Good morning, again.
@kaylachan (69670)
Daytona Beach, Florida
July 1, 2024 9:22am CST
Well I say again, because I'm popping online before I get going for the day. Giving George that extra few minutes. He does deserve that much. After all , life can be rough. I don't fault him for that.
I have noticed in recent days his behaviors are a bit more normal. From dressing habbits and willingness to change clothes. All in all he seems to be feeling a lot better. He still blames his peg tube for everything, but I think he's just mad at me for having it placed in the first place.
When it comes down to it, he'd rather me give him a tube feed then eat a meal. He still finds the act of eating, painful.
Didn't take long for the heart and vascular people to call back. I have no problem getting him there, we just need the VA to greenlight it.
10 people like this
9 responses
@kaylachan (69670)
• Daytona Beach, Florida
1 Jul
A doctor won't consider removing a feeding tube, until the patient can eat a sastifactory ammount of food orlally to sustain themselves. While humans can survive on one large meal at night, they can't survive on a child's sized portion a day. It might work for a while, but the person can and will crash and they would be back to square one. That's why feeding tubes are used as backups, to keep things in balance.
1 person likes this
@kaylachan (69670)
• Daytona Beach, Florida
1 Jul
@LadyDuck She could have, but an ng tube is what most doctors would rather start with because its less invasive. The reason George has a g-tube is because his nasle pasages are too small and when they tried to force the tube up his nose, it caused a nose bleed that wouldn't stop. Then post nasel drip caused him to be intbated. so, they went for the g tube.
His nerologist doesn't know what goes on at home. He doesn't know that George won't eat. Or, the fact he says it's painful. The diationon we spoke to, thinks he could be have silent asperations when he eats.
1 person likes this
@LadyDuck (471500)
• Switzerland
1 Jul
@kaylachan I thought the doctor suggested to remove the tube a few days ago. My Mom had to be artificially fed after she had a stroke, she was fully paralyzed. She had a nasogastric tube, she had most part of the stomach removed years before to remove stomach cancer, she could not have the feeding tube as George.
1 person likes this
@celticeagle (166911)
• Boise, Idaho
1 Jul
Nice to hear that you are seeing more normal behaviors.
I hope they greenlight that soon. Paperwork takes forever.
1 person likes this
@celticeagle (166911)
• Boise, Idaho
2 Jul
@kaylachan ........It seems to take forever.
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@kaylachan (69670)
• Daytona Beach, Florida
2 Jul
@celticeagle Seems a lot of things take forever.
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@kaylachan (69670)
• Daytona Beach, Florida
1 Jul
They can be slow, that's for sure.
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@eliza_godinez12 (5726)
• Philippines
1 Jul
Good morning. Have a wonderful day ahead.
1 person likes this
@kaylachan (69670)
• Daytona Beach, Florida
1 Jul
Idealy they want him to see in-network doctors at their facilities. However, that's not possible with their larger facilities an hours drive away. Granted, they recently relocated to a recently-built facility that's supposed to be larger and more equipt. So, we'll see how things go.
1 person likes this
@just4him (317041)
• Green Bay, Wisconsin
1 Jul
@kaylachan I hope it all works out for him.
1 person likes this
@LindaOHio (178568)
• United States
1 Jul
I hope George starts eating more soon. Have a good week.
1 person likes this
@kaylachan (69670)
• Daytona Beach, Florida
2 Jul
I've never felt as normal as I have in the past couple of weeks.
1 person likes this
@porwest (90823)
• United States
2 Jul
@kaylachan I am very glad to hear that. Sounds like progress to me.
1 person likes this
@kaylachan (69670)
• Daytona Beach, Florida
1 Jul
I'm not sure. He says eating is.
1 person likes this
@RasmaSandra (79833)
• Daytona Beach, Florida
1 Jul
As long as there is hope all is good, I hope you all had a good day and I know George had plenty of sunshine,
@kaylachan (69670)
• Daytona Beach, Florida
2 Jul
That he did and I know he loved it.
1 person likes this
@kaylachan (69670)
• Daytona Beach, Florida
1 Jul
Yes, he will. He just needs to start by making the choice. George has never been that big of an eater, the peg tube and scheduled feeds are forcing him to "eat" more than he has in a while. Plus there could be something wrong with his esofigus and stomach, not sure what, but he did have a stroke and did suffer paraylisis of his throat on the left side.
If the VA greenlights a GI doctor (or we see his prinary) I'm going to ask about a low-profile button tube. It'll be far more comfortable, then the peg.
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