Maybe i misunderstood something
By Pearl Rosa
@pearlrosa (139)
United States
March 7, 2024 11:24am CST
My spouse was put on home health and palliative care a month ago. I was under the impression that such care provided relief to the patient and support for the caregiver but so far nothing and I mean nothing. I am stuck with someone who is in pain and barely able to walk but no relief or support like this sorry team is just in it to collect a paycheck is all. I may be expecting too much too soon so I haven't yet contacted anyone.
6 people like this
6 responses
@RebeccasFarm (90474)
• Arvada, Colorado
8 Mar
Oh my this is a disgrace..I am so sorry..I believe you.
Is there someone you could reach out to..a mayor, an attorney pro Bono even?
They should be shut down scamming the system.
It is inhumane how they are treating your person in pain and suffering..I truly am so sorry.
Is there someone you could reach out to..a mayor, an attorney pro Bono even?
They should be shut down scamming the system.
It is inhumane how they are treating your person in pain and suffering..I truly am so sorry.1 person likes this
@RebeccasFarm (90474)
• Arvada, Colorado
8 Mar
@pearlrosa Dear God so sorry..this must be incredibly torturous..shame on them..I hope karma bites them in the azz.
1 person likes this
@pearlrosa (139)
• United States
8 Mar
He's being transferred to another home health palliative agency. Another patient with his current agency wound up in e.r. because of their negligence.
1 person likes this
@RasmaSandra (80736)
• Daytona Beach, Florida
7 Mar
That just doesn't sound right, I think you should start asking lots of questions, I hope you get this cleared up. Many blessings to both of you,
1 person likes this
@kaylachan (71762)
• Daytona Beach, Florida
7 Mar
This should have been explained to you. However, when home health was established, you should've been given a folder with the care that the doctor has ordered and a phone number to call in case of dispute or for additional help. When it comes to pain management, you're drawing a fine line. Many medications that are used to manage pain, tend to have not only addictive properties and are hard on the kidneys and liver. So, it's about finding a balance that helps the patient as well as keep them alive.
Discuss safe alternative methods for pain relief in between meds with your home health provider. Do not be afraid to ask questions, and speak up for your spouse.
My husband was recently discharged from home health, but is doing well. Today, he's getting up and getting his drink from the fridge. Tomorrow I have to make sure he doesn't drink anything prior to his scan.
@kaylachan (71762)
• Daytona Beach, Florida
7 Mar
@pearlrosa While I don't dispute or deny this can be a factor. I also know what's in most of them. I do my research and don't blindly take what my doctor hands me.
@pearlrosa (139)
• United States
7 Mar
I do believe the nationwide epidemic of painkiller abuse is why pain relief is being refused
2 people like this
@pearlrosa (139)
• United States
7 Mar
It probably takes more than a month to get help in place.
1 person likes this
@mildredtabitha (16147)
• Nairobi, Kenya
7 Mar
I'm sorry sorry your husband is sick. I'll pray for him.
@porwest (92618)
• United States
7 Mar
If you feel that the care being provided is not up to par, I would complain to the appropriate person in charge to handle that complaint. Or, you could at least otherwise determine whether or not the care being provided is actually inadequate or your perception of what care should be provided is off base.
If nothing else, someone might be able to offer an explanation of what your expectation of care SHOULD be rather than what you think it should be.
We are not doctors or care providers, and of course we want the best for the people we love and care about. But sometimes we expect something different than what the reality is. It helps to ask and be informed.
