Parents of Special Needs Kids?
By tat2dchica
@tat2dchica (16)
United States
February 20, 2007 12:06pm CST
Hi There
I am Sara...I have two sons..Kane age 3 and Louie Jr. Age 1 and 1/2
Louie Jr has many complex medical problems including trach, g-tube, arthrogryposis, skeletal dysplasia and anterior horn cell damage. He just got his first wheelchair and we are told he will never be able to walk....we say never say never but then again we have to be realistic
Any other moms, dads, siblings, friends and relatives of special kids out there?
Learn about Louie at http://louisangelo.tripod.com
:-)
1 person likes this
4 responses
@sexysilver (928)
• United States
24 Feb 07
Hi Sara.
I have two children. My younger one (a little girl) is now 6 months old and was released from the NICU the day before Valentine's Day. She also had a g-tube, but got her Mickey button on Feb 12th :). She still has a central line in her left leg. And has a condition caled Short Boewl Syndrome, which resulted from NEC, she has high blood pressure, Ehlers Danlos Syndrome, and several other medical complications. But she is as perfect as her brother & any other baby in my eyes & she has just as much potential as anyone else :)
1 person likes this
@Thoroughrob (11742)
• United States
24 Feb 07
Hi Sara, I have a son 12, with Cerebral Palsy. He is wheelchair bound, is nonverbal, and has a baclofen pump. Never give up!! My son is getting a power chair within the next month.
1 person likes this
@payingforschool (678)
• Canada
28 Feb 07
I have a son with a bilateral cleft lip and palate, and a son with Autism. Different special needs than your child, but still a lot to handle. My older son will be having his 10th surgery this month.
@jenniehenn (9)
• United States
27 Apr 07
My daughter has Conradi-Hunermann Syndrome. Skeletal Dysplasia, Catarcts, Scoliosis, uneven limbs. www.caringbridge.org/hennequant
