How many of you know a loved or friend with this illness?

It's a terrible dissease, your best shot for recovering or getting quite old is to get donor lungs. There are huge waiting lists for those though. I lost a friend to it when she was 17 years old, even though there are people who get a lot older you never know how it turns out. She's still young though and medical research gets better and better, keep hope and enjoy every day!

my daughter Beki has CF and i hope that a cure for it is around the corner.

My husband, who is now 36 years old, has Cystic Fibrosis. It's like the saying says, some days you're the dog, some days you're the hydrant. His doctors said he'd never make it this far. Now they're having to develop care for people his age and it's just amazing. Every day though we have to make choices about the treatments he needs versus the quality of the life he wants to live. he works full time outside the home as a network architect, so he can't and won't spend the 3 hours plus doing his nebulizer treatments. It's his choice and we've fought that fight many times. Every day is a whole new day full of new choices and challenges. But every day is a gift we didn't think we'd have. We're contantly amazed at the new treatments - like the saline treatment for instance. Salt water! Can you believe it??? and it's still almost 60$ at the pharmacy!!! *sigh* Yet the improvement in my husband's lung function is amazing - far better than he was doing on the Pulmazyme which was several hundred times more expensive for us. eek - have to get back to work! Good luck to you and your daughter - keep the faith! I'll keep you in my prayers!

My niece was diagnosed with cf at 6 months of age, she will be three soon. The difference in her from before treatments vs after treatments was amazing. She did not put on any weight and cried all the time before diagnosis and treatment. After her treatments began she gained weight and is such a happy little girl. It frightens me to think of her future and not knowing what hurdles she will face. I try to take comfort in the new treatments that have been developed over the years and the increased life expectancy.