Eyes wide open... later
By MysD
@mysdianait (66009)
Italy
January 20, 2017 2:48pm CST
I have never mentioned this yet here but maybe someone else has the same problem. During the last eight months I had forgotten about it as I had not been sleeping well due to one of the meds that I take but recently the dosage has been halved and now I am sleeping really well again... and it has returned 
12 years ago during an eye test I was diagnosed with Fuchs' dystrophy which, in a nutshell, is the degeneration of the cells of the cornea. It is not a big problem - unless I have a good night's sleep and then my eyes take a long time to wake up and allow me to see properly. That makes it difficult to read ot write 
Another eye test, this time when I was in UK six years ago, found the same problem even though I had not mentioned it. There is no cure except a transplant but that is not even considered unless daily life is affected. Mine isn't yet and I hope that this problem will progress slowly so that it never will be 
So if you write a long comment and I am on in the morning I will get back to it later when I can see better (and that is a promise @DaddyEvil ) because it is my problem and not yours so keep commenting and long ones too if needs be! 
Did you know of this disfunction or know of anyone who has it and, if so, any tips for dealing with it?
12 years ago during an eye test I was diagnosed with Fuchs' dystrophy which, in a nutshell, is the degeneration of the cells of the cornea. It is not a big problem - unless I have a good night's sleep and then my eyes take a long time to wake up and allow me to see properly. That makes it difficult to read ot write
Another eye test, this time when I was in UK six years ago, found the same problem even though I had not mentioned it. There is no cure except a transplant but that is not even considered unless daily life is affected. Mine isn't yet and I hope that this problem will progress slowly so that it never will be
So if you write a long comment and I am on in the morning I will get back to it later when I can see better (and that is a promise @DaddyEvil ) because it is my problem and not yours so keep commenting and long ones too if needs be!
Did you know of this disfunction or know of anyone who has it and, if so, any tips for dealing with it?
Fuchs' corneal dystrophy is a disorder of the front surface of the eye. Find out if you're at risk.
17 people like this
18 responses
@Letranknight2015 (52090)
• Philippines
20 Jan 17
Oh, Aunt D. No wonder I don't see you often as before @mysdianait . Looks like I have to keep up eating more leafy vegetables.
3 people like this
@mysdianait (66009)
• Italy
20 Jan 17
I returned last month and I am here most days on and off my friend.
I ate loads of green vegetables and orange ones too but unfortunately this is hereditary, Possibly neither of my parents were aware of the problem as neither of them mentioned it (they are no longer here now) but my sister has it too and there is nothing we can do about it. I hope you will not have this problem!
1 person likes this
@Letranknight2015 (52090)
• Philippines
20 Jan 17
@mysdianait Well, I've only start seriously eating more veggies last year when I found out about my uric acid, that is what i got. well, I did have far sight problem until I start eating veggies.
1 person likes this
@mysdianait (66009)
• Italy
20 Jan 17
@Letranknight2015 Vegetables are indeed an important part of our diet and it's good that you are now eating more of them and that you can see the difference that they make
1 person likes this
@mysdianait (66009)
• Italy
21 Jan 17
You are not alone it seems. Others have said here that they had not heard of it either.
2 people like this
@allen0187 (58582)
• Philippines
21 Jan 17
@mysdianait hope your condition improves soon.
1 person likes this
@AmbiePam (94064)
• United States
24 Jan 17
@mysdianait One person's went great, and they are good as new. The other person had four cornea transplants, and none worked. But he had eczema in his eyes which made it more complicated.
1 person likes this
@mysdianait (66009)
• Italy
24 Jan 17
@AmbiePam Oh gosh what an ordeal - four transplants. I am sorry that it didn't work 
Hopefully my problem willnot advance rapidly and I will not have to go that far.
Hopefully my problem willnot advance rapidly and I will not have to go that far.@mysdianait (66009)
• Italy
21 Jan 17
Were the results of the transplant positive? I hope my problem does not get any worse and that I don't have to have a transplant. I see there can be problems with rejection.
1 person likes this
@celticeagle (168473)
• Boise, Idaho
21 Jan 17
I had never heard of this until reading this post. It is amazing to me how many diseases and such there are that a lay person isn't aware of until they happen to someone you are in communication with.
