Does anyone here have Lupus? What can you tell me about it? My mother

My best friend has lupas. The same type as your mother. If you like, add me to MSN angelic_ambur@hotmail.com or come to www.justanotherchat.com And you can talk to her. She'll explain the things she's done over the years to help her condition.

My sister-in-law have Lupus. I'm not very knowledgable with the disease, but she told me that it affects your immune system. She is always weak at times. My sister-in-law is a regular visitor in the hospital. I don't know what causes it either.

I did not know that ther ewas a lupus that only affects the skin. The only Lupus I knwo is that of what your mom is experiencing. Lupus is some sort of autoimmune disorder that I know. And there are so many different things that can trigger it. I am assumign that there are medications she can take to control it and that is good that she has narrowed down certain foods that she can not eat in case it flares up or whatever. It is kind of like when people have rheumatoid arthritis, there is no reason as to why or what it is that they have other than that, their joints get so flared and sore and painful, inflammed I am so sorry for your mom. Maybe look into some natural type ingredient products for her to use like go to www.melaleuca.com and check that out...if you have more questions just ask me. www.mymommyswebsite.com mymommyswebsite@gmail.com

I know someone who had Lupus and at one time I was told it would eventually kill her, so I have no idea if she is still even alive. She was in constant pain all of the time as well. And sad part of it was she had a young daughter she was trying to take care of as well. I have tried learning a lot about the different type of Muscular type diseaases and problems such as this, but everywhere you turn you see confusing thoughts, and very conflicting. I guess you just see a Neurologist and see what they can suggest is best for you, and then go from there.

i don't even know what kind of desease it is,i only heard about it in same scenes of dr house but i really think it's not a good thing,i'm afraid for you anda your mom.

There is no know cause for Lupus. Please be very careful and make sure your mother has the best doctors on the case. Lupus can be misdiagnosed. A family friend of mine was diagnosed with Lupus, and was treated with medications for about two years. she recently passed away, from complications brought about by a brain tumor. yes, she was mis-diagnosed. Get the best doctors you can afford. And remember, not all doctors graduate at the top of their class. I don't mean to scare you, but please don't settle for one doctors opinion. Seek out others. Good Luck and God Bless.

I have never had Lupus but my father did and he was not able to spend time in the sun without some kind of protection like a hat over his head. His affected his skin and not his organs. I am sorry to hear that your mother has it and hope she is doing okay.

I have Lupus. I am not sure how old you are or if you live with your mother still. You mom needs to limit stress in her life. Stress is a big trigger for Lupus flares. The weather changing can also affect how she feels. I do best when it is warm and dry. Humidity and cold also trigger a Lupus flare for me. She needs to stay active but not over do it. The more you can keep it under control the better. The inflamation can cause all kinds of medical problems. The Lupus isn't what kills you it is the damage to organs from the Lupus flares. I am not sure why your mother has trouble eating meat or sugar. When I have a Lupus flare I have to eat more protien otherwise I feel like I am starving. I also will lose lots of weight if I don't eat a lot of protien. I am thinking your mother may also have something else wrong causing that problem. The only other thing might have been the medications she was taking were making her sick. If you want to talk more about it you can send me a message and ask any questions you would like. People with Lupus also tend to have lots of dental problems. The symptoms for everyone vary greatly. You can also have a symptom once and then never have that same symptom again for years. I usually do not have trouble with the sun. I have a couple of times. Some of the medications will cause your skin to be sensitive to the sun. Please send me a message with any questions.

while I don't have Lupus myself, I have a very good friend who has Lupus. There are sites online that you can go to that explains in details the different stages Lupus goes through. My friend is 66 yrs old and was first diagnosed when she was 22. It affects everybody differently based on their activities, diet, etc so there is no one experience that will match exactly. With my friend, her Lupus is greatly affected by the amount of stress she deals with as well as how tired she allows herself to become. This season especially is extremely hard on her as there is so much to do for holidays it tires one with Lupus even quicker than those of a normally healthy person. May I suggest you do everything you can to make this time of year especially less stressful and tiring for your Mom. There are medications that, while nothing can cure Lupus at this time, will forstall the worst of the systems from progressing further. May God Bless and your family with this disease and hopefully the cure will be within our reaches soon!

