Anyone Else have Lupus?

United States
November 30, 2006 12:51pm CST
Hello. I have Lupus and was wondering if anyone else on here has it? I would like to discuss your symptoms and treatments. What medicines have worked for you and what hasn't. Any other medical problems caused by the Lupus or medications taken. Please post any info.
1 person likes this
11 responses
• South Africa
15 Dec 06
I have worked with a few people who have lupus. There is a fair amount that can be done to manage the symptoms from a nutritional point of view. The nutritional programme that you follow must take into account the symptoms that you are going through at the time. This can change from month to month.
• United States
15 Dec 06
I don't know of anything you can eat that helps with inflamation from it. You can get help with energy from eating right. When my Lupus is active I have to eat a lot more protien otherwise I am starving all the time and lose weight. I eats tons of calories during this time.
• United States
15 Dec 06
Yes I have tried them and they don't work very well for me.
1 person likes this
• South Africa
15 Dec 06
The omegas or essential fatty acids which you get from flax seed oil, some fish oils, evening primrose oil and borage oil all have anti inflammatory properties.
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@Melizzy (1381)
• United States
28 Dec 06
I don't have Lupus, but I do have MS. If you have a hard time buying your meds, check out RareDiseases.org. It's a reputable place that helps over 1,000 different "orphaned" diseases. They help me with my MS medicine.
• United States
28 Dec 06
Thanks. I will check that out now. I haven't heard of it before.
• United States
5 Jan 07
Yes they call it mixed connective tissue disease when you have more than one. They have referred to mine as that also. I think I now have the fibromialgia. Need to get that checked.
1 person likes this
• United States
5 Jan 07
I have Lupus, I got loaded down with it when I was 16 years old I am now near 40(real close) I was dx'd with epilepsy when I was 14, R.A when I was 15, sle at 16, Discoid lupus at 19,Reynaud's at 24, Fibromyalgia at 28.and since I was Dx'd I have inherrited many allergies the main 2 being sulfa which is a preservitive and most ppl with lupus have a problem with it.And 2 years ago I developed a nut allergy.So usually if you have 1 auto immune illness others tend to follow.Lupus is the hardest to detect
2 people like this
• United States
30 Nov 06
I do not have Lupus, but I found some links I thought might help!arthritis.about.com/od/lupustreatments/index.htm www.uklupus.co.uk/treat.html www.lupus.org/education/brochures/steroids.html
2 people like this
• United States
30 Nov 06
Thank you for the links. I will check them out.
@stubborn (44)
• United States
6 Dec 06
yes, i have lupus too. but as i am alergic to steroids and, it seems, to anything else they wanted to use, my only answer was to change my life style, reduce stress, and come up with some alternatives. (divorce can be a huge stress reducer!) i don't have the serious SLE type. only the kind that scars the skin badly. i finally got angry and started reading the old remedy books. what finally worked for me was yellow dock poultices followed by yellow dock washes. when the worst of it was dried up i switched to plantain poultices, then finally plantain washes and teas. yellow dock is too strong to use for very long. i picked all of these things myself and made them myself. small yellow dock poultices also work for stings, bites, and infections of most types as it draws out swelling and infection. ... when the doctors can't or won't help you sometimes you just have to take the bull by the horns.
• United States
7 Dec 06
Unfortunately I have the SLE kind. Not much fun.
@bterrier (308)
• United States
9 Dec 06
My wife is being treated for Lupus. She gets a shot once a week. (the one they give to kemo patients) she's on pecenuil. Her symptoms are achy joints rashes. It came during her pregnancy 8mo ago.
1 person likes this
• United States
11 Dec 06
How is that shot working for her? Hopefully she is feeling better.
• United States
16 Dec 06
I am glad the shots are working. I don't get the rash but my mother in law does. She says it itches very bad.
@bterrier (308)
• United States
16 Dec 06
I think it helps her. The rashes are awful I feel so bad.
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• United States
22 Jan 07
hi I am new here I found out 3 years ago that I have lupus. I would have these break outs mainly on my arms nesk and chest of little red bumps.The doctors said I had allergies to everything around me and I had never had allergies before.They put me on steroids off and on for a year I gained almost 60 lbs. and still had the breakouts.I stayed in the sun alot and now it was June I went back for check up and said please send me to a skin doctor and within 2 days after doing a biopsy on a spot of the rash found out it was lupus.I had steroid cream to put on it and other steroids to take but they didn't make it go away.I have the skin type and your worst enemy is bright lights and the sun,along with stress.Do you know what kind you have I have done some major research on lupus and would be glad to give you more info. it also makes me drag around alot I did find the right med for me for that and would not take anything for being able to keep up with my kids again!Thanks and let me know if I can be of more help!
• United States
13 Feb 07
I have the Lupus SLE. The pain is really bad right now with all the stress and the cold weather. Lot of swelling in the joints. They have to watch what meds they give me because they have started causing problems with blocked arteries to my legs. I have had surgery twice for this already.
@shilpa28k (1737)
• India
12 Dec 06
no
1 person likes this
• United States
12 Dec 06
Thanks for stopping by. Happy Holidays.
• United States
19 Feb 07
I just have a question. What EXACTLY is Lupus?
1 person likes this
• United States
20 Feb 07
Lupus is an auto immune diesease. Your immune system can't tell the difference between an infection or your own body. Your body attacks it self. There are many different symptoms. There are different types of Lupus. The mildest one is Discoid Lupus. This one affects the skin. You will get rashes that itch horribly. The worst one is Lupus SLE. This one attacks your joints, skin and internal organs. There is no cure. They don't know what causes it. It is not contagous. You can not get it from someone who has it.
• United States
19 Feb 07
I just have a question. What EXACTLY is Lupus?
• United States
18 Feb 07
I have Lupus(SLE) I have joint pain, get the butterfly rash on my face and due to my weak immune system, I catch everything that is thrown my way. It is hard, some days I just can't seem to get out of bed. I have had liver failure, a stroke and a heart attack, but bounced back from all three. When I am at my wrse, I take Prednisone, which is a bitter-sweet thing because while it gets Lupus in check it plays havoc on your system. Also, because you don't look sick, people don't understand and often treat you badly. Many think you are just using it as an excuse
1 person likes this
• United States
20 Feb 07
I understand how others are. I get that a lot also. I haven't had liver failure but my liver did swell to 3 times its normal size once. That was very painful I lost my job because I couldn't work while it was like that. I have had surgery twice in less than 2 years for blocked arteries to the legs. The blockage was caused by all the inflamation. They try not to give me prednisone anymore because of the vein problem. It can make it worse. The weather affects the pain. The cold or humidity makes me hurt bad.
• United States
10 Jul 07
I got lupus about 7 years ago, during a sickness when the doctor gave me a strong antibiotic, which gave me the lupus. Everyone says when you stop taking the antibiotic the lupus should go away. Well it didnt for me. The effects of lupus are almost non-existant for me for the last 5 years. I went the nutritional approach, with lots of salads and little cooked and no processed foods, raw vegetables whenever possible, it really works!!