Keeping Life Normal
@DeborahDiane (40293)
Laguna Woods, California
January 31, 2019 10:49pm CST
A few times I have mentioned the multiple health problems my husband has ... Stage Four Chronic Kidney Disease for the past nine years; a heart attack four years ago, with ongoing AFib and other heart problems; MDS blood cancer with dangerously low blood platelets discovered recently. He will need to start getting transfusions of platelets soon.
Above is a photo of the two of us taken almost exactly one year ago in the gardens of the Flamingo Hotel in Las Vegas, while he still felt good enough to travel. He doesn't look sick, does he?
We know that his time on earth is limited. We have been married for 47 years. I met him when I was just 21, only a few months after graduating from college. It is hard to imagine life without him.
If everything goes perfectly and my husband does not get a bad case of the flu or have another heart attack or have another emergency, he could live three or four years. It is likely, however, that the time he has left will be much shorter than that. He could have another massive heart attack, his kidneys could fail, or he could begin to bleed internally because of the blood cancer at any time. Three terrible potential possibilities.
We are both very realistic about the situation and we are in acceptance of it. Our healthcare provider has been great with helping him deal with all his challenges. He currently sees eight different specialists, not counting his Primary Care Physician, Dentist and similar doctors.
Fortunately, my husband is still in pretty good shape mentally, with only a few memory lapses when he is tired. He continues to work as a successful stock analyst. He has a much smaller client base than in the past, just the clients who have meant the most to him over the years and those he enjoys talking with regularly.
We continue to go out to dinner, see friends, watch movies, and enjoy time with our daughters and grandchildren. He fixes pancakes for some of our grandkids on Sundays. We video chat with the others often. He even helps a little with the housework ... doing the dishes, vacuuming once in a while, helping to make the bed.
Basically, we are keeping life as normal as possible, considering we make frequent trips to Urgent Care and the Emergency room (including one last night).
I plan to continue to respond to my notifications here, as well as read my friends' posts, when I can. But if I am not on MyLot as often as in the past, I want you all to know what is going on. My husband and I are trying to spend as much time together as we can, for as long as we can, while we can.
Thanks, everyone, for your kindness and support.
72 people like this
65 responses
@LadyDuck (471508)
• Switzerland
1 Feb 19
I am so sorry Deborah, I understand so well your situation and how you feel. I am married from 48 years, I met my husband when I was 19 and we married one year later. I can barely imagine my life without him, but we know that we must be prepared because never a new day is granted. Spend as much time as you can with your husband. Enjoy life as you always did. He is doing the right thing not to go into depression, enjoying the rest of his life is the best he can do, for both of us. Take care Deborah.
23 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@LadyDuck - Thank you so much, Anna.
5 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@JudyEv - Thank you so much for the prayers and hugs. We hope, of course, that he will live a few more years, but his situation is very scary. We get calls from his doctors and the nurse practitioners nearly every day.
5 people like this
@SIMPLYD (90722)
• Philippines
1 Feb 19
Keep the most of your time with him. Fill it with so much nice memories. Document them with videos , so you can always watch them when the time comes for him to say goodbye forever.
My prayers for you and him to be always happy while he is still with you.
12 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@SIMPLYD - Thank you for the suggestion about making videos. I have not done that much in the past, but I think I will start.
4 people like this
@DeborahDiane (40293)
• Laguna Woods, California
1 Feb 19
@FourWalls - Thank you so much. Prayers are always appreciated.
8 people like this
@crazyhorseladycx (39509)
• United States
1 Feb 19
my heart 's with y'all durin' this time, hon. i admire both 'f yer determination to live life 't the fullest possible. big hugs 'n love ~
12 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@crazyhorseladycx - Thank you so much!
4 people like this
@moffittjc (121585)
• Gainesville, Florida
1 Feb 19
I certainly admire the courage that both you and your husband are exhibiting during this potentially stressful and heartbreaking time. Your attitude in the face of adversity is a shining example to the rest of us that when we face challenges in life (and we all will), that we still have the vibe to carry on with our lives. I am definitely keeping you and your husband in my thoughts and prayers, and hope that your husband fights the good fight all the way up to the end.
12 people like this
@moffittjc (121585)
• Gainesville, Florida
4 Feb 19
@DeborahDiane I will keep the prayers coming for as long as it takes!
3 people like this
@DeborahDiane (40293)
• Laguna Woods, California
4 Feb 19
@moffittjc - Thank you.
3 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@moffittjc - Thank you so much, Jeff. Yes, he is fighting the good fight and we hope to prolong his life as long as we can. Your kind words and prayers are appreciated.
3 people like this
@DeborahDiane (40293)
• Laguna Woods, California
5 Feb 19
@topffer - Thank you so much. I am trying to spend a few minutes each evening, while my husband naps. I appreciate all the support everyone is giving us.
1 person likes this
@hereandthere (45645)
• Philippines
1 Feb 19
your grandkids will have wonderful memories of their grandpa
10 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@hereandthere - Yes, I think our grandkids will have positive memories about their grandfather. I'm glad they will always have that.
3 people like this
@sofssu (23662)
•
1 Feb 19
I love your attitude towards all this, I see patience, acceptance and gratitude in the way you have shared your thoughts here. Sending prayers your way for good health and courage. Love and hugs to you and take good care of yourself. I haven't interacted much with you here, thanks @hereandthere for recommending this post. This is one post worth reading.
9 people like this
@hereandthere (45645)
• Philippines
1 Feb 19
you're welcome. it's my way of supporting fellow mylotters.
