Did your child stop talking - or just not start?

Canada
February 4, 2007 9:34pm CST
My son, who is no 7 1/2, had a major regrssion in his speech around 18 months old. It's funny that we never really put that together with Autism until this past year, because I know it is a common symptom. We didn't get an accurate Autism diagnoses till this past June, and no one was thinking that the speech thign was that important. Now I look back on it and think 'duuuh'.
3 people like this
5 responses
• India
11 Feb 07
i've a cuzin who jsut did not start speakin clearly yet..i mean..she can talk to herself..though not clearly..but she can never get to respond..sticks to her own world..very hard to get her attention..she's about 7.5 years old too..hoping for her to improve!!
2 people like this
• Canada
11 Feb 07
has your cousin been diagnosed with anything? It sounds like if she hasn't, she needs to be assessed soon.
1 person likes this
@sylviekitty (2083)
• United States
5 Feb 07
First, I have a cousin with Autism, who is a year older than your son. He (from what I recall) did have vocabulary, and then around the time of his 15 month shots, pretty much stopped talking. His mother is convinced the shots had everything to do with Autism, in his case. My son is 3 1/2, and he only had a few words to begin with.. it was the lack of speech, and a concern about his hearing, that made me question what was going on. His hearing was tested and was shown to be normal. But because his speech was still not progressing, his pediatrician referred us to the state early intervention program. I would say his speech has really picked up just since this last September, when he started special needs preschool. And he's starting speech therapy tomorrow, since he does need extra help.
• Canada
5 Feb 07
Hi sylviekitty. My son was in a special needs preschool when he stopped talking - they referred us to a psychologist, and we did play therapy, and we were able to draw him out of his shell a bit and get him talking again ... all along they thought it was just anxiety. I guess we were lucky that he was in that preschool, because they helped him. We were there because his older brother was there (bilateral cleft lip and palate and ADHD) and we just had my younger son go there to be together (its a mixed preschool). We never thought our second son would need the services so much too.
1 person likes this
@rainbow (6761)
5 Feb 07
I am so sorry your little boy does not talk well yet, are you going to be able to get a therapist to help him with his words? I know how hard it is but why didn't any of these professional people ever worry that he wasn't saying very much, the things they dismiss when they are important always amaze me. Being able to communicate his needs would have made all of your lives easier. Bong has only managed conversations the last year or so, he was 7 in October and still has a speach delay but the schools speech therapist discharged him and now school want it looking at again.
2 people like this
• Canada
5 Feb 07
Hi Rainbow. He can talk now, we did a LOT of therapy with him. It just blows my mind that through all of that, they NEVER thought it was Autism. They figured it was his anxiety that caused him to stop talking. He still has a pretty limited vocabulary but it is increasing. Sometimes he uses a word I use every day ... and I get a shock because I realize he has never said it before. He is in a good place at school right now, and I think that is why he is improving. I think it will take me a while to get over the frustration of beign mis-diagnosed for so long.
1 person likes this
@albert2412 (1782)
• United States
11 Feb 07
Excuse me for asking, but did your son get a vaccine close to the time that he had a major regression at 18 months? Many children get the MMR shot from about 12 to 18 months old. My son stopped talking at age 12 and became autistic soon after getting the MMR shot.
1 person likes this
• Canada
12 Feb 07
No my son didn't get a vaccine around that time. I do not believe the vaccine causes Autism. That is about the age that Autistic children have aregression in speech, and it is just coincidence that the vaccine is around that time too. My son was about 6 months behind on his vaccines because he was extremely sick (pnemonia) as an infant and we got behind on them then. My son showed signs of being neurologically different within 24 hours of his birth. There really is no conclusive evidence linking the vaccines with the shot. I think a lot of people want someone to blame - or something - but there really is nothing to blame. Autism just happens.
1 person likes this
@blueskies (1186)
• United States
21 Feb 07
Yes, my son stopped talking completely at 18 months of age. That is what prompted me to have him evaluated. He was diagnosed at 20 months with sensory integration disorder. He received intensive therapy for speech, fine and gross motor skills, and desensitivity training to help him overcome his tactile defensiveness. By age 5, he was declassified as special needs and started mainstream kindergarten. In grade 3, Collin started to regress, melt down and act out when punished. That started a rollercoaster ride of doctors visits, misdiagnosis, wrongly administered disciplinary actions by the school, you name it. We finally gave up our home and moved to the city so that he had a better chance of receiving help through the school system. He was diagnosed as PDD-NOS in 5th grade. For those who blame vaccinations, please know that my son showed signs of neurological abnormalities at just a few months of age. At the time, I just thought he was an "odd" baby. I, too, do not believe that vaccines cause autism.
1 person likes this
@blueskies (1186)
• United States
21 Feb 07
Absolutely, the correct diagnosis is key. What infuriates me is how the schools can be so determined to punish and make an example out of every child that acts out violently. They don't bother to look for the cause, just punish. We really need to get our teachers better education on dealing with "problem children" so that they can recognize that things are not always what they seem.
1 person likes this
• Canada
21 Feb 07
My son showed differences within 24 hours of birth. We live in the city, so I guess that was an advantage in some ways. He did have a special needs label from preschool, which helped a lot, even without a solid diagnosis. Mainstream kindergarten was a nightmare for him, though. He couldn't do what they asked, and he couldn't earn the rewards they set out for him. It doesn't matter what you offer him, if he can't do it, he can't do it. He got violent and was asked to leave. Now he is doing so much better - and we are looking at moving him back to mainstream with an aide. It helps to have the correct diagnosis ... it gest the whole team working towards the same goal.
1 person likes this
• Canada
23 Feb 07
I soooo agree with you. My son's mainstream kindergarten teacher really felt that he 'could' behave if he chose to, and he needed to be punished and made an example of when he misbehaved. Grrr. I still get angry when I think of her.