Medicating my son, I hate this.

@blueskies (1186)
United States
February 12, 2007 12:47pm CST
My son was prescribed seroquel last week. So far, we have seen a rather dramatic increase in frustration, anxiety and anger. I took him back to the dr this morning and he doubled the dose. The dr also wanted to add xanax to the mix but I said no. On my request, he added buspar instead. I have discussed the benefits of buspar on kids with autism spectrum disorders with the psychiatrist who did my son's latest evaluation. He agreed that it might help my son, as he has "an unfortunate mix" of disorders. We haven't yet started the new medication, as we are waiting for the prescription to be filled. I'm sitting here on tenterhooks as my son rages up in his room. Poor kid :( I just needed to talk about this a bit. I hate medicating my son, but when he came to me last week and told me he wanted to kill himself, I knew it was time to explore medications to try to help him feel better. If I don't respond to your comments right away, just know that it's a bit rough here, today.
15 people like this
33 responses
@tokidoki (15)
• Philippines
13 Feb 07
hi there, im also taking seroquel (50mg). i was diagnosed with major depression then when i was confined in the hospital they diagnosed me with hypomania. at first i was in denial ( i have a brother who is bipolar) i told myself im not like him... im on prozac, depakote, risperdal, seroquel and rivotril. i've tried many medications already that i cannot recall their names.. sometimes i feel like a guinea pig already but i do not know what else to do. i want to get better. there are days that i want to stop taking medications, it's too much for me to take. how old is your son? im already 22 as much as you hate medicating ur son, it helps. The medicines helped me a lot.
3 people like this
@blueskies (1186)
• United States
13 Feb 07
Thank you for sharing your experiences, it really helps me. My son is 12, but he is already 5'5" and 200 lbs, so he is dosed as an adult. Did the seroquel make you extremely tired in the mornings?
1 person likes this
• Philippines
14 Feb 07
yes i find it hard to get up every morning because of seroquel
1 person likes this
• Philippines
14 Feb 07
yes i find it hard to get up every morning because of seroquel
1 person likes this
@mobyfriend (1017)
• Netherlands
13 Feb 07
Blueskies feel free to write about what is troubling right now. I know what you feel when you hear son saying he wants to kill himself. Just know that in this period you need to medicate him and maybe after you some you can evaluate the situation again and make other decisions for his treatment. But right now just go for it. And I understand that it's rough at your place right now. Just surround yourself with people who understand you and your family and you'll get through the rough period.
3 people like this
@RebeccaLynn (2256)
• United States
13 Feb 07
Well blueskies, I sat and read every post here and what struck me is just how many people are praying for you and your son. I myself made it a point to stop and say a prayer. With God working for you, it's going to be all right. Believe that. I know this is a terribly difficult time for you. We work so hard to protect our children and when something like this happens we feel helpless. There is nothing worse for a parent than not being able to remove our child's pain. You are doing all that you can do. You have friends here who are praying for you, you are working closely with your son's doctor and therapist and most importantly, you are giving him love. God and time will take care of the rest. But are you taking care of you, my dear? Where do you turn to for support? Are you involved with other parents whose children suffer similiar problems? My advice is that you should be. You could share your knowledge and experience and gain very good information, not to mention support from an online group for parents such as yourself. After I read your post I did a little research for you. Yahoo groups has quite a few groups for parents of children with autism spectrum disorders. There are also groups for the childrem themselves. Your son might benefit from having online friends who experience the same things that he does. The site is http://www.groups.yahoo.com You can go from there and pick and choose which groups suit you. But know that my prayers are with you and your family. God bless you.
@blueskies (1186)
• United States
13 Feb 07
Thank you so much. The school has been very supportive and is trying to help my son right along with me. I really appreciate the prayers and well-wishes from you all. I do read on a few autism message boards and am constantly researching his conditions, looking for new treatments or genuine solutions for his issues. I will check out that yahoo group. Moby, thanks for the link to the autism group, I will check that out, as well.
2 people like this
• Netherlands
13 Feb 07
Can I say that on MySpace also there are very good support groups for parents with AS? I am a member of the one called I love someone with autism. Good point RebeccaLyn.
3 people like this
@nana1944 (1364)
• United States
12 Feb 07
I am sorry to hear about your son. Any illness of a child is hard to cope with but with mental disorders it is hardest I think. I am glad to see you went informed. Could the psychiatrist not have prescribed the medications himself? God bless you and your son. I will be thinking of you both.