6 people like this
@DeborahDiane (40293)
• Laguna Woods, California
5 Feb 19
@sofssu and @hereandthere - Thank you both for your kindness and support. We are doing the best we can under the circumstances ... watching lots of TV together!
4 people like this
@Tampa_girl7 (50250)
• United States
2 Feb 19
@DeborahDiane You should have that picture framed
4 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@Tampa_girl7 - Thank you. I like this photo, too. I think I will get it printed out and have it framed. Thanks for the suggestion.
4 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@Tampa_girl7 - Thank you so much for your good wishes.
4 people like this
@garymarsh6 (23404)
• United Kingdom
1 Feb 19
I am so sorry to hear your news it must be gut wrenching for you. I do hope that he stays well as can be for as long as possible. It is understandable that you want to spend as much time as possible together don't worry about responding to this message. You know what you have to do and you have every members support love and prayers. That is without question. Best wishes from this side of the Atlantic. Cherish each and ever moment!
7 people like this
@garymarsh6 (23404)
• United Kingdom
3 Feb 19
@DeborahDiane I Do feel for you Deborah-Diane and if you need to sound off just drop a message! If there is anything I can do to support you I will! Kind regards!
2 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@garymarsh6 - Thank you so much. I appreciate everyone's kind words.
2 people like this
@DeborahDiane (40293)
• Laguna Woods, California
4 Feb 19
@garymarsh6 - Thank you so much!
2 people like this
@WorDazza (15830)
• Manchester, England
1 Feb 19
Obviously your time with your husband is far, far more important than dealing with us lot on myLot.
I wish you both every happiness in the time you have together. Sending positive thoughts and best wishes and hoping with all my heart that your time together is as long and as happy as possible.
10 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@WorDazza - Thank you so much. I appreciate your good thoughts!
3 people like this
@nanette64 (20364)
• Fairfield, Texas
1 Feb 19
Oh girl, I am so sorry. But you are right, the time you spend together are going to be the most precious. We all here wish you the very best and will support you and Hubby any way we can @DeborahDiane .
7 people like this
@nanette64 (20364)
• Fairfield, Texas
3 Feb 19
@DeborahDiane You are so welcome and BTW, that is a fantastic picture of the two of you.
3 people like this
@DeborahDiane (40293)
• Laguna Woods, California
4 Feb 19
@nanette64 - Thank you so much, Nanette. I used it on our Christmas card this year.
3 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@nanette64 - Thank you so much.
3 people like this
@DeborahDiane (40293)
• Laguna Woods, California
4 Feb 19
@leaealea - Thank you so much.
2 people like this
@GardenGerty (160665)
• United States
1 Feb 19
We will be here if and when you have time. Of course being with your husband is the most important thing right now. You both need to take care of each other, as that could seriously wear on you. Praying for you right now.
7 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@GardenGerty - Thank you, Heather. Mostly, I am just on here when my husband is napping. It is good to have a little diversion. I appreciate everyone's kind words.
1 person likes this
@marguicha (223020)
• Chile
1 Feb 19
You are living in the best way. Cherish it while you can.
6 people like this
@marguicha (223020)
• Chile
19 Mar 19
@DeborahDiane That´s what we did with my husband until the day he pssed. Now I have my memories.
1 person likes this
@DeborahDiane (40293)
• Laguna Woods, California
20 Mar 19
@marguicha - Yes, I'm sure my memories will be precious to me as the years go by.
1 person likes this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@marguicha - Thank you so much. Yes, we are trying hard to cherish every moment we have together.
2 people like this
@changjiangzhibin89 (16763)
• China
1 Feb 19
In the picture ,your husband looks very well and is full of vitality,though he suffers from those diseases.Hope things won't be as bad as you thought!
7 people like this
@changjiangzhibin89 (16763)
• China
2 Feb 19
@DeborahDiane It proves that he has a good frame of mind,which means a lot to treatment for his diseases.
3 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
@changjiangzhibin89 - Yes, having a good attitude is very important.
3 people like this
@DeborahDiane (40293)
• Laguna Woods, California
2 Feb 19
Thank you so much. I know what you mean about him looking well and full of vitality. It seems strange to us, too, that he is so sick. He often feels fine, although some days are better than others. It seems strange to know that inside he is falling apart, despite how he looks on the outside.
3 people like this
@acelawrites (19272)
• Philippines
1 Feb 19
You are a wonderful couple, showing so much strength in spite of the odds. Keep it up, enjoy life to the fullest.
7 people like this
@DeborahDiane (40293)
• Laguna Woods, California
5 Feb 19
@acelawrites - Thank you so much. We are doing the best we can under the circumstances.
@Happy2BeMe (99380)
• Canada
1 Feb 19
I am so sorry. Nobody knows when their time on earth is through so just enjoy the time you have together and focus on living. I wish him all the best with his health issues.
7 people like this
@DeborahDiane (40293)
• Laguna Woods, California
5 Feb 19
@Happy2BeMe - Thank you and you are so right. None of us know how much time we have left. All we can do is focus on living and enjoy our time together.
1 person likes this
@Happy2BeMe (99380)
• Canada
5 Feb 19
@DeborahDiane That is true as hard as it is to do sometimes.
2 people like this
@DeborahDiane (40293)
• Laguna Woods, California
5 Feb 19
@ZedSmart - We would love if he survives 2 and 1/2 more years, so we could celebrate our 50th anniversary together. We don't know if it will happen, but that is our goal. It is good to have goals, whether we achieve them or not.
1 person likes this