Effexor withdrawls... who is responsible for informing the patient?

United States
January 5, 2007 2:10am CST
I was put on Effexor over a year ago. I have chronic fatigue and had been going to the doctor complaining of the symptoms. They insisted I was just depressed and would not look at anything else until I agreed to try the effexor. I did not notice a difference in the fatigue or the memory/concentration problems that are typical of chronic fatigue. They increased the dose. I did notice less anxiety and irritability. This was a minor plus since anxiety and stress can make chronic fatigue worse. So I continued to take the medication and was sent on to see a specialist about the chronic fatigue. After being on the medicine for quite some time, I had to change insurance's. Suddenly, I was no longer able to get this medication and ran out. NO ONE TOLD ME that this was a medication that needed to be stopped slowly, NO ONE TOLD ME about the severe side effects that I could have by stopping this medication. "Brain Zaps", lucid horrible nightmares, heart palpatations, dizziness, feeling like you are going crazy, to name a few. I "googled" it and was amazed to find how many people have these withdrawls and yet, the medication is allowed to be stopped suddenly by insurances, doctors and no one warns you of what will happen. I suffered for 2 months, while my doctor's requests to the insurance company were denied. The only thing that stopped the withdrawl side effects was being put on another anti-depressant. I now know what can happen if this medicine is suddenly stopped.... effexor is not the only one with side effects but seems to be one of the worst.... so I won't let it happen again. I will make sure I have enough to stop slowly if my insurance is going to change again. I would like to know what others think about this... and who is responsible for letting the patients KNOW about such things? There was no warning label on the medicine bottle, there was no warning from the doctor or even the pharmasist.... Should insurance have this much control over our medicine? Should there be a policy of automatically approving such a medicine for someone who has just changed over insurance for a specified period of time so they can be taken off of it slowly?
6 people like this
9 responses
@egpaul (3)
• United States
6 Jan 07
For years, I had Fatigue, after an MRI, I was diagnosed with MS - abnormal fatigue being a major item in MS. Schedule an appointment with a GOOD neurologist (there are a lot of not-good ones out there). Fatigue all the time?....could well be MS.
1 person likes this
@linda345 (2661)
• Canada
6 Jan 07
If he did do tests and it showed you had either sjogrens or lupus you should be on medication. I have sjogrens and I take hydroxyquine daily. I get extremely fatigued at times with this illness as well as joint pain.
1 person likes this
• United States
6 Jan 07
He did put me on hydroxyquine and another doctor had tried plaquinil, both with no effect on the fatigue.
• United States
6 Jan 07
Right now I don't have the best insurance since I'm on state aid healthcare but I am hoping that will change in the next few months... I will definately look into a neurologist. The Rhuemetologist did not think it was MS. Not sure what tests, if any, he did to rule that out. He did do a bunch of tests that showed some immune deficiency disorders, like high anticardiolipins, sjogrens syndrome and some of the lupus ones showed posative, some were negative. It's been very frustrating to say the least!!! I hope you are doing well.
6 Jan 07
Thats terrible. I am in England and thankfully we have the National Health Service so don't have to worry about medical insurance. I have been on Effexor for nine years and really can't function without it so I can't imagine having it suddenly withdrawn. I was told that it had to be withdrawn from gradually but I had never really thought about finding out what the withdrawal effects would be so whenever I have not had any for a few days through forgetting to take it somewhere or not getting round to going to the doctors I have had the symptoms you describe but thought it was the depression resurfacing as I had awful nightmares and the feeling you are going crazy with that. I did attribute the dizziness to withdrawal though and also get very nauseous and a really upset stomach when I am withdrawing. I think it is appalling that in a supposedly civilised society these people can just take away a persons medication like that. I am fuming on your behalf. I would make a complaint to everyone you can think of to draw attention to the inadequacies of such a system. What are brain zaps by the way?
• United States
6 Jan 07
Brain zaps... hrm...difficult to describe... you feel this zap in your head... get a little light headed, out of focus.... I noticed these before when I took my medicine later than usual or would forget to take it and I always thought it was blood pressure or something.....I never, ever thought it could be related to the anti-depressant.
6 Jan 07
Oh right, I think I know what you mean. A bit like when you stand up too quickly?
@Shaun72 (15959)
• Palatka, Florida
5 Jan 07
That explins why I feel so fatiged. I was on efforxr but I just switched to lexapro.I just switched least week I already have chroic fatige from having ms. So this really explains why I have been so tired latley
1 person likes this
• United States
6 Jan 07
It could explain it. Hopefully it won't take long for it to go away since you are taking another medication. The "brain zaps" and the lucid nightmares were the worst part for me. Hopefully the new medication will keep those away. Good luck with the lexapro.