3 people like this
• Canada
13 Feb 07
I know exaclty how you feel. this past fall we tried to remove a medicine from my son, because our new doctor thought that it might be redundant with the other med we were giving him. His little life fell apart. Suddenly everything was upsetting him in ways we hadn't seen in over a year. He lost his control of speech, and became very violent. His school wanted to move him, but I insisted they let us get the meds sorted before uprooting him. He put him back on the meds and within a week he was doing so much better. I remember holding him one night as he raged and screamed in my arms thinking 'we messed with this kid's head, in THE most literal aspect of the terms, and look what we did!' I know our intentions were good - we wanted to lower the amount of meds he takes - but it was so hard to watch. So I know that when we make decisions like this for our children, even with the best intentions, it can be torturous to watch the results if they don't go well. It will get better, and you are a wonderful, brave mother. On a cautionary note - I was surprised to hear that your doc wants you to increase one med AND add a new med ... because with two changes, you won't ever know which one causes what effects. Our doctor always does one change at a time. Otherwise, if he gets better, you will never know if it was the increased dose or the new meds ... and if he gest worse you won't know which one you need to cut back. Maybe talk to your doc about giving it a few days before adding the Buspar? Just an idea. Good luck - I feel your pain - you are a wonderful mom looking out for your boy like this.
@blueskies (1186)
• United States
13 Feb 07
Well, he is missing another day of school today because we can't get him out of bed. This is hell because I don't know if I'm helping or hurting him at this point. The increase in the one med and the addition of the second med were done at the same time because the two compliment each other. He needs the buspar to reduce his extreme anxiety, but he needs the seroquel to keep him from becoming manic from the buspar. I hate this!....but nothing else we've tried has worked.
2 people like this
• Canada
14 Feb 07
I am so sorry, I know it's hard. Remember you are doing the right thing - even if it's not the right med when all is said and done (which it's too soon to know) you are still doing the right thing by trying. Hope tomorrow is a better day.
1 person likes this
• United States
12 Feb 07
Good luck. It's hard to be in your son's position (I should know) and I also know it's hard for a parent to have to watch and deal with this. I personally didn't do very well on Seroquel. I currently take Gabitril, Wellbutrin, Lexapro, and Focalin for my bipolar disorder, anxiety and ADD. I don't like having to take so many medications, but my quality of life has improved so dramatically that it's worth it. I hope you find something that helps your son very soon!
@rainbow (6761)
12 Feb 07
Oh you poor darlings, it must be awful for you all. Try to remember a lot of this is the medication getting into his system although I would be concerned with the double up and extra tablets too, at least you had enough information to discuss your preferences with the doctor, Maybe the new medication will help him, poor little Angel, try to give it a fair chance, you can discuss the dosage later with your doctors. I truly wish you all the best with helping him, it's just so scary trying to know what to do for best. Bless him, poor little fellow, wish I could say someting that helps but I don't know what will, just know that I am here if you want to vent your feelings. hugs to you all
2 people like this
@rainbow (6761)
13 Feb 07
Hi, how's things today? love to you all!
2 people like this
@blueskies (1186)
• United States
13 Feb 07
Hi Rainbow. Thanks for the love :). He wouldn't get out of bed this morning to go to school. I just went upstairs and woke him up again. He seems to be ok, just a bit groggy. I called the dr and he says to keep giving him the meds because they haven't had a chance to build up to a therapeutic dose yet. I'm keeping my fingers crossed.
1 person likes this
@nannacroc (4049)
12 Feb 07
I don't know what else you've tried but a friend of mine found that her autistic sons both responded very well to a diet which was free of wheat and dairy products. It may be an option you've already tried, but she found a complete change in their behaviour, they were calmer and began to learn better.
2 people like this
@blueskies (1186)
• United States
13 Feb 07
I would very much like to try the gluten/casien free diet for my son. Unfortunately, one of his obsessive areas is food. If we can get him to stop being so obsessive, he might be open to trying new foods. Right now, almost everything he eats contains wheat and/or dairy.
1 person likes this
@beckyomg1 (6756)
• United States
12 Feb 07
Did he get prescribed this for "bipolar" issues? My son is on a different med for his bipolar and he does half way decent on it.