I don't have lupus, but a friend of mine does. What you are talking about with your mother is very serious. This disease eats away at your organs and doctors will not give you an organ transplant because this disease will attact the new organ as it did the patients own. You need to follow your doctor's diet that he gives her, as this will help some. You can usually read up on this illness in medical books or online searches. Try to give an online search and go to sites that doctors use. That might help you to learn even more.

Lupus is a chronic (long-lasting) autoimmune disease in which the immune system, for unknown reasons, becomes hyperactive and attacks normal tissue. This attack results in inflammation and brings about symptoms. What does autoimmune mean? Literally it means immune activity directed against the self. The immune system fights the body itself (Auto=self). In autoimmune diseases, the immune system makes a mistake and reacts to the body's own tissues. What is inflammation? Literally it means setting on fire. It is a protective process our body uses when tissues are injured. Inflammation helps to eliminate a foreign body or organism (virus, bacteria) and prevent further injury. Signs of inflammation include; swelling, redness, pain and warmth. If the signs of inflammation are long lasting, as they can be in lupus, then damage to the tissues can occur and normal function is impaired. This is why the treatment of lupus is aimed at reducing the inflammation. What happens in autoimmune diseases like lupus? The immune system is designed to protect and defend the body from foreign intruders (bacteria, viruses). You can think of it like a security system for your body. It contains several different types of cells, some of which function like "security guards" and are constantly on patrol looking for any foreign invaders. When they spot one, they take action, and eliminate the intruder. In lupus, for some reason and we don't know why, the immune system loses its ability to tell the difference between a foreign intruder and a person's own normal tissues and cells. So, in essence, the "Security Guards" make a mistake, and they mistakenly identify the person's own normal cells as foreign (antigens), and then take action to eliminate them. Part of their response is to bring antibodies to the site that then attach to antigens (anything that the immune system recognizes as non-self or foreign) and form immune complexes. These immune complexes help to set in motion a series of events that result in inflammation at the site. These immune complexes may travel through the circulation (blood) and lodge in distant tissues and cause inflammation there. Symptoms of lupus vary widely depending on the individual case and the form of lupus present. Most people with lupus do not experience all of these symptoms. The list only serves to alert people to clues that might indicate the presence of lupus in an undiagnosed person. * Achy or swollen joints * Persistent fever over 100 degrees * Prolonged, extreme fatigue * Skin rashes, including a butterfly shaped rash across the cheeks and nose * Pain in the chest on deep breathing * Anemia * Excessive protein in the urine * Sensitivity to sun or ultraviolet light * Hair loss * Abnormal blood clotting problems * Fingers turning white and/or blue in the cold * Seizures * Mouth or nose ulcers lasting longer than two weeks

My sister was diagnosed with Lupus six years ago while she was pregnant with my niece. No one else either currently or in our family history has suffered from it that we are aware of. It was really scary at the time. She does lead as a noral a life under the circumstances as possible. There are some good resources on the net. Hope this one helps. www.lupus.org/ Resources, advocacy center, directory of local chapters, and calendar of upcoming events.

I personally have a form of Lupus, it is a skin disorder. But I did have a friend who passed away about 7 years ago from Lupus. I was not close to her, I was closer to her sister but we did not talk about the Lupus. I do know if I remember quickly she had trouble walking to the bathroom at night. She used to throw up a lot. She even could not make it to school sometimes. That is all I know. I am sorry I coulld not be more help. You can find out a lot more online at this one website. I believe it is WebMD.com

Lupus is an autoimmune disease, which means that instead of just attacking foreign substances, such as bacteria and viruses, the immune system also turns against healthy tissue. This leads to inflammation and damage to various parts of the body, including the joints, skin, kidneys, heart, lungs, blood vessels and brain. So my dear friend..be strong

this is all to me

im very sorry to hear that. my mother has the lupus that attacks her organs too. i know how you feel. sometimes she wakes up crying and i feel like there is more that i can do for her but i cant. hope they find an easy cure soon!!!