Heartbreaking Disease

@HazySue (39268)
Gouverneur, New York
June 1, 2021 8:35am CST
I just finished reading and commenting on JJ's post "Update on my dad for those who have asked". @myklj999 wrote a wonderful heartbreaking post about his dad and dementia. My father had Alzheimer's and died at the age of 69. Before he passed on he was still a polite man but he was no longer him. He was seeing dead people on the living room floor. He forgot who we were and he could not connect with others. About two weeks before we had to place him in a nursing home he was walking around holding a book. He finally asked me what is was. I told him that it was a book. He wanted to know what you did with it. I told him you read it. He no longer could read words. This was a man who wrote a book ten years before about a new computer system and how it worked. It is a heartbreaking disease and no one deserves to have to go through it. My thoughts and prayers are with JJ and his family.
22 people like this
19 responses
Four Walls
@FourWalls (68013)
• United States
1 Jun 21
I think dementia/Alzheimer’s/whatever they label it is the cruelest of all diseases for the family, because it robs the family of their loved one twice: once when the loved one forgets the family member(s), and once when they die. My prayers are with him as well.
8 people like this
MARILYN
@Marilynda1225 (82798)
• United States
1 Jun 21
That is so heartbreaking. Mom had dementia and I know how cruel it can be.
6 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
It is cruel. It's heartbreaking in so many ways. Sorry about your Mom.
2 people like this
Marie
@Tampa_girl7 (50250)
• United States
1 Jun 21
Unfortunately I know this horrid disease all to well. I lost both of my parents to it in 2019.
4 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
I am so sorry to hear this. It is a cruel disease to everyone who has a family or friend who has suffered with this.
1 person likes this
Hanni Harel
@Hannihar (130218)
• Israel
2 Jun 21
@HazySue It and dementia are very hard diseases. He was so young and so so sorry. It must have been hard for all of you.
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
It was. I moved down to Florida to be his care giver. I uprooted my children and left a good job. I was never sorry. even though it was heartbreaking I am glad I was able to be with him while he was going through this.
2 people like this
Hanni Harel
@Hannihar (130218)
• Israel
6 Jun 21
@HazySue It is very hard to uproot your life but for someone that is important I can understand. I am glad you had time with him and so sorry about your loss.
2 people like this
Rashna Gandhi
@Rashnag (30592)
• Surat, India
2 Jun 21
Yes it's a deadly disease. My dad fought with it for many years and then passed away this January
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
I am sorry to hear this. It makes you feel helpless watching them slowly deteriorate. Where you his caregiver?
2 people like this
Rashna Gandhi
@Rashnag (30592)
• Surat, India
6 Jun 21
@HazySue yes dear. Thanks for your kind words
2 people like this
Raj
@Butterfingers (66583)
• India
1 Jun 21
I missed that post. Sorry for his loss
4 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
It is a good post. You should try to read it.
2 people like this
Heather Echola
@GardenGerty (160665)
• United States
2 Jun 21
It is heartbreaking, although in some ways it is harder for those around who do not have it. We all suffer.
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
I think in the beginning the one who has it knows there is something wrong and tries to hide it. When their loved ones realize and try to get help for them it becomes a life long sorrow for those who are watching them slowly deteriorate into someone who is no longer the person they know.
1 person likes this
Notlilie
@prinzcy (32305)
• Malaysia
3 Jun 21
It is a terrible disease. I saw my grandmother started forgetting about us and be in her own world. She kept asking me who I am. It's more painful to us than to them.
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
I think you are right. The first time my father asked me my name I wanted to sit down and cry. While it was upsetting to me, for my father it was like finding a new friend. So sorry about your grandmother.
2 people like this
much2say
@much2say (55606)
• Los Angeles, California
1 Jun 21
It is heartbreaking. Sorry your dad went through this. My father in law had advanced dementia. I know it's not easy to see loved ones this way .
3 people like this
much2say
@much2say (55606)
• Los Angeles, California
5 Jun 21
2 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
I am so sorry about your father-in-law. Stay strong. It isn't easy to watch.
