Feeling Lousy And Really Exhausted

@bestie (3272)
Philippines
June 3, 2020 10:57pm CST
Two years ago, I was diagnosed with lupus. It was heartbreaking news for me. Denial comes first, anxiety took place, occupied with overwhelming thoughts that I can hardly fathom, and fear succumbed me. It was my downfall.  This is my lupus story that I made into a poem that I wanna share. I wrote this to express my thoughts, emotions, sufferings, and faith during the start of my lupus journey.  This was published in the local magazine of our foundation.Hope you'll take time to read. [/b]F.L.A.R.E.[b] [/b]Avoid Sunlight-[b] Sunlight shines so brightly What a beautiful sight For a butterfly facial rash Breakout as a red cheek blush They want to break free Rashes bright as a red tea Invading that flawless skin Leaving marks and spots of brown [/b]-To almost getting bald-[b] Not one, not two but thousands Of falling hair strands Hair loss so shocking Like a tree leaves falling [/b]-Eventually, it stops-[b] Mouth sores keep coming Gums are bleeding Afraid it doesn’t heal Thought so cruel [/b]-The body so weak and fragile like its shredding off-[b] Touch not that body It feels achy and breaky Excruciating pain upon waking All throughout radiating Fingers are going numb and sore Hands feel so tender Wrists are like tearing apart Elbow aches to its breaking point Shoulder seems painfully pinned Chest feels so crushed Backaches are punching Flank pain is grating Knees are weak and brittle Painful and heavy ankle Feet and toes are tingling Don’t dare walking [/b]-So this is it-[b] Food is life so true Appetite loss, no clue Body losing its weight Everything seems not right [/b]-Lupus is on flare-[b] Lab results ain’t normal Lupus diagnosis is final Anemia is detected Pack of blood needed From cutaneous to systemic Isn’t it perfect? [/b]-Guard thy heart-[b] Don’t break thy heart It’s striving hard to beat As it keeps floating And is effort struggling In a tiny hidden shore Of that body full of water Urgent surgery required Not so assured But the only way To survive anyway [/b]-Hang on there-[b] Don’t leave it breathless Can’t take that illness If that’s a bluff Please turn it off -not just that- Another fluid-filled lung sac Kindly clear that back Take the will to overcome Multi operation of a lifetime [/b]-Brain fog is it?[b] Hey! Hey! Is she okay? How is it going cephaly? The doctor is in So tell him how you’re feelin’ Those sleepless nights That flashes of lights Is that the final destination? Thinking of dying so soon Altered thoughts from reality So confused mentally [/b]-Imagine you’re in the state of…[b] [/b]Feeling Lousy And Really Exhausted[b] So grumpy, dopey and foggy Feeling achy, ouchy, hurty and sleepy Too much to bear This chronic illness flare A whole year-round Just wanna thank the Lord With his greatness This Lady warrior Is Unbreakable A Persistent fighter So coUrageous And a Survivor [/b]To God be the Glory![b]
6 people like this
5 responses
@ridingbet (66854)
• Philippines
6 Jun 20
sorry to learn about that. so, like me, you have maintenance medications for SLE, how about for your blood? are you always anemic?
1 person likes this
@bestie (3272)
• Philippines
6 Jun 20
Before I was diagnosed I am always anemic. But after I was treated it became normal, until I stop taking my iron maintenance. Hoping it will remain normal. It was still normal from my last lab result before the lockdown.I'll be having my follow up check-up and hoping for a good result(fingers crossed)
1 person likes this
@bestie (3272)
• Philippines
8 Jun 20
@ridingbet yeah, hoping for a long years of remission.I have a colleague/friend with lupus also that is always admitted due to flares since she was diagnosed. Always means, she's been in and out in the hosp likely every other month.
1 person likes this
@ridingbet (66854)
• Philippines
8 Jun 20
@bestie i hope the pathognomonic sign won't recur. i hope you be careful of hurting yourself and might cause bruising or continuous bleeding. i hope you will not have mouth sores.
1 person likes this
@Deepizzaguy (102970)
• Lake Charles, Louisiana
4 Jun 20
Thank you for sharing this nice poem.
1 person likes this
@bestie (3272)
• Philippines
4 Jun 20
Thank you
1 person likes this
@Deepizzaguy (102970)
• Lake Charles, Louisiana
5 Jun 20
@bestie You are welcome.
1 person likes this
@Janet357 (75646)
4 Jun 20
I think when we are in such situation, we.tend to become emotional and that is normal. Only those who have the same.experience can understand. But this is the best time.to.trust God Jehovah more because there is nothing impossible with him. Isaiah 33:24 says that no one will say I am sick. What problems we have here are temporary because there is a better life awaiting us in a paradise earth where no one will say he is sick.
1 person likes this
@bestie (3272)
• Philippines
4 Jun 20
I love your wisdom Thank you, I truly appreciate everything you said
@Lavanya15 (12888)
• Chennai, India
4 Jun 20
Very interesting and beautiful poem.. Thanks for sharing..
1 person likes this
@bestie (3272)
• Philippines
4 Jun 20
Thank you also for taking the time to read
@Shunnan (2106)
4 Jun 20
Wow Rhyme is perfect a soulful and heartfelt poetry. You are a survivor and a testimony to other people . just keep it up.
1 person likes this
@bestie (3272)
• Philippines
4 Jun 20
Thank you for appreciating it
1 person likes this