2 people like this
@beckyomg1 (6756)
• United States
13 Feb 07
my son is on depakote for his bipolar and he seems to be doing alright on that med. it is an anticonvlent(notsure if thats the correct spelling)
2 people like this
@ladygator (3465)
• United States
12 Feb 07
Aw hun, I am sorry that you are going through that. That must be really hard for your family. How old is he?
@linda345 (2661)
• Canada
12 Feb 07
I am coming off Serquiel myself right now because I was taking over 400mg and finding it too sedating. It is a mood stabalizer with sedating qualities in it. Your doctor my have to play around with the dose. How old is your son. What is buspar. I have never taken that one. You also have to give a chance for the meds to work. I haven't been able to sleep for 2 days straight coming off medications.
2 people like this
@blueskies (1186)
• United States
12 Feb 07
My son is 12, but he is the size of a grown man. He was prescribed the seroquel after a diagnoses of bipolar2, along with PDD-NOS (pervasive devolopment disorder not otherwise specified) which is an autism disorder. Buspar is an antidepressant. My son can't be given Buspar alone because antidepressants make him manic. We are hoping that the combination of the two medications will reduce his depression (seroquel) and reduce his constant anxiety (buspar). Thank you for the well-wishes. It's been a stressful day so far. I worry about him so much and I try to keep that from him, as it will only add to his anxiety.
1 person likes this
@blueskies (1186)
• United States
12 Feb 07
I also meant to mention that my son is unusually sensitive to medications. Meds like prozac that are supposed to take a couple of weeks to build up to therapeutic levels affect him within just a few days. It appears that he is just as sensitive to the seroquel as everything else. He has been taking 50mg. After today, he will be taking 100mg seroquel and 75mg buspar.
1 person likes this
• United States
13 Feb 07
I understand the feeling. My daughter is on adderall and trileptal. The adderall is for her adhd. She is so angry and gets easily upset without it. We are trying her on different things, but don't usually switch her maybe every six months to a year. So far, the adderall is working. The medications usually has to be increased or decreased until found out how it will effect her. Good luck. We have those days at my house too.
2 people like this
@vicky1 (240)
• United States
12 Feb 07
I don't have a clue what you are going through. But wanted to give you a very big high five for what you are doing for your son. Also for standing up to the Dr. I hope the new meds help in giving your son some relief.
2 people like this
@lvap0628 (731)
• Philippines
13 Feb 07
I'm sorry to hear about your son and what you are going through. but he is lucky because he has you to care for him. i hope he will get better with his new medications. don't give up and always pray.
2 people like this
@vmoore709 (1101)
• United States
12 Feb 07
You have to do what is best for your son and it sounds like that is exactly what you are doing. It may be hard, but look at what could happen if you don't follow through. If you really feel against it, talk to another doctor and get a second opinion. Maybe there is another way. Best of luck!
2 people like this
@TerryZ (22076)
• United States
12 Feb 07
Oh you poor thing I hope you both are okay. Have trust in the doctor and things will work out. I know the feeling today I had to fight just to get our heater fixed and finally they will be by tommorrow with a new heater. so You hang in there and I will say a pray for your son tonight. Take care
@KrisNY (7590)
• United States
12 Feb 07
My heart goes out to you. I'm wishing you and your son the best of luck in finding something that works. I agree that it was time to try something different. It's a sad thing but it will help him and you. I don't know what your are going through but I wanted to let you know that people care. Good luck with the new medicine-- I hope it brings your son some peace.
• United States
12 Feb 07
I am so sorry to hear about your son the only benifit I can do is to pray.Please dear Jesus lay your healing hand upon this boy and heal him with your almighty power and protect him from hisself and be with the parents of this child give them the strenght to cope with all that they endure I know that they are not alone because you are with them throught out all of this please dear Jesus make them stronger by this by having faith in you Amen
2 people like this
• United States
12 Feb 07
Learn as much as you can about the specific disorders your son has and go from there. I have fought Depression for years and was just diagnosed with ADD ... and I am 37 years old. My wife and I learned as much as we can about these things before we made any opinions. I know it feels funny medication your son but if it will help him then go with it. Good luck.
2 people like this
• United States
12 Feb 07
Sorry to hear you are having a rough time. No one like to medicate their children, but sometimes it is necessary. I'm glad you know enough about medication and asked your doctor to adjust and change your son's medication.