Feeling Lousy And Really Exhausted
By bestie
@bestie (3272)
Philippines
June 3, 2020 10:57pm CST
Two years ago, I was diagnosed with lupus. It was heartbreaking news for me. Denial comes first, anxiety took place, occupied with overwhelming thoughts that I can hardly fathom, and fear succumbed me. It was my downfall.
This is my lupus story that I made into a poem that I wanna share. I wrote this to express my thoughts, emotions, sufferings, and faith during the start of my lupus journey.
This was published in the local magazine of our foundation.Hope you'll take time to read.
[/b]F.L.A.R.E.[b]
[/b]Avoid Sunlight-[b]
Sunlight shines so brightly
What a beautiful sight
For a butterfly facial rash
Breakout as a red cheek blush
They want to break free
Rashes bright as a red tea
Invading that flawless skin
Leaving marks and spots of brown
[/b]-To almost getting bald-[b]
Not one, not two but thousands
Of falling hair strands
Hair loss so shocking
Like a tree leaves falling
[/b]-Eventually, it stops-[b]
Mouth sores keep coming
Gums are bleeding
Afraid it doesn’t heal
Thought so cruel
[/b]-The body so weak and fragile like its shredding off-[b]
Touch not that body
It feels achy and breaky
Excruciating pain upon waking
All throughout radiating
Fingers are going numb and sore
Hands feel so tender
Wrists are like tearing apart
Elbow aches to its breaking point
Shoulder seems painfully pinned
Chest feels so crushed
Backaches are punching
Flank pain is grating
Knees are weak and brittle
Painful and heavy ankle
Feet and toes are tingling
Don’t dare walking
[/b]-So this is it-[b]
Food is life so true
Appetite loss, no clue
Body losing its weight
Everything seems not right
[/b]-Lupus is on flare-[b]
Lab results ain’t normal
Lupus diagnosis is final
Anemia is detected
Pack of blood needed
From cutaneous to systemic
Isn’t it perfect?
[/b]-Guard thy heart-[b]
Don’t break thy heart
It’s striving hard to beat
As it keeps floating
And is effort struggling
In a tiny hidden shore
Of that body full of water
Urgent surgery required
Not so assured
But the only way
To survive anyway
[/b]-Hang on there-[b]
Don’t leave it breathless
Can’t take that illness
If that’s a bluff
Please turn it off
-not just that-
Another fluid-filled lung sac
Kindly clear that back
Take the will to overcome
Multi operation of a lifetime
[/b]-Brain fog is it?[b]
Hey! Hey! Is she okay?
How is it going cephaly?
The doctor is in
So tell him how you’re feelin’
Those sleepless nights
That flashes of lights
Is that the final destination?
Thinking of dying so soon
Altered thoughts from reality
So confused mentally
[/b]-Imagine you’re in the state of…[b]
[/b]Feeling Lousy And Really Exhausted[b]
So grumpy, dopey and foggy
Feeling achy, ouchy, hurty and sleepy
Too much to bear
This chronic illness flare
A whole year-round
Just wanna thank the Lord
With his greatness
This Lady warrior
Is Unbreakable
A Persistent fighter
So coUrageous
And a Survivor
[/b]To God be the Glory![b]
6 people like this
5 responses
@ridingbet (66854)
• Philippines
6 Jun 20
sorry to learn about that. so, like me, you have maintenance medications for SLE, how about for your blood? are you always anemic?
1 person likes this
@bestie (3272)
• Philippines
6 Jun 20
Before I was diagnosed I am always anemic. But after I was treated it became normal, until I stop taking my iron maintenance. Hoping it will remain normal. It was still normal from my last lab result before the lockdown.I'll be having my follow up check-up and hoping for a good result(fingers crossed)
1 person likes this
@bestie (3272)
• Philippines
8 Jun 20
@ridingbet yeah, hoping for a long years of remission.I have a colleague/friend with lupus also that is always admitted due to flares since she was diagnosed. Always means, she's been in and out in the hosp likely every other month.
1 person likes this
@ridingbet (66854)
• Philippines
8 Jun 20
@bestie i hope the pathognomonic sign won't recur.
i hope you be careful of hurting yourself and might cause bruising or continuous bleeding. i hope you will not have mouth sores.
1 person likes this
@Deepizzaguy (102970)
• Lake Charles, Louisiana
4 Jun 20
Thank you for sharing this nice poem.
1 person likes this
@Deepizzaguy (102970)
• Lake Charles, Louisiana
5 Jun 20
@bestie You are welcome.
1 person likes this
@Janet357 (75646)
•
4 Jun 20
I think when we are in such situation, we.tend to become emotional and that is normal. Only those who have the same.experience can understand. But this is the best time.to.trust God Jehovah more because there is nothing impossible with him.
Isaiah 33:24 says that no one will say I am sick. What problems we have here are temporary because there is a better life awaiting us in a paradise earth where no one will say he is sick.
1 person likes this
@Lavanya15 (12888)
• Chennai, India
4 Jun 20
Very interesting and beautiful poem.. Thanks for sharing..
1 person likes this