2 people like this
Marlina
@marlina (154131)
• Canada
1 Jun 21
Yes, it is heartbreaking to read such stories,
3 people like this
Marlina
@marlina (154131)
• Canada
5 Jun 21
@HazySue , Unfortunately, it won't be okay,
2 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
You want to reach out and give them a hug and tell them it will be ok. Unfortunately it won't be ok. So sad.
2 people like this
RasmaSandra
@RasmaSandra (79858)
• Daytona Beach, Florida
2 Jun 21
It certainly is and all we can really do is to offer our prayers and blessings,
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
True. The pain and sorrow it doles out is heartbreaking.
2 people like this
Lenore Plassman
@sallypup (61102)
• Centralia, Washington
1 Jun 21
I'm sorry for your loss. Dementia is mean and awful. Now that I've gone through it with my Mom I wonder about me and my own future.
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
I wonder also for myself. I understand that there is a test for it. I think I don't want to know in advance.
2 people like this
Lenore Plassman
@sallypup (61102)
• Centralia, Washington
5 Jun 21
@HazySue It's hard to know what to do.
2 people like this
CarolDM
@CarolDM (203422)
• Nashville, Tennessee
1 Jun 21
Life can be so cruel sometimes, I will always wonder why.
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
I will always wonder why myself. How can this disease or cancer or any of the other horrible diseases be allowed to take our loved ones away.
2 people like this
CarolDM
@CarolDM (203422)
• Nashville, Tennessee
5 Jun 21
@HazySue I have said that so many times. Very unfair.
2 people like this
Ummulkhair
@Ummulkhair (116)
•
2 Jun 21
Yes I also know how it feels like because my sister was also behaved like this.she didn't remember us she even didn't knew about her favourite stuffs and all. And when I get to know about her problem. We always share each and everything with each other and we are like best friends so seeing her in that condition was so scary for me and I was like broken. And I cried so many nights for her. I always prayed for her every day and one day she get well it took some time but as we know that dawn right before the sunrise is the darkest but then we see a light of hope in our lives. So @myklj999 my prayers are with him you just don't loose hope. Fighting.
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
It does break you down emotionally. I am sorry to hear about your sister. My prayers and thoughts are with you and your family.
1 person likes this
popciclecold
@popciclecold (38721)
• United States
2 Jun 21
My Mom had it, it robs you of life.
2 people like this
popciclecold
@popciclecold (38721)
• United States
11 Jun 21
@HazySue My brother bought her from California to Mississippi, she lived with me four months, and passed away. I kept her at night, my brother kept her in the day time.
2 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
16 Jun 21
@popciclecold I am glad you were able to have a break like that. How wonderful that you and your brother were able to share the care giving.
1 person likes this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
It does. Were you her caregiver? I am so sorry about your mother.
1 person likes this
Belle Starr (Iz)
@BelleStarr (61102)
• United States
2 Jun 21
My mom had dementia so I understand the feeling of losing the ones we love. I am sending hugs to you and to JJ though I will tell him myself later.
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
Thank you. It is a disease that keeps on giving sorrow to those who have lost a loved one to it. I am sorry you had to go through it.
1 person likes this
Juliaacv
@Juliaacv (51193)
• Canada
2 Jun 21
It is a very cruel way to see anyone live out their days. My mother suffers from it, she stopped eating and is mostly sleeping as of late. I pray for JJ, he is a great guy, and he and his family deserve all of our thoughts and our prayers.
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
They certainly do deserve our thoughts and prayers as do you. It is a cruel disease that has you watching someone slowly die.
2 people like this
Shiva
@Shiva49 (26681)
• Singapore
1 Jun 21
One is not the same person with such a debilitating disease slowly but surely taking over. Yes, no one deserves to go through that. The caregivers are helpless and suffer more.
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
You are exactly right. It is a tragic thing to have to watch a loved one slowly die.
2 people like this
LindaOH
@LindaOHio (178568)
• United States
1 Jun 21
It's all so sad. I think about JJ's Dad all the time. It must be so hard. I'm sorry to hear about your Father.
3 people like this
Susan
@HazySue (39268)
• Gouverneur, New York
5 Jun 21
It is sad. Losing someone in this manner is cruel. I send out prayers to everyone and their families who are going through this or have lost someone to this disease.
2 people like this