps!
1 person likes this
@nanette64 (20364)
• Fairfield, Texas
15 Nov 16
I sure hope this new stuff works @just4him and you don't get the side affects.
1 person likes this