2 people like this
@mysdianait (66009)
• Italy
21 Jan 17
Yes, I agree
There are so many different variations too and unless we, or someone we know, are diagnosed with them we have no idea that they even exist.
I wonder why it is more important to go to Mars instead of finding cures for some diseases though
There are so many different variations too and unless we, or someone we know, are diagnosed with them we have no idea that they even exist.
I wonder why it is more important to go to Mars instead of finding cures for some diseases though 1 person likes this
@mysdianait (66009)
• Italy
22 Jan 17
@celticeagle Yes it is, especially as we may have something which we were unaware of until reading about it.
1 person likes this
@celticeagle (168473)
• Boise, Idaho
22 Jan 17
@mysdianait .....It is very interesting to hear of new ones.
1 person likes this
@DWDavis (25805)
• United States
20 Jan 17
I had not heard of this dysfunction and hope modern research is able to come up with something less drastic than a corneal transplant to cure it. My youngest son is working to become a researcher in regenerative ophthalmology, hoping to be able to find a way to get the body to repair situations like this on its own, with a little help from genetic therapy.
2 people like this
@mysdianait (66009)
• Italy
21 Jan 17
My sincere best wishes for your son!
I have read about that kind of research and hopefully in the future it will be available for everyone (and not only the rich people).
I have read about that kind of research and hopefully in the future it will be available for everyone (and not only the rich people).1 person likes this
@mysdianait (66009)
• Italy
21 Jan 17
Oh don't worry about it yet! You might never have it I hope, but check the symtoms in that link as they might help when you are older 
1 person likes this
@mysdianait (66009)
• Italy
21 Jan 17
@pgntwo Oh gosh you already have been through the mill with your eye problems. I trust that you will be ok from now on and will never be affected by this ever 
1 person likes this
@pgntwo (22408)
• Derry, Northern Ireland
21 Jan 17
@mysdianait I do most sincerely hope so too!
1 person likes this
@GardenGerty (160996)
• United States
21 Jan 17
I do not think I have heard of this before. I know that you are very active when you can be.
1 person likes this
@mysdianait (66009)
• Italy
21 Jan 17
Several here had not heard of it either but two people might have the same sumptoms after reading the link.
Tes, when I can see well then I am here if I am at home, and free, for sure
@zebra2222 (5268)
• United States
22 Jan 17
I'm sorry but it is the first time that I've heard of this problem.
1 person likes this
@mysdianait (66009)
• Italy
22 Jan 17
You don't have to be sorry at all
It seems that many are unaware of it while others have a similar thing but didn't realise.
It seems that many are unaware of it while others have a similar thing but didn't realise.
@katsmeow1213 (28716)
• United States
20 Jan 17
I never heard of it before.. Would glasses help in the morning until your eyes adjust?
2 people like this
@mysdianait (66009)
• Italy
21 Jan 17
I have been wearing glasses since I was 11 as I was shortsighted. Now I have progressive lens since almost six years ago but they are not to help with that problem. There is no treatment except drops which help in the morning if it is particularly bad.
@LovingMyBabies (85288)
• Valdosta, Georgia
20 Jan 17
I have never heard of it before but I also hope it's something that doesn't get worse for you.
1 person likes this
@mysdianait (66009)
• Italy
20 Jan 17
Thank you! At least I know what the problem is, unlike some who have responded here. So far it is not interferring too much with daily life and I hope it will stay that way.
1 person likes this
@mysdianait (66009)
• Italy
21 Jan 17
@LovingMyBabies Yes I am pleased that I shared as I see it has been helpful to at least a couple of others here
1 person likes this
@LovingMyBabies (85288)
• Valdosta, Georgia
20 Jan 17
@mysdianait Yeah it's good that you do know what it is. And it's nice of you to share it here so others can figure out what's going on with them too. =)
2 people like this
@mysdianait (66009)
• Italy
21 Jan 17
@besweet I too was shortsighted and wear glasses from the age of eleven. I took after my mother.
1 person likes this
@mysdianait (66009)
• Italy
20 Jan 17
Yes it was during a routine eye test that it was diagnosed and it was in its early stages. That was a test I had done here in Italy and when I had another one done some years later, but this time in UK, they recognised it there too.