• United States
21 Jan 07
Unfortunately, Angel, there was a warning on the gobs of information that was stapled to the bag when you picked up your Rx. Of course you would have had to have had a magnifying glass and the time and patience to read through all of the things that only pharmacists and doctors understand to get to it. To answer your question there are several safeguards in place to make sure this situation does not happen (these safeguards are controlled by the government - so you can get some idea of how safe the safeguards are) -When ordering a new medication for you, it is the responsibility of the doctor to know exactly what kind of medications you are on already (it is YOUR responsibility to provide her/him with an accurate list - including vitamins and herbal supplements -Once the doctor starts you on a medication such as this you should be informed of all of the possible side effects at the time of him/her prescribing it and have the opportunity to ask questions (safeguard number 1) -When you go to the pharmacy to pick up your medication you should be given the opportunity to ask any questions at all about your medications (safeguard #2). However, most people working in the pharmacy will automatically hand you the pen, point to the box where you check that you did not request information, and then simply hand you your medication. -(Safeguard #3) is the one that I wrote above about the papers that are stapled to your bag - too hard for someone to actually find the information. -You should then be scheduled for an appointment no less than one month away (some doctors may want to see you in as little as 1-2 weeks from starting some new medications), again you are given the chance to discuss any changes this medication is having on you/your body (safeguard #4). As soon as you found out you were going to have to change insurance plans, at that time, it became your responsibility to notifiy your physician's office. (Next time you will know this information). When you call your first ask for the billing department and make your changes there -then you request to be connected to your physician's nurse or your case worker. Explain to them that your policy has changed and it may not cover all of your medications, tell them the medications you are on, how many days supply you have on hand, ask if any of your medications that are not covered need a slow withdrawal plan and if so do they have samples they can give you to cover the amount of time needed to start a replacement medication - if not, can they contact the new insurer and request an emergency coverage for this medication for a specified amount of time. I know that I've given you a lot of information to digest in just one post, but I do hope it will be of some help to you ~Donna
1 person likes this
• United States
22 Jan 07
The thing is.. I DO read the information that comes with the medication. The print out from the pharmacy AND the information that comes with the medication itself. It did NOT say anything about having these kind of side effects if you miss a dose or if you stop taking the medication. Unfortunately I had little warning of the insurance change as I was on my husband's insurance, he got laid off and the insurance stopped in a week (it was the end of the month when he got laid off). I did see the doctor many times after being prescribed the medication, but while on the medication there wasn't the problems of withdrawls to bring up to the doctor.... Thank you for taking the time to write such a detailed response.
@onesiobhan (1327)
• Canada
5 Jan 07
That's one of those situations where it really pays to research what you are taking. I think it's really irresponsable of doctors (and insurance companies) to change or stop medication suddenly without regard to the side-effects. When I was on Paxil I questioned my doctor about the side-effects. Otherwise he never would have told me.
1 person likes this
• United States
6 Jan 07
Yes, research is good. Unfortunately I thought the literature that came with the medicine was enough. I do research them now as best I can. It helps that blogging has become so popular because you can find personal accounts of people's experiences rather than just relying on the medical professionals.
• United States
6 Jan 07
Insurance Companies are just evil vile people. I have often said they are indeed the Evil Empires of today. The Insurance Companies do have WAYYYYYYYYY to much control over our health and well being as you have seen and lived with and even regarding important medicines...Lived without. This Country needs to just nationalize our health care and to the People who will scream about it (mostly republicans) they can all just shut the hell up and realize the needs of the many outweigh the needs of the 1% at the top.
• United States
6 Jan 07
ahem... there are pros and cons to Nationalized Health Care and it's not just the Republicans that scream about it. But in countries that do have Nationalized Health Care, the money to pay for it comes from somewhere, usually in high taxes of some sort. There does need to be some radical changes. People being denied care because the HMO wants to save money, medicines being denied because they haven't been put on the formulary, etc. I'm not sure what the answer is. I do know that things need to change, but telling people to "just shut the hell up" doesn't work either. Like I said, there are pros and cons to both sides.
@caper111 (163)
• Canada
12 Jan 07
I started taking effexor almost a year ago and if I take it even an hour later than the day before I start to experience the side effects you are talking about. One day I forgot to take them and I started to feel dizzy but I thought I was getting the flu so didn't think much about it. Well tyhe next day my husband and I went for a walk and on the way back I started having trouble focusing and was getting really dizzy. When we got home he went to mow the lawn and I stayed in with the kids. My baby started crying and I was too dizzy to walk and I sat down and cried because I couldn't get her. I had to crawl to the back door to get my husband to come in, and I curled up in a ball and cried for about two hours. Nothing he said could help me. Before that happened he wanted me to come off the medication and that day he looked at me and said take your pills and he has been after me everyday since then. That was only from not taking them for 2 days so I don't want to imagine what you went through for 2 months.
• United States
20 Jan 07
In my opinion both the doctor and the pharmacist should have said something to you. Especially when it is reported by so many people that the side effects are so strong. It's not right that insurances have such a control over this or that the price of medications is so high to start with. I think it is kind of ridiculous.
1 person likes this
• United States
25 Jan 07
Nobody told me either, and I'd get very sick every time I missed a dose. It took me months to figure it out. I was pretty upset. I started taking it in the mental hospital so someone should have mentioned it.