Mydaughter was diagnosed with epilepsy 2months ago
United States
February 13, 2007 8:43pm CST
My child is 15 and started having seizures soon after having rocky mountain spotted fever. But only if she had a fever. But in Sept. she started having a seizure about once a month. In Nov. I took her to neuro Dr. he said it was from the RMSF so now she is taking medication and soon when she should be driving she cannot. My question is does anyone else have any advise about this and how can I help her get through this.The med. is trileptal and seems to be keeping her from having seizures but it makes her have memory loss.
5 people like this
5 responses
@classy56 (2880)
• United States
4 Mar 07
im sorry you daughter is going thur this.i just seen a special they had on a daytime soap about epliepsy.the day time soap was young an the restless.this guy was haveing seizure an memory lose an seeing things..you may have seen this show.but anyway if you need any info about elilepsy an medication go to www.epilepsy.org im sure you will fine alot of info you need on this site.
3 people like this
@Athenabeauchamp (197)
• United States
5 Mar 07
thank you for replying and we are working to get the meds right it has been 2 months since her last seizure so perhaps by the start of school next fall she can get a remit to drive. It bothers her more than me I was worrying about her driving anyway without the seizures. LOL Thank you for the address I will check it out.
2 people like this
@peni88 (469)
• United States
14 Feb 07
i had seizures when i was younger, but i out grew them. my advice to you is just keep reminding your daughter that you love her and its not her fault. why cant she drive? a few people i know still have seizures and drive. does she get tests done every month? i know when i was having them i had to get e.e.g;s every month. let me know if i can help.
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@Athenabeauchamp (197)
• United States
5 Mar 07
She seems to be getting betteer with the3 medication but has memeory loss with it. Sometimes she walks into class and cannot remember where she sits.The meds are keeping her from having seizures and I have reduced her dose to a half a pill twice a day and her memory is better I am hoping that she can someday get off them for good. Thank you for replying.
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@ILANEDRI (1921)
• Israel
7 Apr 07
Hello and welcome!
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@Molly322 (125)
• United States
4 Mar 07
I had seizures infrequently as a small child but then with regularity after I turned 15.
I found that simply being able to have an open line of communication with friends and family and my doctor has helped me cope immeasurably. I also did a lot of reading about the condition so I could interact with my doctor more, especially when it came to making and understanding choices regarding my care and treatment. I also joined an online support group when I went away to school which put me into contact with a whole community of individuals who were living with epilepsy. It was great to be able to have that kind of access to people who were dealing with the same issues I was facing.
Unfortunately, there are side effects to the medications but they can be worked around. If your daughter is experiencing memory loss as a result of her medication, it might be a good idea to buy her a pocket day planner or an electronic planner where she can store important numbers, addresses, dates and information to have at hand whenever she needs it.
If her medication is keeping her seizures well under control, there is hope that she will be able to drive at some point. Most states require a period of at least 6 months without a seizure to be able to drive and usually then after receiving the green light from their physician. If your daughter is able to identify her triggers and is able to better predict the potential for having a seizure, she will better be able to tailor her lifestyle to allow her to do what she wants within the confines of the disorder. And, if it is decided that she will not be able to drive, she may want to consider living in a city with public transportation opportunities when she's older to allow her to live as free a life as possible.
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@Athenabeauchamp (197)
• United States
5 Mar 07
Thank you for replying and hopefully the meds will work. She has not had a seizure sincce they put her on them but the memory loss is devastating to her as she had a 4.0 gpa and when she first started taking them she could not do her school work but after adjusting the dosage it is better. It is hard to be a normal person then you have seizures and it seems your dreams are gone. I am trying to make this as easy as it can be for her and soon she will be able to drive I am sure of it. She always know when she is going to seize and tells someone I am just afraid of her being by herself and having one as she stopped breathing once when we were in town I was lucky to be be driving right past a hospital and turned into the er and they got her breathing again It is so devastating for her and terrible for me to watch. when she had rocky mountain spotted fever they said it may affect her later but I did not ever think it would be epilepsy. When she gets hot she cannot sweat and it causes her to seize.The Dr said that the R M S F made a small dot on her brain about the size of a piece of peppeee and when the electrodes go thru it and she is hot it causes the seizures but it took 8 years to do so. It is a lot to do and watch for and have to live with though we are trying very hard to learn to live with it. thankk you so much for your reply and I do appreciate your time and concern. Have a wonderful evening.
2 people like this
@youdontsay (3497)
• United States
15 May 07
Did you know that pets can often tell when their owner is going to have a seizure up to ten minutes before it occurs? They have companion dogs for people to remind them to put themselves in a safe space before their seizure or to notify someone. I find that fascinating. And what a cool excuse for taking your pet wherever you go!
@babyangie27 (5176)
• United States
7 Apr 07
I have a 4 year old daughter with epilepsy. She had them when she was born and then they returned last year. She has about one a month. She is also on Trileptal. She takes 5.5.ml oral dose. It has been hard she has trouble sleeping sometimes and sometimes doesn't want to eat. Her neuro doctor gave me a pamplet on Epilepsy and it helped alot. Also the school she goes to has a great deal of compassion and they help us and her to deal with it. She only has partial seizures and they mostly come at night. Being a mom and having a child with this disorder is not easy I find myself worring alot about her and trying to find ways to teach her it's ok,she's just a little different than her friends. You should ask her neuro doctor about information they can give you to help deal with this. I hope the meds work and things get better so she can drive. Just let her know that she can live a normal life with this disorder and you will always be there for her if she needs to talk. Good Luck.
@youdontsay (3497)
• United States
15 May 07
I'm curious. Is the not sweating a side effect of the epilepsy or the medications or is it because she does not have enough sodium? When my sodium is low I don't sweat and get heat exhaustion or heat stroke.
@Athenabeauchamp (197)
• United States
9 Apr 07
Try melatonin for sleep the neuro said that it would hurt her and on the nights she cannot sleep one or two will make her slip off to sleep. She takes 900 mg of trilepal a day. If she does not get 8 hours of sleep she will have a seizure the next day so the nights she cannot sleep I let her sleep till she gets 8 hours and then take her to school late.The school is wonderful with her and they do not want her to seize so they are fine with her being late if it is needed. I also have diastat for when she has a seizure over 5 min both at home and school it is adminstired anally so I have a friend who works at the school if she ever needs it and I am not close to get there as I am an LPN and they do not have a school nurse so I have taught her how to give it so she can do so if she needs it. She always knows when she is going to have one so she gets to the office right away and they drop what they are doing and take caare of her and call me. We are new at this but trying very hard to live with it.Of course there are all kinds of triggers but we have figured out what hers are to much stress or excitement or lack of sleep,fever or over heating causes hers to come on. It is hard to keep a teen in the heat of the day they want to swim etc but if she gets hot she does not sweat so she heats up inside and has a seizure. Of coourse she wants to go and do as her friends but with limitations she can. It is so hard to live with this and the trileptal helps. They switched her to keppra but she is allegic to it as it made her throw up within 30 mins of taking it and then she was so gripy I wanted to leave home finally she got the hives so we put her back on trileptal and she is doing better it makes her a bit clumpsy and some memory loss but otherwise it works well.. Thank you for replying.
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