I deal with the issues as they happen. I can't see to read or write first thing in the mornings but long distance is not a problem so I go out for a walk and/or do the shopping then and get here (on myLot) later. The weather is cold now so I play with the cat until it passes instead of going out. I gave up driving too as that was a problem, especially at night.
1 person likes this
@besweet (9859)
• Ireland
20 Jan 17
@mysdianait Yes it's for the best that you avoid driving if you think it could be unsafe.
We should be very careful with our eyes. Every time I notice a slight diffenence in my vision , I visit the eye doctor immediately. I have shortsightedness, a lot more than the average person and a history of eye problems in the family.
2 people like this
@yukimori (10148)
• United States
20 Jan 17
Oh goodness, that sounds a lot like what I go through in the morning! 
Do you experience any pain in either of your eyes when they are blurry? Occasionally one of mine is extremely sore, and I sometimes have difficulty opening it in the morning because it's so painful and light-sensitive.
Do you experience any pain in either of your eyes when they are blurry? Occasionally one of mine is extremely sore, and I sometimes have difficulty opening it in the morning because it's so painful and light-sensitive.1 person likes this
@mysdianait (66009)
• Italy
20 Jan 17
Not exactly pain but it feels like I have something in it but nothing is there, then it clears itself eventually. I have added a different link which you might find interesting.
IIn a way I am pleased that I am not alone and many can relate. here no-one seems to beleive me
1 person likes this
@mysdianait (66009)
• Italy
20 Jan 17
@yukimori Yes I absolutely do remember those posts!
I am wondering though, as you are so much younger, if this can be treated now as it usually affects people who are older than you. I suggest that you make a note of all of the information that you can and get to your eye doctor to see if he/she can at least delay it for you. As it progress you will have to give up driving, as Sharon mentioned above
I am wondering though, as you are so much younger, if this can be treated now as it usually affects people who are older than you. I suggest that you make a note of all of the information that you can and get to your eye doctor to see if he/she can at least delay it for you. As it progress you will have to give up driving, as Sharon mentioned above 1 person likes this
@yukimori (10148)
• United States
20 Jan 17
@mysdianait Like something's in it... that's exactly the sensation. It feels like something is scratching the surface of the eye, but there's nothing in it.
I totally understand that feeling. Maybe you remember some of the posts I made back on the old site about the doctor who told me my fibromyalgia symptoms were all in my head? It's so frustrating when you're dealing with that sort of disbelief. Just because you can't see that something is wrong doesn't mean that everything is all right!
1 person likes this
@mysdianait (66009)
• Italy
22 Jan 17
@LadyDuck Oh gosh! Please be careful! Using the computer makes it worse?
1 person likes this
@mysdianait (66009)
• Italy
21 Jan 17
I have heard of glaucoma and I hope it does not impeed you from doing daily things.
.1 person likes this
@LadyDuck (472121)
• Switzerland
22 Jan 17
@mysdianait It does not affect the eyesight, but my eyes are very dry and I have to put eye drops three times a day. The only thing I must monitor is a sudden sensation of blurred vision or eyes fatigue, this should require to reach the ER immediately.
1 person likes this
@mysdianait (66009)
• Italy
21 Jan 17
Once I knew what was causing the problems and that they were real it became much easier to deal with them. The only problem at the moment is that I never know how well, or how badly, I will be able to see when I wake up in the morning until I wake up.
@sishy7 (27167)
• Australia
21 Jan 17
Oh no, afraid I can't offer any more information than what you already know there since it is the first time I've heard of the disfunction. But I can certainly send you lots of positive thoughts that the problem does not get any worse at all for you...
1 person likes this
@mysdianait (66009)
• Italy
21 Jan 17
That is all that I am hoping for too, thank you my friend!
1 person likes this
@mysdianait (66009)
• Italy
20 Jan 17
There is no medication for the eye problem. The meds that I am taking are for the heart problem that I had in the spring and now that the dosage is less than before the eye problem has returned. They are strong tablets and I prefer to have the lower dosage and sleep better and put up with the eye problem.
1 person likes this
@mysdianait (66009)
• Italy
20 Jan 17
There is basic good information in the link above. I hope his problem is not that at all but an eye test, if it is, should find it.
1 person likes this
