I am in so much pain and no one understands!

United States
February 9, 2007 5:59pm CST
Lately I have been in so much pain that I've had to take half a Darbaset in the daytime, along with my usual muscle relaxer at night. No one understands how much pain I am in and I hate complaining (it doesn't make the pain go away). I have to take Excedrin pretty much every day between migraines and tension headaches, and nothing I do makes the random, all-over pain go away. What have you done to help with the pain? I've started seriously taking Guaifenesin again (2400 mg/day --is anyone else here doing the Guai treatment? -I would love some feedback and support). I don't want to sound like I'm whining here, but I'm 19, take a full load of upper level undergraduate courses, work 30 hours a week and volunteer...what the heck am I supposed to do?!?! I'm getting to where it's nearly impossible to get up in the morning, just as hard to fall asleep, I'm in so much pain at work (supervisor at a small retail boutique) that I can't function or accomplish the simplest tasks, I can't sit through my classes, and I can't concentrate long enough on assignments to do as well as I can do. Help help help help!!! I'm working on making an appointment with a doctor who will hopefully be able to do more than try to give me an anti-depressant (I'm not depressed...the only one of the Fibro symptoms I lack). Please let me know how you ladies (and gentlemen?) are surviving...because I can't keep doing this much longer =/
1 person likes this
4 responses
@chertsy (3798)
• United States
21 Feb 07
I know how you feel. I have been told it's all in my head, lol. If it was in my head, then why does it hurt like heck in my legs. My sister thinks I'm making this all up for attention. Oh yes I want attention because I can't walk up the stairs to my kids rooms. Don't get me started on the weather. You can try aleve, if you haven't used it. It takes about 5 minutes to kick in and it actually takes the pain away. Your only 19, My earliest memories of having my pains when I was 5 years old. I couldn't do a lot of things like every else did without suffering at night. What helped me with the pain, weird to say was having my dad lay on my legs. His weight and the heat helped take the pain away. But as I got older, my dad couldn't do it anymore so I used heating pads and a electric blanket at night. I remember the pain being so bad in both my legs at the same time, I just collapsed. Last time it happened I was holding my newborn daughter. Luckily, I fell backward on to my couch. I have done the doctor thing, I got put on two different meds, one was for depression that was suppose to help me sleep. I had to make sure my daughter was sleeping and I was laying down. Those were some fast acting meds. I didn't like them, I would wake up feeling like a zombie. So now I guess you say I suffer with it, but I don't let it get me down. I know people that suffer with this that has trouble walking and has to use a wheelchair. So as long as I am able to get out of my bed on my own and walk. I know I will be ok.
• United States
21 Feb 07
Thank you for sharing with me! I have a close friend who was diagnosed with Fibro when she was quite young too--it's more common in older people. Well, my only real update is that the doctor that I'd hoped to see has passed me along to yet another doctor, saying that he "didn't think that he could do anything for me"--he never saw anything but my records! I'm having a hard time just finding a doctor who will DIAGNOSE me. --I don't have a diagnosis in my records, although any doctor I see for a cold or whatnot agrees that I have Fibro. I can't write much more now, as I need to go study for an exam, but thank you for your help!
• United States
10 Feb 07
i'm on the other end age wise, but do totally sympathize with the pain aspect and what to do about it. i haven't had much luck in dealing with it while working, so am now on disability. but i do try to stay as active as i can, but not as much as i should be. getting as much stress out of your life is very important, too, but sounds like you have an extremely full plate with a very lot going on and no way or time to relax and unwind from it all. try to fit in or make time for that too, somehow, and hugs to you. one of the first drs i saw did a 'manuever' on me and never again, thanks. another said it was all in my head, nothing wrong...hmmm, i wish i could trade places with him on one of my really bad days and then see what he says, lol. keep on truckin' and good luck in finding some balance and a good dr. both are invaluable.
1 person likes this
• United States
11 Feb 07
I've been slowly working on finding little things to either take away stress or just to lessen the stress of things. Unfortunately, when I first saw a doctor who treats Fibro, I was 16, and actually more there for my mom. At that time my only symptoms were horrendous headaches, general dizziness, and bad IBS, so he told me to take Guai like my mom and did little else. That doctor has now retired, and my symptoms are like a semi running over my body every day. I did find a little time today to relax, read a book (albeit an assigned one--I had read it before and enjoyed it), and get some sun. I felt much better for it, so I'm determined to make that a more consistent occurense. I know what you mean about wanting to stick a bad day on someone who tells you it's just in your head...but then again, I don't know if I could wish this on anyone =( Thank you so much for you kind words and encouragement!!!
1 person likes this
@AmbiePam (93939)
• United States
10 Feb 07
Oh, honey I wish I could help you!I hesitate to say this because I'm pretty sure you are doing things that have to be done, but you kinda need to get rid of some of your responsibilities. I think your doctor might say the same thing. Is it possible to cut back on your college courses by at least 3 classes?I'm 25 and I have a host of physical problems. The many doctors I saw told me many things, but all told me to simplify my life in any way I could. They tried to send me to the Mayo Clinic, but my insurance wouldn't pay for it. Some advice that has helped me is going to a chiropractor. Yes, I know, the majority seem to be quacks, but when you find a good one they are worth it. Drink water galore and eat a lot of green leafy vegetables, and also include fruits. They give you energy without dragging you down with sugar. And also, see a therapist to get down to what is really causing you to do so much or want to be so busy. I'm assuming though you don't want to be too busy. Seeing a medical doctor is a wonderful first step. Oh, the chiropractor helped my fibromyalgia and migraines so much! I was using a cane until I saw my chiropractor. Now, I'm still ill, but I get along just fine. My best wishes are with you!
• United States
10 Feb 07
I've always been a very driven person, so it's hard for me not to be able to do the tasks that I need to. I'm trying to graduate May of 2008 (although it's looking more like Summer 2008 now) with my degrees in Communications and Spanish. I would love to be able to cut back on work, but I already work two jobs, plus tutoring and babysitting just to pay the bills (and believe me, tutoring and babysitting are some of the most enjoyable things I do in a week =) I have food sensitivities and allergies, thus IBS, so finding foods that I can eat is a challenge. Thanks for affirming "green and leafy"--spinach, broccoli, green beans, lettuce, and kale are becoming my staples. Fresh fruits bother my stomach unless I eat them with a protein or a carb (like bread, potatoes). I have been focusing on drinking a ton of water again. I was seeing a chiropractor about a year ago, but all he could really do was tell my some of the reasons why my back hurts so badly, but the combination of his adjustments and weekly massage therapy weren't very effective. I'm hoping that the doctor I'm trying to get in to see may prescribe massage therapy (which will hopefully be covered by insurance then--I'm in a much more expensive area now than I was in when I had massage therapy before). Thank you so much for your suggestions though! Maybe I should try another chiropractor now--things have gotten worse, so maybe there are therapies and something that would be more effective now...I'm going to start seeing my therapist again this week too, and I'll be sure to ask about responsibilities, me time, and lessening stress, like you suggest. Thank you so much again!
• Canada
14 Feb 07
First off I want to assure you that I do understand the pain that you are in. There are days when I can hardly move for the pain. Sometimes it will focus on a particular area, when another time it will be all over. I started off with milder pain medications, and also take fish oil, but I am now on stronger pain meds. I've never tried the Guai treatment, however have heard it works for some people. Anyone who doesn't live with it, can't really understand the pain that a person can deal with from it. The pain is real, and can be aggravated by a variety of things including stress, lack of sleep, weather, and who knows what else. I am a lot older, and have been dealing with the diagnosis of fibromyalgia, and osteoarthritis for approx. 10+ years now. When I was first diagnosed it was a relief just to put a name to what was causing my pain. I found a pain management doctor who was willing to suggest various alternatives, and ideas for medications, and he has also suggested various things I might try. One of the things was therapy in a warm pool, massage, and exercise. Unfortunately because of my arthritis, and two really bad knees I have not been able to work on the exercise part. There are so many options out there if one can afford to try them, but one of the things that has helped is injections into the painful areas...injections of freezing to numb the pain and relax the muscles of that area. Lack of sleep ultimately makes the pain worse so find something that will help in getting you to relax and set a regular bedtime. Melatonin is supposed to help people relax and sleep. I'm on a variety of medications that help me relax and get to sleep most of the time, however there are still many nights where I have a hard time getting to sleep. Get some proper pain medication, use topical creams to massage into the painful areas....warm baths, etc. Try to keep a balance of activity and rest if possible. There are a lot of medications, for pain, muscle relaxations, etc. so it's hard to say what would work for everyone. Acupuncture is another treatment I have heard some people say has worked, but not something I've ever tried. There are alot of sites that give you information about various treatments...but I must admit, I have not yet really found anything that helps completely with the pain. Sure hope you are able to find something that will help you.